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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Oh shame @Emelia8

Must have had an inkling, sending you love and light my friend 😘

In response to: A long rave

Re: A long rave

Sending some love and kind thoughts your way today @eth , and in fact ... every day. 💕

And to you too @Anastasia @Appleblossom @Bunniekins @Mazarita @Adge 😀

Emelia 🌸

In response to: Re: A long rave

Re: A long rave

Thank you dear @Emelia8

Hoping today is good to you x

In response to: Re: A long rave

Re: A long rave

Hi and good morning @Emelia8 @Anastasia @Appleblossom @Bunniekins @Teej @Faith-and-Hope thanks all for your kind wishes. Had a couple of days offline - don't even know what I've been doing most of the time. Did have psychologist appointment which was very validating on wednesday and did cook for the clan last night. Also joined in a zoom with the disability alliance that was fun, just music chosen by one of the members - we take it in turns on a thursday. And did another zoom last night to celebrate the 2nd birthday of a locally based poetry group - I was first up on the open mic readings and read a poem I've written this week. That was scary and good at the same time. So it sounds like I've been busy but that's only a few hours out of 2 days and nights. Very little motivation to do much and lots of hours watching telly.

@Teej No I don't have my own bathroom and as far as I know I have no NDIS funds for respite. Do you use NDIS funds for it? If so do you know what category it's in and what line item no. it is in the price guide? If I knew them I could ask my plan manager and coordinator of supports about it. It sounds like something I'd really like to do but not sure if it would even be possible due to covid restrictions (I'm in the Hunter region).

@Bunniekins As far as I know there are no problems in bro's marriage other than the usual negotiating between 2 independent people. They are both what I'd say is more emotionally intelligent and mature than I am (my psychologist says traumatic events like I've been through can stunt our emotional development) and they also do communication training at least a couple of times a year with the intentional community they are part of (the farm I visit sometimes). I do know they have lots of other pressures going on atm. Including the alcoholic brother of sil, who now lives in Perth, having been emergency hospitalized again because of his drinking - sil's mum lives in the 2nd house they own (next door) and it's a huge burden on her which they try to ease. Communicating with hospital etc. Also my bro is in a new fulltime job and still has 2 other part time jobs and is comited to supporting me here and our mum in Bris; sil works part time and is also a professional artist and spends as much time at her studio as she can. Plus maintenance and financing 2 properties in town. And I'm sure there's more that I don't hear the details of. Having said all that, it's still not fair the way my brother vents - psych says he is projecting onto me.

As much as I agree with a lot about the discussion of how a lot of men are not able to deal with strong feelings in a healthy way, I know my brother has done a lot of work on himself and communication skills and emotional management over the years. And I believe there are some good men out there who deal with things maturely and in a healthy way. I just don't seem to end up with men like that in my life. It's clear that there are some underlying programs in both myself and bro that stem from the way we were parented, the behavioural models we learned from as children and roles we fell into as a result.

Ok rant over. I'm rambling, but it's helpful to write about it here and I very much appreciate your listening eyes (as someone here once said).

Hi also to @Shaz51 @Maggie @CheerBear @Zoe7 @Angels333 thanks for the tags and @Mazarita @Adge @TAB @MDT @outlander @Bezak482 @Judi9877 @Exoplanet @Snowie @Sans911 @BlueBay @NatureLover @Blep @BPDSurvivor @Molliex @Owlunar just coz I want to say hi and haven't seen much of you lately (mostly coz I just haven't been here).

I hope to be around more over the weekend. I'll be home alone with the others up at the farm and look forward to the freedom I anticipate feeling. Heading out with a support worker for a couple of hours this afternoon, which I'm greatly looking forward to. Wasn't able to see either of them the last 10 days or so as both of them had to get tested - negative result for both thank goodness. But 1 of them still can't do in person support as her grandchildren who live with her all have colds again.

Hope today goes gently for you all and has some highlights in it. Stay safe and stay kind everyone. I care. xoxo

In response to: Re: A long rave

Re: A long rave

Extra s @Emelia8 and @Zoe7 as I know each of you are dealing with big feelings and difficulties atm. Sending you both lots of love xx

In response to: Re: A long rave

Re: A long rave

Sending hugs back @eth . I have been not coping well with things that have happened to me recently, so i have been laying low. I am glad to read you finally have a support person coming around. Wishing you a lovely day x

In response to: Re: A long rave

Re: A long rave

Onya @eth
Take care my friend

In response to: Re: A long rave

Re: A long rave

@eth 💜💜💜

In response to: Re: A long rave

Re: A long rave

Thanks @Molliex sending warm wishes your way too. Hang in there, or hang out here.

Thankyou too @Maggie and @MDT

I'm feeling paranoid tonight. My support worker said 'enjoy your weekend doing whatever the f... you want' as she was leaving today. We were in the driveway at the front of the house. Then bro and sil left for the farm a bit later without the usual goodbye. I'm very worried that one or both of them might have heard what the sw said. Even if they didn't, the way I'm feeling is showing me how close to blowing up things could be. I'm pretty f'd up right now.

In response to: Re: A long rave

Re: A long rave

@eth I’m sorry. Sending a big hug. 💜💜💜

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