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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Appleblossom I have throroghly enjoyed our chats and communication over the last 4 years - you have given me a different perspective on some things and that is always a bonus. You may have been through the mill yourself but you always have such kind and wise words for others I am certainly grateful for that and also for knowing you

In response to: Re: A long rave

Re: A long rave

Hi @eth,

I am glad to hear you are spending more time with 'real' life pursuits, making the most of good times with confidence and outward strides, may they be good long times. Seems to me your own powerful efforts towards mental wellness give a great boost to future prospects, even with life's ups and downs.

I also get your intention to give yourself 'do nothing' and/or pottering time. I have read that 'nothing time' is a key part of creativity. I feel I have been experiencing a period of mostly nothing with film-making over the past year, dramatically reduced creative production, almost not there by comparison with how prolific I've been with it for years. I am such an obsessive communicator! Quietening that energy seems likely to be helpful in some way.

But just over the past few days I've been collecting some poems I've previously written for myself over some years, selecting and editing some I like. I have the idea of speaking them at a poetry night sometime, sharing them publicly. A focus on my writing is a fresh way to go for me now, and less demanding than making films when my health is down.

Good to hear your meds cocktail seems to be working. Sounds like the current mix is giving enough base support to allow the flourishing you are describing in various parts of your life. Really it's amazing how far you've come from up north, in personal journey as well as in road miles!

I get what you say about peripheral vision when driving. For sure anxiety could give rise to that. A panic attack I once had caused tunnel vision. I suppose when that happens pulling to the side of the road for a little bit could be helpful.

End of 2019 was the one and only big trip overseas since the 1990s. I couldn't have gone again since that 2019 trip because I've been too busy sleeping and recovering all the time since.

NDIS independent assessment sounds ominous to me. Makes me wonder again if I really want to get into another web of Centrelink-like government bureaucracy. One of the greatest releases of my life was when I was transferred from Newstart to the pension, after which the Clink started leaving me in peace for long periods of time. If I do end up in the NDIS scheme, it may be with skid marks on the ground from where circumstances have dragged me there! I am so touchy and flip-floppy about the whole subject these days, though I know there could be great benefits. I'm just scared about what it's going to cost me psychologically and emotionally, the usual balancing act of what's better or worse: the illness or the treatment. I wonder what happens if you don't want to be in NDIS anymore after they've given you a plan. Can you just quit, I wonder. What are recovery coaches?

I have had some good non-headache/non-nausea days since last time I wrote here. Makes things more possible, such as a get together with friends for lunch at a shopping centre and the walk we also did in the wetland on Monday. And like going to a distant retail shoe outlet to get my good friend some proper walking shoes, the first step in improving her mobility. While there, I bought a new pair of Skechers sandals, which help me with my walking issues. I love them!

Adding my voice to the chorus of 'no guilt' about you being at the forum or not, at our own pace and in the best wholistic interest of your life. I know what you mean by that feeling, though. I have had a fair number of pangs of that over the past couple of years mostly absent from the forum. The nature of virtual friendship is not always the same as in real life. I find that a bit confusing sometimes, though I know and have felt for a fact the profound influence on my life by friends I've met only on the net. A true blessing are these relationships we share.

Love to you,
Maz x

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita just dropping this here in case you're still around. Will now read back posts and check on a couple of other things in my inbox but will keep an eye out for if you respond xx

In response to: Re: A long rave

Re: A long rave

@Appleblossom sounds like life's been up and down lately for you. Did you mean that NDIS is re-assessing your eligibility or some other organisation? It's one of the things I've started to have anxiety about quite recently after reading it was possible in a release of reports by NDIS that Every Australian Counts has publicized on FB. I tell myself that me being anxious won't change whatever will come to pass, but that doesn't stop it. Also, through EAC or directly to NDIS we currently have the opportunity to have our say about proposed changes. I've done it through EAC as they will go public with people's responses (you can request to be anon.) and also take it to parliament. I think the closing date is Feb 23rd or thereabouts.

You've been a great friend and support and inspiration to me over the last few years too.

Take care, xx

In response to: Re: A long rave

Re: A long rave

Yes @eth NDIS is reassessing me. It would have added greatly to my recent anxiety, although I supplied the documents in time and was informed it should be sufficient. I am hoping they change my primary disability to my neck condition, but have no idea what will happen.

Some good news ...

Ash Barty defeats Garbine Muguruza to win Yarra Valley Classic ahead of Australian Open (sbs.com.au)

In response to: Re: A long rave

Re: A long rave

Hoping you get the result you want @Appleblossom

In response to: Re: A long rave

Re: A long rave

@eth @Mazarita @Appleblossom

In response to: Re: A long rave

Re: A long rave

Hi @Appleblossom

Your experience with new workers replacing old fairly rapidly is so similar to the organisation applying for NDIS on my behalf. They seem to have a revolving door, never a good sign in an organisation. I have had three support co-ordinators since the middle of last year, with three rounds each of long meetings at which I had to repeat the worst aspects of my illnesses over and over, possibly five or six of these depressing, exhausting office appointments.

Those meetings were the opposite of helpful to me and were pretty much exactly what I didn't want: being repeatedly called upon to revisit and officially testify to the darkest aspects of in my life, in order to qualify as sufficiently disabled to deserve support.

I also found out from my first support co-ordinator that she had 52 clients!!!! This made me suspect that the organisation was actually exploiting its young workers. Another reason to find some compassion for them, while recognising we are not getting the best care.

How awful for you, the scamming. One of my friends aged about 70 lost his whole superannuation of $330,000 on a telephone scam last year. Exhaustive attempts to recover it have led to the final conclusion that it is just gone. He and his wife are dealing with it amazingly well. It may be their spirituality helping with this. They are both followers of Prem Rawat. Good on that guru if he's helping my friends.

Five years ago, when you and I joined the forum at almost the same time, I do remember the heavier darknesses and disturbances you were carrying then. It was clear your life was bitterly hard. From the tone of your writing here as the years have gone by, things with you seem to have become less severe than they were then. I know your life is no bowl of roses now either but hopefully better. I was thinking again about @PeppiPatty just a couple of days ago. I wonder how life is for her these days.

Hi and well wishes to @Faith-and-Hope, @Shaz51, @Adge, @Zoe7, @outlander and all.

In response to: Re: A long rave

Re: A long rave

Morning @Mazarita @Appleblossom ..... 👋💕☕️

I often think of @PeppiPatty too ..... and @LJ .... 😳 ..... wasn't expecting the username to highlight ..... is this the LJ we know ?

In response to: Re: A long rave

Re: A long rave

11.30pm here. Hi for whenever you might see this to @outlander @Faith-and-Hope @Appleblossom @eth @Adge @Emelia8 @Zoe7 @Shaz51 @Maggie @Exoplanet @Bunniekins & all.

Here is a picture 'cos I've been writing a lot of words here lately...

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