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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@eth good to focus on one thing, hope all goes easier than anticipated.

@Appleblossom with the occasional/sporadic support workers, there was an early painful difficulty, others followed by intense 12 hours of more of social anxiety afterwards, replaying fragments of conversation and exchanges, worried about them. I decided I wanted to find easier chemistry with people I am seeing every week so more me than them.

The Four Seasons filling the house while your son does the dishes - marvellous!

Edit: going offline now. Love and well wishes to all.

In response to: A long rave

Re: A long rave

@Mazarita @eth Love to you both 💖

In response to: A long rave

Re: A long rave

So good to hear from you Mazy @Mazarita ,

I think of you often & it's good to know your out there doing things that you enjoy.
I hope C is feeling better & you've got your groove back 😉 I still admire your
ability to use public transport, not that there's any out here . . . Oh, by the way,
I'm not in that place you mentioned, it's like 10 hours away from me, I'm not that
far in & a little further up the country - but when I consider the vastness out here,
. . . your pretty darn close 🙂 I'm fully vaccinated now, the only reaction I got was
a few aches after the second jab. But maybe when they open up the borders, I
might try to make my way down to that areas local river, it looks like a nice spot.

Lots of love to you

In response to: Re: A long rave

Re: A long rave

Hi @eth @Appleblossom @Exoplanet @Zoe7 and all,

It's been two weeks since I last posted here at the forum, but feels like a month or more. I often marvel at this aspect of being on the forum - the way my sense of time here seems to be different than in the real world.

I am about day 13 into a bout of shingles. Anyone who knows about shingles will know about the awful nerve pain that goes with it. It's been a shocker of a time with that and still now, though less than at its worst. My biggest fear is the continuation of the nerve pain once rashes fully clear up. Apparently the nerve pain, the worst of it for me, can continue for months and months after the rashes are gone.

It's knocked me for six with the rhythm of ndis activities that I had built steadily over some months, up to five days a week with activities or appointments (3 of these being 5 hour sessions with support workers). But sleep has been so hard with the shingles pain that my clock is all out of whack again. This makes my carefully developed routine of weekly activities just not work.

I had a first support session yesterday for about 10 days (had to reduce it to 2 hours instead of 5 due to lack of sleep night before). All we did was go grocery shopping but I was totally wrecked, destabilised and distraught all evening, crying from pain and probably just trying too hard with support again too soon.

Bugger it all, I feel sh*t. I've only had 2 hours sleep overnight and sent a message to support worker for today to reduce our time from 5 hours to 2 hours. Already warned her I may end up cancelling altogether. Need to go back to bed. Sleep more important for healing than planned activities.

The bright light at the moment is my psychologist/hypnotherapist. Whatever sanity I have left in me from this shingles experience is significantly due to the regular hypnoses we have been doing since April. Yesterday I listened again to recordings of two of them. Almost always I am listening to at least one a day, ranging from 20 minutes to 50 minutes each.

But at the intensity of pain I've been in and the way it's been wearing down my resilience day after day, there is truly nothing like rstrong prescription pain relief. I would not be sitting here writing without having taking some in the middle of last night.

Hope you don't mind me tagging you into this account of my days right now. I do not know when I will be back to reply to any tags arising, but sending love and well wishes and hopes for good times.

In response to: Re: A long rave

Re: A long rave

Oh Mazy @Mazarita

Get well soon!

Lots of love to you

In response to: Re: A long rave

Re: A long rave

So sorry to hear what's going on for you @Mazarita Sending my warmest wishes and strong hope that you will recover fully before too long and not have the residual pain - it doesn't happen to everyone. I agree that sleep is the best medicine.

I think there's an antiviral shot you can get from the doctor - not sure if it's prophylactic or preventative but worth asking about.

Take good care my friend.

In response to: Re: A long rave

Re: A long rave

That is truly horrible for you @Mazarita and so debilitating Do not worry about being here or replies - you are number one right now so keep doing what you need to look after yourself and I hope this pain ends for you soon. Hugs and hugs sweet Maz

Hi also @Exoplanet and @eth Always lovely to see you both here

In response to: Re: A long rave

Re: A long rave

Oh No @Mazarita Sounds really horrid dose of shingles. Get your rest and listen to your body.

Lovely to get a tag and know you are still tuning in to forums from time to time.

Gentle Hugs

Good to see you all @Exoplanet @eth @Zoe7

I had a couple days off line.

Good to get a break.

Apple

In response to: Re: A long rave

Re: A long rave

It is good to have breaks @Appleblossom - so pleased you did and it helped. Hugs Hon

In response to: Re: A long rave

Re: A long rave

Just sending a cooee @Mazarita

Hope you are doing better from the shingles and your support workers are helping.

Hope you managed it all with your mother and getting through the christmas period which can be really trying.

Also cooee to @eth It was great to see you pop by briefly weeks ago.

Still fond of you both. Stay Safe and Keep Well

Apple

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