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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Morning everyone
thanks for the shoutout @eth (good luck and I hope things go better then expected) and @Angels333 (hope your days good, I totally get the stress of exams. I still remember the stress of my hsc only 4 years ago and some of the tafe exams too)

In response to: A long rave

Re: A long rave

Hi @eth Will be thinking of you. Hope it all goes ok for you. It really is unfair for her to cancel on you like that. Hope you are able to cope with the 2 men OK. I can understand the difficulty and stress from that.

In response to: A long rave

Re: A long rave

All the best for your test today @eth

In response to: Re: A long rave

Re: A long rave

Thanks a lot for your replies @Faith-and-Hope @outlander @cutiepiekitty @utopia @Angels333 @Zoe7 and anyone I've missed. I didn't see them as my appointment had already started. Luckily my bro was at home working today so before it started I told him (in tears) about what was happening. He helped me calm down and have a plan for if things went wrong. And thank goodness they didn't. The (male) OT did his assessment in my cabin for 2 hours and then we went out on the road with a (male) instructor. The OT came too and I was ok with him by then so felt a bit safer than if I'd had to go with the instructor alone. The assessment part done at home was much more specific to driving than I'd imagined, lots of testing of different vision and reflex functions and an on-line practice at identifying things on the road and knowledge of road rules plus a lot of history taken. As always, it was really confronting having detailed disclosure with someone new. He also took copies of reports from psychologist, GP team health plan, psychiatrist ... It would want to be thorough as they are charging like a wounded bull. Billing for 12 hrs, total nearly $3000, just for the OT assessment and reports. I'm sure it would cost a lot less if it wasn't billable thru' my NDIS funds. Pretty much rorting, but I had to have it done and there's no-one else doing it in this area. Then the on-road lessons will be $380 per hour. It's outrageous. There's no way I'd be able to do it without NDIS. I should have posted this on the 'anyone started with the NDIS?' thread - will just do a copy and paste coz I'm still pretty tired.

Thanks again for your support everyone.

In response to: Re: A long rave

Re: A long rave

Hi @eth @utopia @cutiepiekitty @outlander @Zoe7 @MDT @Adge @Bunniekins @Appleblossom @Maggie @Shaz51

I managed to get some tie dye done

It's a shame my problematic behaviors continued.

@eth how did the actual driving lesson go? Incredible about the exorbitant cost!

In response to: Re: A long rave

Re: A long rave

Yeah @eth how was the lesson?

In response to: Re: A long rave

Re: A long rave

Hey @Angels333
I'll have to wait til it uploads

In response to: A long rave

Re: A long rave

@eth

Hope u made it thru today without too much stress.

In response to: Re: A long rave

Re: A long rave

Hey @Former-Member @MDT @Angels333 have posted above about most of it. The actual on-road part was fairly ok. Just going around left and right in a small area of a quiet suburb. But it included roundabouts which stress me out and I handled them ok. A bit more traffic than I had wanted, but I managed without spinning out. A bit of fine tuning from the instructor. The trickiest moments were actually when the OT kept reminding the instructor that it was an assessment, not a lesson. At the end I told them they need to have a conference! (To get on the same page and not have that sort of thing happen when the client is at the wheel).

Thanks for asking.

In response to: Re: A long rave

Re: A long rave

@eth

Totally agree there!

I felt stressed reading they were both interfering.

Glad u spoke out.

Thats really stupid & tactless of them.

A clear plan with both on same page exactly for ur benefit firstly

Too many telling u what to do will raise ur stress level.

U made it thru tho which is great to hear.

Enjoy ur evening

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