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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Good morning CB - as always lovely to 'see' you to brighten up my day a little. Getting things done by degrees here this morning. Going to watch a couple of things I recorded and have an early lunch - was up super early so it feels like lunchtime already lol

I hear you about the sw - hopefully you get on well and they are a good fit for you. It is not easy meeting new people for the first time and having that amount of time to spend together would make it super hard if you don't get along. Fingers and toes crossed for you that it is a good fit @CheerBear

In response to: Re: A long rave

Re: A long rave

Hey again @CheerBear I always have my CoS introduce me to sw's before the day I first have to go out with them. It's essential for me re anxiety about being out with someone new, but it also gives me a chance to see if it seems like a good fit. You never really know for sure but it does help.

All these haircuts LOL @Adge @Zoe7 @CheerBear I'm growing mine long again and only get it cut once most years, occasionally 2 if I'm sprucing up for a special event. I want to be an old lady with long hair! I just love that look. At 55 now, this might be the last time I grow it long, I'll never get it shortened again if possible. And most of my grey hair is growing in a streak around my right hand side part. Works for me! Still mostly dark brown. This is the first time I've had long hair that's never been coloured and it's much healthier. Blah blah!!

In response to: Re: A long rave

Re: A long rave

Lol @Zoe7. It often feels like lunchtime just after breakfast time for me with the time I wake up 😉😖 It's a glorious weather day here and I'm thinking it may be where you are too.

Thanks for your understanding also. I'm being maybe too negative Nancy thinking about the support worker which I know isn't helpful. My experience with this whole process so far has given me little reason to trust or have hope it will go well I guess. Adding to that is that I know the level of qualification and experience they have under that title (which psych and the support coordinator have both said it may mean it won't be hugely helpful) and I'm feeling like there's a pretty good chance we might struggle. I can bite my tongue for a few hours if I have to (hopefully lol) 😉 and cross fingers it magically works out 🤞

@eth that's a great idea to have your CoS with you when you meet a new worker. Your hair sounds awesome in a completely opposite way to mine. Mine does better the unhealthier it is 😆 It doesn't like being soft and clean, goes better when it is bleached and then bleached some more (though it tends to snap lol) and appreciates being heated up with all the things that destroy hair 😝

In response to: Re: A long rave

Re: A long rave

My hair is very long too @eth but needs a cut - not much but enough to make it more manageable. It grows pretty quickly though. I wouldn't recognise my own hair if it was it's natural colour lol - been the colour I have now for some time and I like it like it is

Been getting more done this morning than I thought I would so that is good - planning on mowing the backyard this afternoon but that may not get done - see how I feel in a couple of hours. It will depend how hot it is outside too - can't do it in the middle of the day as the UV is too high for my skin and I burn and itche very quickly on the meds I am on. It is frustrating but I will wait until later this afternoon and see how I feeling energy wise then.

In response to: Re: A long rave

Re: A long rave

It is quite natral to have those feelings when meeting new people @CheerBear Sometimes our negative thinking is a protection mechansim but I am hoping very much for you that it all works out. You have certainly had the run around with all this so it is good that things are moving ahead in that regard for you. I will be very interested to see how the meeting goes - and who knows this person could be awesome and you may get a lot out of the time with them.

It is a lovely day here too. Cat is happily sitting in the garden in the sun - Toby is of course next to me but has ventured outside a couple of times when I have been cleaning up in the kitchen - he is such a little shadow my little buddy

In response to: Re: A long rave

Re: A long rave

Yay we're all here at the same time @Zoe7 @CheerBear I coloured my hair a lot over the years - fire truck red a few times, purple most often, and at one stage I had a full rainbow for a performance poetry event. Had to have a debate with the hairdresser to get that one done - they really didn't want to do yellow or green - not so uncommon these days.

@CheerBear I'm sure you could request an intro from your CoS if you wanted to. It is the only way for me. I think part of the anxiety is a) knowing they are likely a peer worker and not qualified by education to work with MH speciality and b) not knowing what or how much to disclose to them about your life and history. The latter does get easier as you build trust with them over time. I've been quite specific about only having women and prefering them to be mature. On hireup I mostly get responses from babies who are students, often in physiotherapy. Not at all suitable for me. You have the right to assert for what you want - as they say "Choice and Control".

In response to: Re: A long rave

Re: A long rave

Hello Long Ravers

@Mazarita @Zoe7 @eth @CheerBear @eth @Adge

Its funny thinking of all your hair styles.

I greyed quite early in my 40s, battled with colouring it for a while. Went a la natural for about 8 years and am back to mildly sprucing up the colour as I have regular concerts. Found those touch sprays so I dont need to colour often. Mostly I just cut it myself. Its thick and curly and can hide little mistakes. Been about 8 years since I went to a salon.

Son is poking around in the kitchen.

I do love him.

Sigh.

See you round.

Off to choir.

In response to: Re: A long rave

Re: A long rave

Nawww to cat and Toby @Zoe7. I looked down as I read your message while I was doing the dishes to see my little Rocket sitting at my feet 😊❤ She slept under my blankets for the first time last night and it was lovely! Great you have a lovely weather day too 🙂

@eth I'm having problems with my support coordinator also. I struggle to get hold of them and hear words but see no action when I do. I called an advocacy organisation last week and we played phone tag for a little while. I'll keep going if I need. My plan review is primarily about asking for support through people with higher qualifications. "You're going to eat them" was exactly what my psych said in reference to this kind of support. Maybe not the best reflection of me but I think it is also a reflection of me having way too many not-so-good experiences over lots of years.

I can see you with fire engine red hair 🙂 Neon pink and purple (sometimes at the same time) have been my go-to for a while. No colour at the moment as I have an interview soon and might be best to go with a toned down me for that I think 🙂

Better head out and do some things for a while. So good to catch you both (all) in real time ❤

In response to: Re: A long rave

Re: A long rave

@CheerBear @Appleblossom You have probably both gone by now - I was busy having my early lunch - now I have to clean up after myself again - doh!

I hope you enjoy choir Apple - it is such a wonderful release for you and it always makes me feel happy for you when I hear you are off to sing again

CB I can imagine little Rocket sitting at your feet - we are so lucky to have our fur babies - they do give us so much joy and manu smile. I love that she slept under the blankets for the first time last night too - that is a special moment and definitely showing she is very relaxed with you. My little girl comes in some mornings to wake me up - she is pretty loud when she starts talking to me and then Toby usually follows her by jumping along the side of the bed adding his voice too lol

@eth I find it very interesting all the different hairstyles and colours we all have had here - I have a new image of you now though with your rainbow hair - that would have been quite something Hon I have never been that adveturous - a bit more traditional in colour but did have my hair in braids for many years - it takes time to do but is so much easier to manage than the curls. I have though a lot about doing it again but really haven't had the energy. I might think about it over Easter when I have a little more time though.

In response to: Re: A long rave

Re: A long rave

Please Help yourself

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