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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

seems lots are stuggling. i dont have any words of wisdom but i do have hugs, so here we go- a hug for everyone that needs/wants them

@Mazarita@Former-Member@Shaz51@eth@Bunniekins@Faith-and-Hopeand everyone

In response to: A long rave

Re: A long rave

@Mazarita it is so, so nice to drop in here! 🙂

In response to: Re: A long rave

Re: A long rave

@outlander, hugs received and returned with gratitude.

@Former-Member

In response to: Re: A long rave

Re: A long rave

@Mazarita

hello @Former-Member

In response to: Re: A long rave

Re: A long rave

@Mazarita

I think the title of your thread could be

A Safe Sanctuary for a long rave

that is the feeling that I have every time I visit..

which lately oh dear it seems as though I have moved in!

have a peaceful evening all

In response to: Re: A long rave

Re: A long rave

Pull up a pew, @Former-Member. There's a comfy bed next door if you get sleepy. In other words, you are welcome to move in.

In response to: Re: A long rave

Re: A long rave

Middle of the night and awake again. Still mentally and emotionally hurting from the gastro appointment yesterday. Who would have thought 5 minutes with a doctor could have such an effect? I thought they were meant to help us heal, not cause mental and emotional distress on top of physical illness. But I should be used to this after 35 years dotted with these kinds of negative experiences with gastros.

I can't help but feel this gastro doctor didn't believe my honest account of my long experiences with Crohns Disease because he knows I have mental illness. I also can't help but feel that he was so dismissive of me because of this too.

Probably this feeling won't be helped until I can get to see my GP again. However, I want to wait long enough that a letter from gastro might come through to her before I go talk to her about this. I want to ask her what he has written in his letter, since I got so little information or communication from him yesterday. Which means I have to find a way to process this myself, or somehow 'park it up' for now. Not easy when your blood is simmering with frustration and a feeling of being disrespected.

I hope the obsessive thoughts, and feelings of being slapped in the face by that gastro, can give me some peace soon. I've experienced much worse than this in my life. Just gotta somehow pull myself together. Any distractions welcome.

Meanwhile, I hope everyone here is sleeping peacefully. ox

In response to: Re: A long rave

Re: A long rave

good morning @Mazarita

how are you feeling this morning? a little less agitated by such a dreadful ordeal?

I do hope that you managed some sleep...rest at least...

not sure if you have looked into support groups or personal stories etc related to crohns disease...

I found the following where you might find others having the same experience..

just ignore ...will not offend...if you have already done this..

http://www.crohnscolitisfoundation.org/living-with-crohns-colitis/find-a-support-group/

if not I hope it helps...there was one more I found will add in another message..

as I said might have already been there and done this...

In response to: A long rave

Re: A long rave

Goof morning everyone.... @Mazarita ..im so sorry that you had such a bad experience at the gastro ... he/she should not have treated you that way and i really hope he/she hasnt disregarded your concerns because of your MI ...good idea to read the letter so you know where you stand...i hope you got some good quality sleep as i know you have problems with this....re:Fan ...snap...i too have mine on all year round...i just cant sleep in complete silence and find the white noise from the fan helps....i am on my way to meet my new DBT phsycologist and i reslly hope i click with her....my eyes are alot better and hope the problem doesnt flare up again... @Former-Member ..
good morning ... i can see from your post that you are a very compassionate and caring person...what great qualities...i hope you have a goof day
catgirl🐾

In response to: Re: A long rave

Re: A long rave

@catgirl

anyhoo goof morning....the scotrish sisters are not about yet...

you have appointment today...yes hope you do click..it is such a wonderful feeling of ....finally

someone is listening to me and hearing without trying to advise me when they do not know me yet..goof luck...

thank you for your kind words...

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