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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Zoe7 @Former-Member @TAB I have to say it's really nice catching up with you all in real time.

Best wishes to you too @Mazarita think of you often xoxo

In response to: Re: A long rave

Re: A long rave

yes, it was @eth thanks

In response to: A long rave

Re: A long rave

Thanks @eth Kind thoughts to you too.

Still windy & raining a bit, throughout today.

There does not seem to be any storm damage, despite the banging noises (wind) last night.

So that's good.

My aviary birds seem fine & largely unphased, I just checked on them.

The birds inside didn't even know that it was windy & raining (outside) - they're just a bit chilly perhaps, because it's colder.

Today was my first work shift back at work.

They're only Re-running minimal client services (far fewer clients) - I have 2 work shifts this week.

They were disorganised (as usual).

Work did not bother to tell me that there were no other clients for the (supposed) Group Cooking Activity.

So then they said "Do an entire cooking activity all yourself" with my one client (in wheelchair).

He does not participate, prefers to grab & throw things - he is not suitable for a cooking activity (never has been).

So actually it was me cooking a meal for him (my client), cleaning everything up myself afterwards - work knew it would be that (I didn't).

So I'm tired - I want someone to Cook for me (instead).

Jelly Cat won't Do it, she just meowing at me to Get her more food....

Adge

In response to: A long rave

Re: A long rave

Been sitting in a very uncomfortable chair all day doing learning online @eth - not good for my back. I layed down a few times to have a break but it is quite painful tonight. I am holding off the meds until just before bed so I can get some relief and rest at the same time. Been watching The Secrets She Keeps - not my usual ABC or BBC but have really gotten into it.

In response to: Re: A long rave

Re: A long rave

@TABHope that bed is comfy.

@AdgeBloomin incompetent wk. Will you have more say as your shifts increase??

@Zoe7Hope your back settles.

@ethHousing security is a huge issue and worse as we age. It is just harder to move and set up connections. It sounds as if you are in a good location generally and maybe the process of getting independent and long term secure housing can slowly evolve without too much pressure from your brother. I am not sure how easy it is to get a place where you want. As long as he is not putting a time limit on it and you start the ball rolling ... we will be here for you and I am hoping a good option shows up.

Hugs

In response to: Re: A long rave

Re: A long rave

Hi @Adge sorry to hear your workplace is so disorganized. It sounds a lot like one of the big drop-in centres here. When I first got my NDIS I had my CoS and my SWs from there as well as going to some of their activities. A huge organisation. Not one of those functions worked out for me. It took a long time to find out that I could choose not to use them. I could tell a bunch of stories of incidents and problems I experienced because of feeling stuck with them, but you don't need to hear it from the participant's perspective probably. Suffice to say there were several times where I could see the worker was struggling to deal with events as much as I was.

Very good to hear your birds are ok after the wild weather you've had. What a shame that jelly cat can't cook for you. I buy ready meals that I can just heat for times when I'm not up to cooking. There's quite a lot of vego stuff available these days - I think you are vego?

Hope today is a better day for you.

In response to: Re: A long rave

Re: A long rave

Hi @Zoe7 I really hope your back let you get some good rest overnight. Have a peaceful day that goes according to plan xx

Hi @Appleblossom I am in a good area currently, but the only public housing in this area is high density to my knowledge. I am sure I would flounder in such a situation. When it comes to choosing where you want to be with public housing here, you can only choose the whole city, not suburbs you would prefer. And my psychologist was meant to do a letter stating the reasons I need a low density situation but she didn't do it and is now unavailable. Thanks anyway for your kind wishes, appreciated.

Hope today is one of the better ones for you.

In response to: Re: A long rave

Re: A long rave

Good morning @eth 👋💗😀

In response to: Re: A long rave

Re: A long rave

Hi @Maggie @CheerBear @Former-Member @Sans911 @Appleblossom @Zoe7 @Adge @MDT @Shaz51 @outlander @Mazarita @Faith-and-Hope @TAB @Bunniekins @frog @Teej and anyone else checking in here or following .... I have a lot of loose ends to pursue today - phone calls, paperwork for possible new psychologist (NDIS plan, plan manager details, background form ...), other names to check out, zoom with my coordinator of supports, need to contact my plan manager etc etc ... hoping it pans out well. I've been putting stuff off but now need to make some decisions and arrangements before I have my GP appointment on Tuesday. Need her to do a new team care plan, mental health care plan, referral to new psychologist (hence the need for a decision on who that will be), some prescriptions ... just hoping she can do it all from a telehealth call. Then once all that's in place I have to re-visit and make progress with my application for public housing - just the evidence required document is 18 pages long, then the application itself also a huge document. Feeling swamped but can't avoid it all any longer. Telling myself I work better under pressure, but really it's just a case of reaching the point where I have no choice but to do what I can, and try to prioritise jobs appropriately. Will try to treat today as if it was a work day and just put one foot in front of the other without getting too het up about it all. Yeah, sure .....

Take care all xoxo

In response to: Re: A long rave

Re: A long rave

one step at a time @eth , that is all we can do

walkimg with you today

crazy here too this week , not over yet

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