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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Snowie Hi Snowie yes greenpea is practising her moves as we speak. One-two-three ... one-two-three ... 🙂

In response to: A long rave

Re: A long rave

Saying hello now as I forgot I cant be at Friday Feast tonight.

Have fun if you go formal.

Cheers @Snowie @eth @Bunniekins @Mazarita @outlander

In response to: Re: A long rave

Re: A long rave

Well @Bunniekins I intend to be there tonight to see your dancing!!

Morning @Appleblossom I am sure you can catch up later on greenpea's formal!

Hope you have a good day today

In response to: Re: A long rave

Re: A long rave

@Snowie if worse comes to worse gp can just stand there and strike a pose in her new gown and hair 🙂

In response to: Re: A long rave

Re: A long rave

Hi @Appleblossom, @Bunniekins

Greenpea, are your exercises sometimes like mine? One two three on the keyboard?

Apple, do you have something on tonight? Hope it's enjoyable.

In response to: Re: A long rave

Re: A long rave

Thanks @Mazarita

Its a writing group which I have been part of for 5 years but I only manage a few times per year.

In response to: A long rave

Re: A long rave

@Bunniekins that's outrageous that they are making you do that. I thought it was an annual review but the actual acceptance was for life. Have you tried to get a Disability Advocate? They've been a great help for me and my sil (carer). I think you could do a 'request for review of a reviewable decision' to appeal against the need to re-apply. I've never heard of them making you start all over again every year.

We've sent off the final version of our statements and at this stage have a case conference next Thursday which we hope to do by telephone conference. It will most likely be mainly a discussion between the lawyers for each side.

@Mazarita Not much planned here today either. Will try to do 5km on the exercise bike soon, before it gets too hot. And aim at washing my dishes. My psychologist on Wednesday said with the way I'm feeling at the moment (brain fog when not angsting about NDIS) just to try and do one thing each day. And hopefully find some momentum from that.

Nice to catch you both in real time.

LOL @Snowie @Bunniekins images of greenpea voguing (sp?) like Madonna - static poses in the middle of a crowded dance floor!

In response to: Re: A long rave

Re: A long rave

Hi @Appleblossom

In response to: Re: A long rave

Re: A long rave

@Appleblossom, have you been doing much writing of late? I remember you were rather active with it, sometime in the past, but I haven't kept up with how you are going with it. Either way, may the writing group be rewarding and inspiring tonight.

@eth, your psych's advice about just doing one thing sounds like a good one. I will get to some things over the day, make the bed, wash and dress, clear the kitchen of dishes. Might not get much more done, aside from computer activities though. Actually I already did a couple of emails over the night and morning relating to the video stuff, so I suppose I have started on some things, even if only computer based. Trying to carry forward that feeling I had after Melbourne that what I do with video is in fact work.

In response to: Re: A long rave

Re: A long rave

Absolutely it is work @Mazarita - your works in the world. Not getting paid actually makes the work more valuable to me - a voluntary contribution to all that is.

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