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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Thanks @Scarecrowe I hope so too. I'll have my long term support worker with me and hopefully she will join in the discussion.

Have a good day @TAB hope it's not as hot where you are as it has been.

In response to: Re: A long rave

Re: A long rave

Well hopefully today @eth you can relax a bit ready for a new week.

Morning to everyone here today. I am off to do a bit of gardening whilst the wind has settled down before it gets gusty again which it is forecast. Be back later.

Blessings to everyone on this Sunday............................

In response to: A long rave

Re: A long rave

Hi @eth and also @Scarecrowe @TAB @octavia

Sounds like a massive undertaking Eth, with all that screening and interviews etc. Agree with your brother about the applicant who didnt bother to phone back, but good that you will still do her the courtesy of speaking with her. I hope the rest of the interviews go really well and that you can find the perfect support worker. Perhaps the Tuesday meet and greet will prove to be just what you are looking for .. hope so.

Has your uncle been able to return to his home on the mid-north coast yet? I know some areas around where he lives still have road closures. I think I read he was spending some time with you last week, did that happen? Its a really nice spot where he lives. I live further North from there. The 3 main fires surrounding where we are, are currently downgraded to "advice" level. Milder conditions the past couple of days has eased things a lot. Water bombing still happening near here though, hitting some hotspots as needed. Smoke much reduced yesterday and today though, which is a big relief. It was so thick on Friday that it was like sucking treacle through your lungs with every breath. Not nice at all.

Okay must go. Nice catching up. I look forward to hearing more about your support worker issue, when you're ready to divulge.

Sherry 😊💕

In response to: A long rave

Re: A long rave

Good morning @eth and hope you make the right choices. Have a pleasant
Sunday. All good wishes. Bimby2.

In response to: Re: A long rave

Re: A long rave

Hey @Former-Member great to hear from you and really good to hear that things are improving where you are. Sounds like you are breathing easier in a couple of ways. Uncle decided to stay down south for an extra two weeks and I haven't heard from him since last weekend. He was saying 'if it goes it goes' about his place. I'm not sure if the fires flared up there again. But I do know they've been bad not too far from bro and sil's farm, around the nearby town. My driving instructor lives there and so last week's lesson was cancelled. Anticipating that might happen again this week, but have to be prepared to do it if it can go ahead.

More about the support worker situation - have one alternate Fridays that I have no rapport with and little trust - she often leaves me somewhere alone for 10 minutes at a time which is really challenging for me when out in public. Puts me on high alert. She doesn't talk to me about my goals either. And my 3 day a week support worker is the one urging me to add more people to my 'team' so someone new might get one of her shifts going forward. Plus there's a few things that are only on monthly that I want to do. Still undecided whether to add 2 new people or just one. The other support worker in my team already is expecting a baby and having a difficult pregnancy so rarely available at this stage. It seems complicated and feels that way too! I'm looking forward to when I am back in a routine with a team I trust and can depend on.

In response to: Re: A long rave

Re: A long rave

Hi and thanks @Bimby2 warm wishes from me too.

In response to: Re: A long rave

Re: A long rave

Hi @eth Good to hear you and i read your messages haven't had much of a chance to respond. I'm here but going off the computer for a while to go to the gym for excitement for the next hour. It sounds like you are well and making the steps positively with your work situation.

In response to: Re: A long rave

Re: A long rave

Enjoy the gym @Everan . I don't work, the job I've advertised is for personal support workers to help me get out into the community (both socially and essential appointments and errands) and work on improved health and wellbeing. I have NDIS for bipolar 1 and complex PTSD.

In response to: A long rave

Re: A long rave

@eth hey, have a good day. Take care.

In response to: Re: A long rave

Re: A long rave

Hey @eth enjoy your day. Best wishes for finding 2 new support workers x

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