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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

hello @eth
that is alot of things to be having to do and manage.

If you think this is the start of hypomania, would you be able to speak to your gp about preventative measures like increasing medications- i dont experience hypomania so im not to sure what sorts of things help or how to prevent it im afraid

do you mind me asking what 'bridge' is? i havent heard of it before. is it something you could practice on your own or get a mentor for maybe even once a week or something to keep the skills up?

Id imagine any reviews to do with NDIS would be pretty nerve wracking, is there anything thats particular concerning you?

In response to: A long rave

Re: A long rave

sending you hugs @eth , I am falling asleep in bed with laptop

In response to: Re: A long rave

Re: A long rave

@CheerBear nothing on telly that I'm into tonight. Might watch something on iview soon.

Thanks @outlander You ask good questions. Bridge is a very complex card game. Best if you google it for more detail. Lets just say it's like learning a new language (the bidding), doing maths formulae, and counting cards all at the same time. And an added challenge for me while all that is happening is just learning how to have this kind of social connection after many years of isolation. It's such a juggle working out what to say about myself re MH disclosure, even for things as simple as explaining why I can't use public transport to get there. I will probably find a way of practising online while she's away. And there's one other lady who practices with us occasionally who I might be able to get together with - but she's already shown she just doesn't understand the pt thing and I feel a lot of stigma pressure trying to work out how to present myself.

Can't get into my gp for another 2 weeks and same goes for my psychiatrist. If I do escalate I will contact both and try to get squeezed in for a script review asap. Will be closely monitoring myself the next few days. I still keep charts every day so should be able to readily see if this mood trend continues.

With the NDIS review I have many concerns, lots and lots of what ifs. I guess overriding them all is the question of whether I'll get the things I'm asking for (all reasonable and necessary in my opinion and supported by my coordinator of supports and sil) or whether my funds will be cut because they haven't been used efficiently this last year, mostly because of factors out of my control.

Thanks for listening.

In response to: Re: A long rave

Re: A long rave

wow that sounds like a really complex game @eth sounds abit to difficult for me to do! not sure ive got the brains for that.
i understand the social aspects too, trying to work out how to communicate esp with mental health can be quite difficult and abit of a balancing act too.
perhaps online is better to try and practice rather then feelingt he added pressures with the other lady..

Keeping track of how your feeling on your chart sounds like a good idea, as your gp and psychiatrist are aware your mental state- past and present im sure theyll be ok with squeezing you in somewhere if your finding yourself getting into strife.

NDIS seems like a really challanging thing to navigate. i dont go through NDIS but ive read your journey and others enough to know that is really stressful and a long process as well. My fingers are crossed that youll get what your asking for esp since you have the support and what yor asking is reasonable.

In response to: Re: A long rave

Re: A long rave

Hi All, I'm having a bad day today 😞

In response to: Re: A long rave

Re: A long rave

Thanks @outlander I need to say goodnight and get offline. I've been on the computer for many hours today and it might be that the 'blue screen' thing is also stimulating me. Need to find a way to wind down a bit - might try to do some colouring. The secret of managing hypomania (for me) is to keep busy in quiet ways.

Hope you have a better sleep than usual - me too. Nite nite xx

In response to: Re: A long rave

Re: A long rave

thats ok @eth i hope you find your quiet time beneficial and that your able to get some sleep
❤❤

In response to: A long rave

Re: A long rave

@eth Hi and good morning eth sorry I missed you last night. I was just so tired I had to go to bed. Sounds like you have alot on. Personally I think you are brilliant I couldn't cope with bridge (mind you I never had a bridge partner to practice with I think that would have made a huge difference). You are one smart cookie with your bridge and your writing :). I hope you never see boofhead again why sil doesn't send him packing is beyond me but people think with their hearts not their heads at times like these and get disappointed over and over again when the individual continually lets them down. I hope are not getting the beginning of hypomania it is hard when there are so many things happening around you particularly your ndis renewal. Will have my fingers and toes crossed but I know in my heart it will all go well for you because you are so informed and on the ball with it all. I hope today is calm and 'pea'ceful for you hopefully we will talk later. Lots of love greenpeaxxx

In response to: Re: A long rave

Re: A long rave

Hi and good morning to @Mazarita @outlander @eth @Angels333 @Shaz51 @CheerBear @Appleblossom @Sophia1 @Adge @Alacarte @BryanaCamp @Meowmy and all I have missed and all who pass wishing everyone a happy Friday :D. Ugh I have to get my hand tremor under control otherwise my pdoc wants to send me to a neurologist just to make sure it is nothing else other than medications which are causing it. I don't need this kind of stress. I just want to hide from it . When I feel this way I turn up my music really loud and go for a long walk 🙂 so that is what I have planned for today plus have son2 at home so it means going to the bakery and also a visit to the gp. I hope everybodys' day is caring and full of 'pea'ce lots of love greenpeaxxxx

In response to: Re: A long rave

Re: A long rave

@Angels333 hope you are feeling a bit better todayxxxx

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