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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

ah ha @Scarecrowe , trying hard to do nothing here

just been talking to Step S3 who has anxiety and depression and ADHD

talked for a hour with his dad mr shaz

In response to: A long rave

Re: A long rave

Hi @Shaz51 hope your do nothing day today is turning out to be just that. Hugs xx

@MDT I was planning to do not much, maybe some garden chores, but have just written a long email to the company who will do my MH specialised driver training about mis-communications and confusion over paperwork completed (problems at their end not mine). I can prove to them from previous emails that I have communicated my requirements clearly prior to their OT assessment, and also that I HAVE signed a service agreement with them a month ago. Thank goodness I've kept an email trail of all my communication with them. The upshot of what they are saying is I can only do automatic lessons. Ridiculous as I own a manual car, it's a good one, and I have no intention of trading it for an automatic. It's 7 years old with less than 30 000 km on the dial. Also ridiculous for them to think I'd spend nearly $8000 of my NDIS funds to end up not able to attain the goal that is the whole reason I have engaged them. I lay in bed trying to sleep some more this morning with all this stuff racketing around in my brain and kept telling myself leave it til tomorrow - but just now I got fired up about it again so I wrote and sent the email. cc'd my coordinator of supports too. I am sick and tired of people assuming I'm not intelligent or able to advocate for myself once they know I have MH issues. This mob actually wrote to my CoS and said to her that I was confused ..... I. am. not.. Made sure I was polite but also clear and assertive. Hope it comes across that way to them!

LOL Rant over!!!

Might get outside in a while and bash a broom and rake around for a bit and destroy some weeds!!

@Appleblossom @Former-Member @Bunniekins @CheerBear @Zoe7 @Queenie @saturnzoon @Alone hope your adventures getting and using NDIS funds are going more smoothly than mine. These days my problems aren't so much with the NDIS itself, but with inefficient and unreliable (to say the least) support organisations.

In response to: Re: A long rave

Re: A long rave

yeah I am trying not to be doing a whole lot here either @Shaz51

just finished my abs and dance cardio workout so bit stuffed now!!!!!!!! lol!!!!

trying to lose weight for my birthday next year.............we will see how it goes

wow they are a big three for one person to deal with.....that must be so hard for everyone involved!!!!!

In response to: Re: A long rave

Re: A long rave

@eth

Think it was going on in your head cause u needed to take action.

Good on you for writing the email

You dont sound confused to me at all!!

Im really glad u kept all those emails to prove the outcome u had requested. Itll get sorted cause theyll realise u have a manual car.

Youve done all u can for today tho.

Nows the waiting i think.

Glad i dont have to answer to many people anymore.

When i have loads of support people i just find it feels like ive got a bunch of people telling me what to do cause they assume im dumb

I really detest people assuming im dumb cause i cant control my emotional reactions.

Its depowering u. Anyway thats how it feels to me.

In response to: Re: A long rave

Re: A long rave

It sucks that you're having so much trouble @eth 😑😏 My NDIS journey is still a mess. I don't really talk about it here as I have very little good to say about it. Plan review in two weeks which I'm not at all hopeful about.

Hope you get it all sorted soon.

In response to: Re: A long rave

Re: A long rave

They do try to disempower you when they talk down to or about you @Former-Member but at this stage all it does is make me power up from the energy of getting cranky .. a healthy outcome of a bit of deserved anger. For many years I didn't feel anger at all and honestly I think it's just part of the whole range of feelings we are meant to have, as long as it serves a purpose and doesn't just create friction and conflict. It's a tricky one to balance with tho, partly why I like the written word - you have time to consider and re-word if needed before you hit send.

In response to: Re: A long rave

Re: A long rave

Best of luck and good management for your plan review @CheerBear Has it really been a year already? The main tip I have is to be really clear with your goals and try to align them to the funding categories from your first plan if possible (and of course add new goals if you have them). In my case they only put 2 of my goals into my 2nd plan and I missed a whole category of funds that I'd had in my 1st plan. Which affects how many psychology appointments I can have. But the rest of the 2nd plan is good and I didn't want to request a review as they review the whole thing, not just the bit you are chasing, and I didn't want to risk losing anything.

As if you didn't have enough on your plate already. More recent reports are good too, but they still need to focus on those 5 functional effect categories.

Take care and lots of love

In response to: Re: A long rave

Re: A long rave

@eth

Agree 100% with what u said.

Beaching again later on lol. Think im gtowing to like this lifestyle

In response to: Re: A long rave

Re: A long rave

Thanks @eth. Yes it will have been a bit less than a year by the time the review comes up. I put in a request for a review in Feb but the wait for it was longer than the time it took for the year to be up. So frustrating.

Thanks for tips. I think I have as much of my stuff covered as I can, everything else will be in their hands (which I don't trust at all). I won't be talking much/at all in the review and my support coordinator will do that for me.

It's just another thing I guess 😏

In response to: A long rave

Re: A long rave

Hiya @eth I hope your day is a peaceful one too
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