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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: Re:@ A long rave

Good morning @Bunniekins @Adge @eth Sending you all some happy thoughts and good vibes for today.

In response to: Re: Re:@ A long rave

Re: Re:@ A long rave

Morning all!

@Bunniekins sending you strength and clarity for your meeting today.

@Adge I hope the wound nurse and Dr are helpful today and that they have some solutions for your symptoms.

Hi @Zoe7 @CheerBear @Exoplanet @Shaz51 @Appleblossom

Hope today goes well for all.

In response to: Re: Re:@ A long rave

Re: Re:@ A long rave

@Adge

I hope your trip to wound nurse goes reasonably today. It is not good you are isolated and not able to get support at home.

But hugz and waves

@Bunniekins Congrats on getting NDIS plan. There has been a lot of anxiety getting transitions to ndis organised.

@eth It is lovely to hear about your farm lifestyle. It is so different from mine and I would no longer be able to participate, but it helps me feel grounded. The zoo yesterday was quiet.

Take Care All

In response to: Re: Re:@ A long rave

hRe: Re:@ A long rave

Thanks @Bunniekins @eth @Appleblossom

I got rid of my wound pump (early), I don't have to drag it around with me anymore.

I'm still wearing this clunky waistband, that feels like a straightjacket.

I forgot to ask how long I should continue to wear it for.

I will have a home care nurse come once, this Friday - to change the dressing.

They organised that this morning.

I may be able to have the staples taken out by the end of the week, or early next week.

Several people in my area seem to think that my recovering from surgery is some sort of holiday (they said).

I wonder if they would enjoy having a holiday in hospital, & recovering after...

Adge

In response to: hRe: Re:@ A long rave

Re: hRe: Re:@ A long rave

@Adge I am so glad that you got that wretched pump off today (that was worrying the pea). I know the band is distressing you but you are nearly to the end of this ordeal and you have done so well just hang in there:). Super happy the home care nurse is coming on Friday for you and as for stupid people make idiotic remarks try to ignore them ... honestly people just don't get it sometimes.xxxx

In response to: Re: hRe: Re:@ A long rave

Re: A long rave

Great news about the pump @Adge and the NDIS @Bunniekins

In response to: Re: A long rave

Re: A long rave

@Zoe7 Thanks Zoe7 🙂 xxx

In response to: Re: hRe: Re:@ A long rave

Re: hRe: Re:@ A long rave

Thanks @Bunniekins & @Zoe7

Yes stupid people do seem to make a lot of insensitive remarks around me.

When my neighbour banged loudly on my door, the day I got home from hospital - she ignored my "I'm just out of hospital", & "I'm carrying this wound pump".

She had not even noticed that I was away (in hospital) - she wanted to complain about the leaves on the front footpath. There was no "Welcome back home".

My psych called these people Bogans, that's a term that I had not heard in decades.

Then there were several people who texted me to say that they knew someone who did get a care package, when coming out of hospital - seemingly to make me feel worse, for not having got any care package. They knew I didn't get one.

Yes I shall try to ignore them.

Congratulations on your son's new NDIS plan @Bunniekins I'm not a fan of NDIS, I've seen massive cost-cutting as a direct result of it. I'm very glad that you got a better plan (or deal).

Adge

In response to: Re: hRe: Re:@ A long rave

Re: A long rave

I know you have a friendly relationship with your neighbour but it is not nice that she did not know you had just come out of hospital. Some people get caught up in their own lives and have no compassion for others @Adge

In response to: Re: A long rave

Re: A long rave

Sorry I didn't explain myself well enough @Zoe7

It was the side neighbour who was rude & demanding - the back neighbour I'm friendly with.

I've promised my back neighbour fish & chips, for looking in on my birds & cat whilst I was in hospital.

Adge

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