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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hello Mazy @Mazarita,

Enjoy your support workers visit today 🙂

I'm glad my tantrum gave you a giggle, . . . something good came of it 🙂 My Internet connection is vitally important to me, it's my link with reality. Now that I've found this forum and friends like you, it seems even more so.

I think your right, I have to stop seeing a little girl throwing a tantrum, it's me, a fully grown adult! And I have to say Thank-you, because I don't think you know how good it feels to know there's another Adult out there that admits they throw tantrums!

Though I feel for you, the confusion of losing yourself, losing your ability of controlling your emotions. It is tormenting and it is terrifying, not knowing when it's going to happen. Of all the words I would describe it most as humiliating.

Have they got through to China yet? 😄 Your experience with NBN has put me off getting it if it ever gets out here (but I don't really believe it's ever going to 😉 ) Though I would still get Internet over the phone line, if that ever gets out here. I had a phone line put in, way back when, just for the Internet - I should have looked into that a bit further, because the only phone line Internet here is dial-up . . . and boy is that slow! So I had the line disconnected (it was a couple of grand, due to the trench line they had to dig and some problem getting in under the road!) I don't make phone calls, it's one of my things, I don't know why. But I found myself paying $30 or $40 a month for a line I never used! But it's there if the internet ever gets to it 😄

I like your psychiatrists view on the journey of life ,there is no one destination, if I was to pick one it would be death - so life I believe is all about living, as you say, the best you can. It's about reacting to experiences, and every one of those is different for every person.

Thank you for your admiration, I must confess I get a real kick out of it - and want you to know I feel the same for you

In response to: A long rave

Re: A long rave

Me too, me too ..... I throw tantrums ..... they are rare, but they are spectacular ..... ❣️

In response to: Re: A long rave

Re: A long rave

Thank you @Faith-and-Hope So, I guess that means I'm just Human after all 🙂

I hope your day is being kind and gentle to you XxX

In response to: A long rave

Re: A long rave

😊 So far, so good .....

@Former-Member

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita @Faith-and-Hope just letting you know I can finally log on to the forums on my laptop so I can chat whenever I want to in my own place at last. Have been following this thread @Mazarita and am hoping things settle down for you soon. Looking forward to more chats.

In response to: Re: A long rave

Re: A long rave

Hi @eth, great that you can be around now whenever you want.

Things are still a bit topsy turvy but okay for now, not high stress stuff just at the moment. There are good things happening too. This includes starting on the application process for the NDIS today with my Phams support. She made it seem a lot less scary. I also told her straight out that if the process gets too stressful I may not continue with it. I was thinking of tagging you in this thread about the NDIS in case you haven't seen it and are interested. Where are you at with it all at the moment?

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita excellent to hear from you! It's so much easier to type on this laptop than it was on the ipad I was borrowing. Hopefully we can have some good raves now 🙂 Good Luck with your NDIS application. I have just started with a PHaMs worker too, at last. Thanks for the tag. I'll answer your question about my process with NDIS shortly but will post this first coz my answer probably won't be short and I don't want to miss you. Will also have a look at the thread you linked me to.

In response to: Re: A long rave

Re: A long rave

Cool! 🙂 Length alert on the thread I linked you to!

In response to: Re: A long rave

Re: A long rave

Hey @Mazarita was just checking on the NDIS thread I started what I had said most recently about my NDIS journey. So ... last week I had a 3 hour session with a mental health occupational therapist (yes, they exist!) and she was extremely thorough and said there are several things she will say in her report that I should be eligible for under the NDIS. But the shocker is the price to have this done. Luckily my sister-in-law has contact with Carers NSW and they funded it. I am also waiting on a report from my new psychologist which will stress that even though her therapy may help improve my cPTSD , the bipolar IS permanent and the best to hope for is learning to manage it better e.g. avoidance of triggers (like the extreme stress the NDIS process can cause). I suggest you ask your PHaMs person to try to find out about the OT availability and funding options for you, but if your initial application is worded right for NDIS (they have their own language!) you might not need it. As I said in that other NDIS thread (Anyone started with the NDIS) - get as much documentation as possible to put with your application and make sure it stresses the permanence of your condition. Could say a lot more here!

In response to: Re: A long rave

Re: A long rave

PS I've forgotten how to link threads!

To sum up - I did the initial access request, was asked for supporting evidence, sent 18 pages of reports with their form, was denied access and am soon to seek an internal review of their decision, with even more evidence. Part of the problem with my application and supporting evidence was that I was seeing all new people - Dr, psychologist and psychiatrist and my older reports were not geared to NDIS, just to introduce me to new people when I moved interstate. Plus NDIS took two sentences out of all that evidence to mean I was getting better and didn't have a permanent psychosocial disability. I'm using their terms in this answer - hope it's making sense. Feel free to ask me any questions you have, but I would also recommend reading the links referred to in the Q&A thread. I know it's really overwhelming how much there is to get your head around, but I do think it's worth persevering. That said, if I was still alone in Darwin I probably would have given up by now. I really hope your PHaMs person is a great help to you. And I want to encourage you as much as possible even though it's not proven easy for me so far.

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