FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Our stories

A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

18,131 - 18,140 of 27,230

In response to: A long rave

Re: Re:@ A long rave

@Bunniekins the farm was beautiful. The valley was in all its glory - many shades of green with pockets of mist rising in between periods of rain. Quite heavy at times, but I now have the use of a little caravan so it wasn't a problem as it would have been in my tent. It was a working bee. Saturday I moved 1/2 a ton of firewood by myself and Sunday I helped my brother insulate and build a wall in the mezzanine area of the big shed. So lots of walks up and down the hill to and from the caravan, plus lots of trips up and down the stairs whilst doing the wall. Felt pretty exhausted when we came back to town but slept from very early sun night and woke up early to do bridge revision before the lesson yesterday morning. Then yest afternoon had a meeting with one of my sw's managers and my coordinator of supports to do a new service agreement so the organisation can get more funds from my NDIS plan. It felt good to give high praise about my sw from that org.

Then cooked for 4 last night. So quite a busy day for me. It's really nice to be having a quiet morning. Have to go soon to walk up to the GP appointment with my sw. Might catch you later this afternoon perhaps. Have a good one. Hope the storm is just cleansing and doesn't do any damage.

In response to: Re: Re:@ A long rave

Re: Re:@ A long rave

@eth Your farm sounds so wonderful. Heaven on earth :). I have some news my NDIS package has been approved :). Now all I have to do is make sure the money allocated covers everything that I have asked for before I sign the documentation. I am a very happy pea 🙂

In response to: Re: Re:@ A long rave

Re: Re:@ A long rave

That's fabulous news about your NDIS being approved @Bunniekins I'm happy for you. I was never given a chance to sign any approval of mine, must be a new thing. Will you self-manage, get a plan manager or be agency (NDIA) managed? That makes a big difference to who you can hire for supports.

Time to celebrate methinks xx

In response to: Re: Re:@ A long rave

Re: Re:@ A long rave

That was quite haunting @eth

In response to: Re: Re:@ A long rave

Re: Re:@ A long rave

@eth Thanks eth I will hopefully get the same plan manager who has son2 under her wing. I couldn't cope with doing it by myself and I am very happy with the way she has been working with us for our son2. Have an appointment with NDIS tomorrow re son2 to renew his plan. Wish us luck as he was dreadfully underfunded last time. We actually ran out of money!!!

In response to: Re: Re:@ A long rave

Re: Re:@ A long rave

@Adge Hi Adge you have a big day tomorrow too with the Wound nurse. I hope that all goes well for you 🙂

In response to: Re: Re:@ A long rave

Re: Re:@ A long rave

Thank you @Bunniekins It's a 40Km round trip, a bit too far.

Especially as I'm only supposed to be starting to drive again, just now.

She may see if there is any infection, that is causing the severe pain (that I had yesterday).

It was something to do with the wound pump, that was causing the pain.

In any case, I may have to go to see a Dr after that.

Adge

In response to: Re: Re:@ A long rave

Re: Re:@ A long rave

I'm a grumpy Finch this afternoon @Bunniekins

I'm managing okay - but got no support package (at all) from the hospital.

The hospital Social Worker said that due to Budget Cuts & Stricter eligibility Criteria - no support package or carer was available for me.

Are you a happy pea?

Adge

In response to: Re: Re:@ A long rave

Re: Re:@ A long rave

@Adge Hi Adge I am about to try and get some more sleep but wanted to post you first. I think it is terrible that you have no support from the hospital .... particularly as you are having problems. It does sound like you will have to visit the doctor again ... but just wait and see what the Wound Nurse says. I am just sorry that you are in pain :(. I am not a happy pea because you who I consider a friend is in pain.

18,131 - 18,140 of 27,230