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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hello @utopia 🙂

I have to admit it confuses me a lot too! (the not doing stuff). Sometimes I wonder whether I feel I don't deserve cleanliness and tidiness? Though sometimes there's the 'normal' physical problems, I have athritus and just moving about can be difficult. But whatever it is, it's more of a problem than some may realize. You already struggle with getting these things done, when they don't get done . . . they just get worse! It's a downwards spiral!

And yeah . . . I often think I'm just lazy too!

Hugs to you, your not lazy, your trying!

In response to: A long rave

Re: A long rave

Hey Mazy @Mazarita🙂

I think maybe I'm doing a postive thing with the 'fallout' (that really resonated with me). Allowing myself to drop back of the domestic push so I can focus on up-keeping the ones I have managed 🙂

I also understand the trauma you experience when you think back of the things you have done. I often think WHY did I do or allow those things to happen!?! I wonder whether it has something to do with hormones, and now that I've matured a bit, some of them are dying down?

Do you ever worry that there's some sort of genetic thing going on?

It's excellent to hear how positive you are about your support worker and good luck trailing the outside World on your own. I believe you can do it :)

In response to: Re: A long rave

Re: A long rave

@Former-Member, I do believe there is an aspect of genetics going on. I believe I've inherited my condition from my parents to a degree. Mental illness and addiction runs in my wider family. It makes sense to me what you are saying about hormones too. In any case, we find ourselves to be the way we are and that's what we've got to deal with, for better or worse.

In response to: A long rave

Re: A long rave

Hi "Nazarita ... 🤗💕

In response to: A long rave

Re: A long rave

Oops ... try that again .....

Hi @Mazarita .... 🤗💕

In response to: A long rave

Re: A long rave

Thanks @Mazarita and this is for you too @outlander I'm not really back yet ... 2 more days to go of immersion in the Unleashed Woman course - it's fantastic! So inspiring. Will share about the visitors when I have more time, thanks for asking. Lets just say it was intense and I was invalidated constantly. They're gone now since Wednesday 4pm - and boy didn't I take some deep breaths then!! Look forward to catching up soon. Miss you but need to keep focussed as the sessions aren't available after the 15th and I've only done about half of them. Some I will miss but just want to get as much as I can done within the time. The workbook I'm making will keep me going for a long time. I hope this message finds you both travelling gently across the landscape of your lives. Take care friends xx

In response to: Re: A long rave

Re: A long rave

Hi @eth,

Thinking of you while awake in the middle of the night. I recognise the deep breaths that come after intense times. As much as I love her, I had a similar feeling when Mum left after her last visit. Great to hear you are getting so much from the Unleashed Woman course. Miss you too, but totally understand real life priorities. Forum is a bonus to life matters, especially when what we are doing off the forum is inspiring and worthwhile.

Seeing my psychiatrist today and glad the appointment has arrived. I've been a bit all over the place in moods lately, and in capacity to get out of the flat and doing things or not. I find it hard to remember it all to tell you the truth. It's hard to stay on top of bipolar mood shifts. It's not as simple as manic or depressed as two distinct states of being. I should have been making notes, I suppose, but for a while now I've been having a more conversational relationship with my psychiatrist. Where once I found it useful to take in bullet-point lists to talk about, they seem to interrupt the flow now. We have been seeing each other for two years, once every four weeks.

Well, nothing much more to share just now. Enjoy the remainder of the course!

In response to: Re: A long rave

Re: A long rave

Hello @Mazarita still plugging away here. Getting through it thanks to hypomania onset, only today to go then the sessions stop being available on-line so I'm pushing myself this afternoon and evening. I am keeping charts for the psychiatrist and on a new med regime plus sleepers every night but still only getting 5 or less hrs sleep in every 24hrs. So I feel you about mood swings. Perhaps when I finish this course I'll settle down a bit. I hope so.

My new psychiatrist and psychologist as well as my GP are all really good and confirm that although hypomanic, I still have insight into what's happening - thank goodness. Really don't want another full mania or hospital. Working hard to modulate speech etc - the art of seeming!!!

Looking forward to more of a catch up soon. Take care and hugs 🙂

In response to: Re: A long rave

Re: A long rave

Hi @eth, great that you have something creative and fascinating to channel that hypomanic energy. I do know that feeling of needing to modulate speech too, so as not to run away with it completely. Many times I found it unstoppable in my younger years. Now I marvel at the patience of some people who used to listen to me back then.

It was a big day for me at the psychiatrist. He told me straight out he sees me as Bipolar 1. But relatively stable. I hadn't questioned him on the bipolar 1 or 2 distinction up until now, but my GP asked me about it last time I saw her, so I put it to him.

It's been a bit of a revelation to get that diagnosis clearly from him now, who has been seeing me regularly for two years, and who I respect and have good faith in. When I was first diagnosed with bipolar back in 2008, I only saw the psychiatrist once. He told me he thought it was 'major bipolar', but I basically didn't believe him and felt sure it had to be Bipolar 2. Also because I've never had a hospital admission. But I guess it's hard to gauge how far out things might be, when you have only ever known yourself to be this way, and don't have some other 'normal' in your experience to compare it with. So, I feel a bit shocked by this news today in some way. I've now realised that I may have been living with a degree of denial about my condition.

Meanwhile, my day has been dragging myself from bed early after spending too much time awake in the middle of the night. Zombie like for the early part of the day. Then showering, psychiatrist appointment, friend's place for late lunch and now home. The evening stretches dauntingly ahead, hour upon hour of probably computing mostly, in one form or another. Another Saturday night. Hoping for some good moments, for all of us.

In response to: Re: A long rave

Re: A long rave

Lots of love to you Mazy @Mazarita

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