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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hearing you about pissed-off-ness @Mazarita ! I've known for a long time that all types of ADs cause me mania - maybe there's been a bit of stimulation for you by them. at least you're getting some relief now. I've just come off a month on an anti-histamine (on top of all my other meds - 7 in total) where I had to work up to the highest dose and then wean off after a couple of weeks. And my sleep hasn't varied significantly on any dose of it. The next thing to try is one that feeds into the seratonin etc system - but can't start it just yet. I'm kind of over trying to find a solution, feel quite hopeless about it - resigned to it would be a healthier attitude. Pharmacy costs have been over $200 a month for quite a while. I'm feeling a bit like getting off all the supposedly sleep-inducing/enhancing quality ones but my pdoc wants me to stay on them and like a good girl I'll remain compliant, but it feels a bit like money in the toilet at times.

Rant over!!

In response to: Re: A long rave

Re: A long rave

@eth as with any meds I take for physical or mental health, there is always the 'what's worse: the medicine or the illness' questions. ADs for me are at least a little needed and I know it's possible I may need to raise them again. To be honest, I find they are mostly pain relievers for the huge emotional trouble I get into with depression without them. But the mood stabiliser I take now is possibly the same as yours, one that is known to have anti-depressant qualities in itself, as far as I know it's the only one like that. Not so good at managing the elevations though.

Anyway, at least I know now that the ADs cause deterioration in sleep patterns with me. I'll be able to tell my doctors that if they start giving me grief about it again! I have the same feeling about the weight side effects. We are told to lose constantly and yet I believe some of the meds make that virtually impossible. So we end up feeling bad about ourselves and not good enough, not behaving ourselves, lol. I am on a hair trigger for feeling not good enough, or like a naughty girl, so even more I'm going at myself in my own head about it once I get that vibe from 'authority' figures.

Pharmacy bills here are bad too, one of the few main things I spend my pension on. Overall though I am taking less meds than before.

Excited about your residency. You will do well, I know.

In response to: Re: A long rave

Re: A long rave

Thanks @Mazarita . The good thing about the residency is that you don't have to have a completed body of work or major work at the end of it. It's just a dedicated writing space in an amazing location on top of a beach headland. And a locker so we don't have to carry everything up and down the big hill every day we are there. I had anxiety about not being able to manage the hill for a couple of weeks there but the writers centre has now bought a golf buggy for the purpose.

I spent some time this morning making notes for a new piece in response to a quote I've chosen... "Our lives may be determined less by past events than the way we remember them" ...Catherine Ann Jones. For me it's evoking thoughts about the difference between my memories of psychosis/delusions/hallucinations I've experienced (which were real for me at the time) and what onlookers and those affected at the time tell me really happened. I was getting in deep and trying to work out how to turn my notes into a piece of creative writing that would reach an audience and then came up with a poem that only has 8 words! Will see what percolates through over today and tomorrow, but possible this is all I will get. My writing tends to come through me rather than out of me if that makes sense. I can't just sit down and say "I'm going to write something now". Anyway I have a writers group Wednesday evening for which this is the set task (write to a quote) and I'll read whatever I have by then to the group.

What's going on for you at the moment?

In response to: Re: A long rave

Re: A long rave

@eth great that there is no pressure to produce anything during the residency. I would find something like that doable, whereas a residency with pressure to produce work would not be viable in the interests of my health. Also, like you, I feel more like a medium for creative energy. I almost never plan things. When the creativity is active, I usually just create the conditions for doing something: an impulse to go there, sitting myself at my desktop computer and seeing what comes. Most times it has worked for me like that, others I just recognise I don't have the energy or whatever.

How beautiful to be going to spend time in that place, which I imagine will to nourishing of your whole being.

Me: I have just struggled massively with energy over the last year. No heart or will to engage here and other places not much either. Just in the past week I have been sitting here more at my desktop, which has been hardly used the past year. I am finding reward in having collected some of my poems, the ones I have written here spontaneously at the forum over some years, editing them, sometimes radically, and putting them on my blog. I know well the feeling of reducing a long poem to just a handful of words! It's funny. Perfectionism and also just the process of distilling things being part of my writing process.

In response to: Re: A long rave

Re: A long rave

@Mazarita I love and feel deep gratitude for the way we can just pick up where we left off (or somewhere different!) when we reconnect

In response to: Re: A long rave

Re: A long rave

Me too with the long lasting feeling of connection, @eth. I guess we have made deep impressions on each other over the years. For a long time we were writing at length to each other every day.

In response to: Re: A long rave

Re: A long rave

How did you go through and find the poems you've shared on the forums @Mazarita ? Or did you document them offline? Or have them filed on your computer elsewhere?

In response to: Re: A long rave

Re: A long rave

@eth I collected them over a number of days, could find no other way to do it other than to go through all 200+ pages of the thread. Scrolling quickly to find them, moving quickly from page to page, then copying them to a notepad document into a folder I've created on my desktop.

In response to: Re: A long rave

Re: A long rave

What patience that must have taken @Mazarita . Good on you for doing it tho'. I rarely put a piece I've written on the forums, haven't for ages, because if I do live readings, competitions or get published (big if there but it has happened a couple of times) I want my works not to identify me here. I know it's unlikely but there is a chance it could happen, particularly if anyone from my city is on the forums and I know there are some.

It's been great chatting in real time, albeit briefly.

I just accidentally deleted a long paragraph ... need some rest time offline before I start cooking for tonight. I'm at home til around 2.30 (1.30 your time) tomorrow afternoon and would love to chat some more if you feel like it. Do you want to make a time to find each other? Late morning would work well for me if it suited you. It's unlikely I'll get back here later tonight. I have the feeling you're still more of a night owl than I am these days so if that's not going to work it's ok.

In response to: Re: A long rave

Re: A long rave

@eth the tedium of the task with the poems put me off doing it for a long time though I had thought of it many times. Finally did it and it took much less time than I thought it would. Stopped as soon as I got sick of it and came back later when I had the impulse again.

Tomorrow is a big day so no go there until the evening. Still not in a place where I want to make online appointments. Trying to avoid spending all my days and nights on the computer as I did for so many years before this last one. Looks like I could be online on Wednesday during the day, more likely from about midday onwards, maybe a touch earlier.

Enjoy your quiet time before cooking. Until we meet next, hugs!

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