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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

I'm afraid I'm not aware of any threads that have been started as yet @eth. You're more than welcome to start a thread on it yourself to share your thoughts and insights on WRAPs though if you'd like. Let me know if you do and I can tag some others to join the discussion also 😊

In response to: Re: A long rave

Re: A long rave

@eth 🧡💜

In response to: Re: A long rave

Re: A long rave

@Mazarita 💚🧡

In response to: Re: A long rave

Re: A long rave

@outlander hi beautiful. Hope you get some restful times tonight.

In response to: Re: A long rave

Re: A long rave

Hi @eth, thinking of you and wondering how you are going, ndis matters and your activities.

Today was the second week of individualised yoga with my old support worker and friend, again my support worker with ndis. I am so looking forward to walking in nature with her again when we start our second support session, either this Thursday, or next week (scheduling issues).

With the yoga, we are going slowly and not that many exercises. But I have had a strong physical reaction afterwards both times. The first time I slept almost completely for two days. This evening, in the wake of today's session, I had an intense episode that lasted about half an hour, suddenly nauseous and very shaky like my legs could give out on me. Felt a bit like an anxiety attack as well.

C had to help me walk very slowly to the car and I also needed to cling to walls all the way. Started getting better after I'd been sitting in the car home, driving at night through the lovely edge of the hinterland between us and friend's place, and getting home.

I have mostly recovered from it over the rest of the night, not completely, sleep will probably help. Have been wearing a soft collar around my neck since I've been home and have taken a prn pain med. We will talk over an amended, even slower and gentler yoga approach when I see SW next.

Other than that I am loving spending time doing yoga with her. I've met her lovely partner and one of her children. In the back yard there is a semi-tame water dragon that her partner was giving grapes to. I also love their little dog, who last week was in the yoga room with us, just resting while we did the yoga, sweet nature.

Also had first of the two-weekly cleaning today. When I got home and saw what the cleaner had done, I was so happy. It felt like a weight blessedly lifted off me.

My chronic incapacities with domestic daily life embarrass and shame me. I have had trouble in share housing, and I've only lived alone for no more than two years that I can remember.

I love living in a clean home, lifts my spirits. Part of the freeing feeling is that I feel I am now able to contribute more domestically for C through ndis. He's happy as well. The cleaner did his bathroom, and it generally gives him relief from a bunch of jobs where he has for years picked up the slack for me, not always happily, understandably.

SW said that ndis is meant to support carers too. As you know, he has been my unofficial part-time carer for many years. Hoping to give him some of the transport allowance I think is coming as well.

I am happy with everything that's happening now with ndis. My motto is slow and steady wins the race.

I realise you may be on your writing retreat when I post this. If that's the case, hoping it's wonderful, and hope to catch up afterwards, whether in real time or by delayed posts, like this one.

Well wishes always, my friend.

Hi and fond greetings @Appleblossom @bipolarbunny @Exoplanet @Bunniekins @Adge @outlander @Zoe7 @Leggs @HenryX @Dimity @Shaz51 other friends and anyone reading.

In response to: Re: A long rave

Re: A long rave

@Mazarita Hi Mazzy that is one huge reaction to a session of yoga 😮 ! Two sleep for two days straight I havent done that for awhile. Happy to hear that things are going well for you re cleaner etc. Hoping that you have a super pea Tuesday my dear friend. Lots of love. peaxxx

In response to: Re: A long rave

Re: A long rave

Thanks, @Bunniekins. I think the reaction is related to my neck problems and fibromyalgia mainly, also more suddenly happening now in my life with ndis than I've been used to for past 15 months, so anxiety playing a part too, I think. We will smooth things out as we go along.

Hope your day is ace, my friend.

In response to: Re: A long rave

Re: A long rave

@Mazarita

Glad to hear you are mostly doing well with ndis.

The cleaning helped my mood a lot too, as I had sunk into only doing the basics. Having clean shower glass is kind of nice, instead of all the little spots! Now that they have come for a while the general level has slowly lifted so that I have changed to once per month. My son has moved in and there is a lot more activity in the house. When it was just me, once stuff was cleaned it stayed that way.

Your reaction to starting the yoga was similar to things I have gone through. It will be so good that you have someone who will help you listen to your bodily needs, and encourage in the gentlest way possible. You have substantial medical so go softly. I do know some find yoga too hard, but a lot can depend on the individual teacher, and it sounds as if you found a gem.

Eg today I did 2 exercises I had dropped from over a year ago. I was doing everything else. I was not even sure it triggered trauma at the time and gave myself a hard time for not doing it, but as everything else was pushing ahead and going well I let it be. Now I have the sense of trust with my physio, and she has earned it. I feel better all round with upper body and walking and cardio, I can finally attend to lower torso. Probably due to all sex trauma, I was not ready for it a year ago. I have also joined a lot of the dots in my trauma story over the last year, that I did not have clear in my mind back then.

It is great to be able to feel optimistic about future supports.

In response to: Re: A long rave

Re: A long rave

Also had first of the two-weekly cleaning today. When I got home and saw what the cleaner had done, I was so happy. It felt like a weight blessedly lifted off me.--- how lovely my @Mazarita

love you update my scotirish sister , take care , one step at a time too xxx

hello @Appleblossom , @Bunniekins , @outlander , @eth

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