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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

I am really trying to rest up as much as I can in these holidays @eth because it is going to be a lot tougher having the class for the term. It will mean a lot more work but they are a really lovely bunch of kids so that part I am looking forward to. I have already done some planning with getting assessent records ready for the class - and this week I will print out, read and make myself even more familiar with the special needs of some of the students (most I already know about but it will be good to have a much closer look at their learning plans and what I need to consider moving forward with the planning). Despite being really nervous about this term I am also looking forward to it - only time will tell how I go!

In response to: A long rave

Re: A long rave

Good old Tobes @Zoe7 🐶

Not much on my end. Dropped mum off at station and sister will be the same soon. Will have house to myself for a couple of hours. Will probably look what we need for food this week. Sister and me hate grocery shopping now so if possible we may get it delivered.

Other than that not much here.

Enjoy your day my cool cat compadre

In response to: Re: A long rave

Re: A long rave

You are such a dedicated teacher @Zoe7 you really impress me constantly.

Hi @MDT

Delayed reply as I was checking out and enquiring with a specialist driver training organisation that is owned by a psychologist and an occupational therapist. Really hoping there's some way my plan manager can find of getting it funded by NDIS (emailed her too), but also asking for a quote to do it out of my own pocket if necessary. It looks like $180 to $200 per hour - and who knows how many hours I'd need to do. More than I had anticipated, but still a real investment in my future if I can manage to do it. Will see what the outcome is. It would have to come out of my meagre savings (only a few thousand) which are really my emergency back-up. I'll never know if I don't do the research tho' so fingers crossed it turns out to be possible.

In response to: Re: A long rave

Re: A long rave

A couple of hours to yourself sounds great @MDT Just had a chat to my mum. She wants me to go to the Lionsvs Hawthorn game in Launceston in a couple of weeks. I have said no for now as it is the end of the first week back at school and I know I am going to be really tired and super busy. It is not likely to be a sold out game so I will be able to change my mind closer to that weekend if I am doing better than expected. I don't think that will be the case though and to be honest I would much rather watch it at home than travel the couple of hours to get there and the same back home.

In response to: Re: A long rave

Re: A long rave

Thanks @eth That is really lovely of you to say. I do love my job - just find it hard to get there most days. I am very much hoping that getting back into the classroom with just one class changes that a bit this term and that it helps me find that love of teaching a little more.

I am super impressed that you want to learn to drive. It sucks about the cost but very much hoping you can use some funding to enable you to do that. It sounds to me like just the sort of thing that the NDIS should fund to allow you to have more independence - go you

In response to: Re: A long rave

Re: A long rave

Thanks a lot @frog


@Zoe7 We asked for it at the review meeting and the NDIS planner said "if you had a physical disability I would approve it". My response was "so you can't see my disability or else you'd cover it" and my Coordinator of supports told her the name of the company, their specialised training, and even the NDIS price guide line item no. But it looks like it didn't get approved anyway - should know for sure tomorrow.

My psychiatrist and psychologist both said that what the planner said was out and out discrimination, but I am wary of doing a complaint or request for review of that decision, as it would mean they review my whole plan - unfair but that's the way the NDIS rolls.

In response to: Re: A long rave

Re: A long rave

That is discrimination @eth but I can also see why you don't necessarily want to challenge it - such a big decision to make in respect to what the consequences could be. Being on the receiving end of discrimination recently I fully understand the unfairness involved - especially when you see others being afforded the same or similar but you being silenced ...not something easy to live with in any regard.

In response to: Re: A long rave

Re: A long rave

What happened to you re recent discrimination @Zoe7 ? That's if you want to talk about it, fine if you don't?

In response to: Re: A long rave

Re: A long rave

Can't talk about it here @eth but let's say it has further added to my reluctance to connect or post anything and feel like I have a voice anywhere.

In response to: Re: A long rave

Re: A long rave

I'm always willing to listen and truly hear you @Zoe7 . I'm very sorry to hear you are feeling that way and had that experience. I need to get off here for a while - I find it easy to spend 3-4 hours here most days, and that adds up to a bit too much in the balance of my life. But I'll always respond if you tag me when I do see it. Lots of love xx

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