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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

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In response to: A long rave

Re: A long rave

evening everyone @CheerBear @Sophia1 @PeppiPatty @Mazarita @eth @Bunniekins @Shaz51 @Exoplanet and everyone


@soul i just found the notification about studies, hope its ok to write over here instead? Im currently studying medical terminology and then hopefully will go onto human anatomy and physiology after that

In response to: Re: A long rave

Re: A long rave

@outlander Hi outlander I am about to head off to bed so have a good night 🙂 xx

In response to: Re: A long rave

Re: A long rave

goodnight @Bunniekins sleep well xo

In response to: Re: A long rave

Re: A long rave

hi @PeppiPatty
its been a while since ive spoken with you
how are you going?

In response to: Re: A long rave

Re: A long rave

Good (early) morning everyone

I'm having trouble sleeping so I thought I'd come by and see if anyone was around. Hoping for you that you're all sleeping though.

In response to: Re: A long rave

Re: A long rave

Good morning, @CheerBear. I'm guessing your day might already be in a more active, off-the-forum phase by this time. I read your post in the 'worry room' and my heart goes out to you. Truckloads of hugs to you at this time of high stress, and distress along with it.

Would it be possible for you to talk to any of your friends/family about how hard you are struggling right now? Are there any pockets of quiet time when someone might be able to listen to you, so that there is even one person in your real life who knows that things have become this tough for you?

Alternatively (or in addition), do you have appointments with any of your mental health support people coming up soon? If not, could time be found to make an earlier appointment? It really seems like you might benefit from some real life support to help you feel less alone and overwhelmed.

I am someone who reacts pretty extremely to even small external stressors, so I'm in awe of what you are dealing with, while staying sane enough to at least get some of your feelings out here on the page. At the very least, I hope that writing about these things might be helpful to you.

Finally, and despite showing some cracks at present, I admire your incredible strength and resilience, with all the ups and downs and seemingly impossibles.

Loads of love to you, Maz.

In response to: Re: A long rave

Re: A long rave

Good morning, @eth, @Exoplanet, @Bunniekins, @outlander, @Sophia1, @Shaz51 and everyone, I went to my GP yesterday and, rather than wait for my name to come up on the outpatients cardiology list, she has arranged for me to see a private cardiologist this morning. He is going to bulk bill me for this consultation, and I am to talk to him then about how to manage any costs associated with the further testing I need (basically I can afford to pay for none of it). My GP tells me this specialist has a relationship to the local public hospital and, even if I can't follow up with more consultations with him privately, or private testing, he may be able to fast-track me through outpatients with an additional support letter.

She is still concerned over my recent chest pains and elevated blood pressure that prompted her to send me to emergency in an ambulance last Tuesday. She wants the follow up and further testing to happen sooner rather than later.

I so appreciate her care for me. For the past ten years, she has been pretty much the only doctor I have seen for whom I've paid out of my own pocket, and she has been worth every cent. But, as the costs associated with caring for my health are mounting as I'm getting older (I spent $175 at the chemist for medications and other health care items about 10 days ago!), I asked her yesterday if she might be willing to consider bulk billing me for all my consultations with her. I was so anxious about asking her this and rehearsed what I wanted to say and my justifications for it about a million times over in my head. When it came to the moment, she just said yes straight away, and said she was happy to do that now. It pays to ask! This helps enormously in making good health care affordable for me while living on a pension.

I may be back online later today to respond to yesterday's posts then. Either way, I'm sending love and care to all here and wishing all a good day.

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita hope I haven't missed you. That's great news about your GP bulk billing you and the new specialist too. Glad to hear you will get treatment sooner rather than later. Haven't caught up on posts since Sunday yet.

In response to: Re: A long rave

Re: A long rave

Hi @eth, and thanks. I have to fly now as the appointment is early by my standards and it's going to take an hour and a half to get there by bus! Hope to catch up with you properly before too long.

In response to: Re: A long rave

Re: A long rave

Hi @Sophia1 I love your long and considered replies to people here. Thanks for the heads up, I've edited this post now. Sorry to alarm you re: memory, I know the feeling.

I don't have a lot of words today but want to say to @Appleblossom that I am certain that the call you had about donating to fix NDIS problems was a scam. And did you ask them how they got your number? If you tell them not to call you (if they ring again) and they persist report them to the police. Never give them your bank details for a regular deduction in response to a phone call. Sorry if all this is pointing out the obvious but I was concerned when I read your post about it.

Hope today is one of the gentler ones for you.

Hi to anyone else around today. I'm heading out to water tai chi again with my support worker - really looking forward to it.

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