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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

nice one re pub crawl @eth jk lol

@Shaz51 there are eligibility criteria on internet think, well saw stuff for DSP once, hopefully you get a good person if not go to centercare or ask people like mothers dr, they would know the drill Good Luck think pension is income based well it is, carers payment prob a lot easier to get as only couple hundred a week, but doesnt matter how much you earn..

In response to: A long rave

Re: A long rave

@eth Sorry about the support cancellations this week.

Out in the garden sounds lovely, specially with a bit of sun. I have just bought some plants for my garden, hoping to plant them over the weekend.

Nice to see you here when you can manage it, you sound busy ish mid week, which is good for you I think. Take care. 💜💜

In response to: A long rave

Re: A long rave

Hope you're having a nice day @eth xxoo

In response to: A long rave

Re: A long rave

ohhh my sister @eth , I think i will be applying for the carers allownace my friend

ho are you today xxxx

In response to: Re: A long rave

Re: A long rave

Hi @BlueBay @Maggie @TAB and @Shaz51

Shaz when I had carers allowance it was only $45 a fortnight. Very much hope it's gone up a lot since then. You really deserve the full pension in my opinion.

Turned into a pretty busy day today from about mid-day. An hour with my psychologist on facetime (I really like this one, usually feel good after I finish a session with her. Then an hour on a zoom meeting with the disability alliance talking about positive influences and turning a negative into a positive. Then an hour phone support from a support worker. All back to back. Really needed some down time after that.

Heading next door for shepherds pie soon cooked by my sil's mum. Hope to be back later to answer tags and join in the Friday Feast but will see how tired I am when I get back. Didn't get my coles order done but it will have to wait til tomorrow. Will aim to do it nice and early so I can get Sunday delivery.

Still very stirred up after a challenging phone call with an old friend last night. Which included her asking me to explain about bipolar and complex PTSD and then really invalidating me after I answered her. I am over being responsible for someone else's education about mental health. If they can't be bothered doing some reading about it I resent having to use more energy than I have to inform them. Especially when they can't listen reflectively or empathise, but judge and contradict my lived experience. So much I could say here. Not over it.

In response to: Re: A long rave

Re: A long rave

okay sorry its $65 a week plus income counts not assets, not what thought read couople years ago maybe they have clamped down on it @eth @Shaz51

yeah had similar tell me situations not necess mh but where asked to supply ammo against self in general then get everyhing said pulled apart

So now I realise being brief, directing them to look it up and re directing conv all legitimate

In response to: Re: A long rave

Re: A long rave

So sorry to hear all that @eth 😕

As for carers allowance .. Yes its gone up a lot since you were on it. I get it as carer for hubby, and its currently $131.90 per fortnight @Shaz51 . But you also qualify for a carer allowance bonus of $1200, which is paid in July annually.

Em 🌸

In response to: Re: A long rave

Re: A long rave

Hey @Emelia8 (love your new avatar!) and @TAB Thanks for getting it. Yes it really showed me that I need boundaries and even to protect myself if I am going to stay friends with this person. She is very depressed at the moment (in tears when I rang her after 4 text messages from her during eating dinner) and stuck in a living situation that's not working for her. So typical me went to the rescue. This was the first hour of our 2 hour conversation. Have made a time over the weekend to go through her public housing application forms with her (on the phone). Given that I did it myself so recently I feel I'll be helpful to her, but not if it's at the price of not being able to be my authentic self and feel safe with her. My psychologist said I should only be there for her for 50 min or less, not the 2 hours I said I'd give her. It was good to talk with the psychologist about it. I've also written a new poem since it happened. So stirred up. Time to word up!

In response to: Re: A long rave

Re: A long rave

sounds like shes fighting herself, I wouldnt take anything she said personally re her situation @eth yeah may have been unpleasant inconsiderate and hurtful but prob cmae from her own doubts/fears/expectation that you would just tell her stuff

Ha, I got letter from old uni re alumnus lol was comp for $100 voucher tell me about covid and spare time or somesuch so I twisted it with refs to living tough etc haha well didnt sound that bad in the end, and felt good was less than 200 wds guess

In response to: Re: A long rave

Re: A long rave

@eth That sounds challenging. It’s so hard trying to educate people about MH, often they think we are brain dead.

Go carefully. I know what it’s like running to the rescue, often though, I was left to drown. I hope your evening is restful, and shepherds pie tasty. Take care. 💙💙

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