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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@eth, the hospital gym program includes a session at the start with a physio to design a tailored program of exercise in the gym. It takes into account medical issues, fitness and measurements of strength in muscles. I was actually in this program a couple of years ago but only got to two of the eight sessions due to illness and the floods that happened at that time. We'll see if they'll take me again in the nearish future.

I think I might go offline now and try to get some more sleep. Only two hours overnight, need more. Enjoy your relaxing day and the return of loved ones, dear friend.

In response to: A long rave

Re: A long rave

Yeah, me too, @eth. Did you get an email explaining why and where to modify the post? I kind of understand the triggering possibilities for people with eating disorders. I've changed and reposted. Hope it doesn't annoy you too much.

Anyway, really going this time. Great to chat with you and @Bunniekins this morning.

In response to: Re: A long rave

Re: A long rave

@Mazarita

I think I mentioned my Diagnosis once. It was about 10 months ago. It was not thorough and I am not yet on "proper" BiPolar meds. The mixed features aspect resonates, as I get very agitated and work hard to try and fix things. It is my thought to reduce antidep, but given the major dramas with my son, I have been walking on egg shells for a long time and pdoc realises that, so no major changes. For a long time I was getting told I did not need to see a psychiatrist, which meant for a long time the only person who knew how bad I could get was my son. Not fair on him, and that made me a bit angry with the system for giving us the flick and until the s%%t really hit the fan.

When I came on the forums I had struggled to get support at all, apart from private psychological sessions. So the forum really was important to keep me going while I found better services. It also helped me get a better picture of the level of trauma we had dealt with. Now we have some funding for family therapy through the Royal Commission and slowly slowly are getting heard.

In response to: Re: A long rave

Re: A long rave

@Appleblossom, come to think of it, I do remember you mentioning bipolar in relation to yourself a long time ago. Just wasn't aware it was an 'official' diagnosis.

It's awful that you were told you didn't need to see a psychiatrist, especially given the family history of mental illness and the great trauma you have experienced in the past.

I relate to what you said about your son being the only person who knew how bad things could be with you. As I've said elsewhere on the forum, I 'present well' in almost all situations in the outside world, regardless of inner states of instability and turmoil. When I'm bad with depression, I don't leave the flat, open the door or answer the phone, so no-one but those living with me see that in almost all cases.

When I was manic, it was as though I had been 'liberated' from my previous much quieter, more serious and introverted personality. It also coincided with the end of my marriage. I might have been seen as the epitome of the 'gay divorcee'!

I do sometimes wonder how friends could not have noticed what a dramatic change in my personality this all was, how I talked non-stop and very quickly, almost completely about sex, and was elated most of the time. If they did, they never told me.

Maybe because I seemed much 'happier', no-one questioned it. I was living in a highly artistic milieu at that time, so all sorts of 'eccentricities' and dramatic behaviours were seen as less strange in people. Mental illness seemed to be viewed pretty much as only for those living on the streets.

In that cultural context, psychiatry especially was generally considered a bad, mainstream thing. Even artists I knew who were long term users of the heaviest drugs, would make scoffing, superior remarks if they found out people they knew were on anti-depressants, let alone other medications.

I also carried on almost all of my manic, extreme and dangerous sexual behaviours away from friends and under the cloak of darkness. If I ever told anyone I was a 'love goddess' (my main delusion), they probably thought it was a joke.

It's fantastic that the forum has provided such support for you while trying to access appropriate support and services in the 'real world'. So good to know you are now being taken more seriously with your mental health concerns, getting more support and have more of a sense of being heard. I admire your courage in going through that process, as I admire the courage needed to go through the NDIS process. Either of those experiences are beyond my capacity for stress.

Ending this post here now. Love to you.

In response to: Re: A long rave

Re: A long rave

@Mazarita@eth@Sophia1@Appleblossom@outlander@Exoplanet as you all know I have been gradually decreasing my meds to drop some weight and I do believe it is making a difference and low and behold it is perking up my personality too. I have taken away 1 mood numbing tablets and 1/4 anti psychotic tablets. I promise that is all I will do 🙂 I feel my cheeky old pea again. Plus I did 2 hours of exercise today because I had more energy. Will be interesting to see what my pdoc says .... of course I won't say I have done anything yet just mention my concerns and can we decrease some.

Hope everyone is having a great day full of love and laughter xxx

In response to: Re: A long rave

Re: A long rave

That is really good to hear @Bunniekins Go more energy and a svelte pea.

@Mazarita Have you opted out of NDIS? Are you able to get community health arts without it?

I know the artsy scene a little. Since being a mum I steered well away from it, but recently, am relating along adult interests and positive feedback. Eg Last month, went to a couple of bars where there were a few cool types, but I am fairly grounded. I managed to socialise and not drink when I was 22, so should be alright ignoring peer pressure now! My year of travelling at 21 put a lot of things into perspective for me.None of their business what cocktail I am on.

I have not really nailed the pdoc down on diagnosis. More just trying it on for size.There has been too much going on with my son, (whose BiPolar I is more "classical") and only see pdoc 20 mins every 2 months, but gradually he is getting a picture. I am not in a hurry, just glad I am getting more support which does not cost the earth, so I can absorb stressors and support son as needed. Still have to pay a gap fee to see him, but other stuff is funded. I could afford to go and see Ladies in Black. Yay going to a movie just cos I wanted to see it! Eventually I would like to be more thorough about my own situation, but just going with what works atm.

@Sophia1 I hope you are alright and had a good day with your younger son.

@eth

In response to: Re: A long rave

Re: A long rave

@Appleblossom 'Go more energy and a svelte pea.' *does a little dance* 😄

In response to: Re: A long rave

Re: A long rave

haha well done @Bunniekins

what stamina...

cheeky??..yes...providing as much information as is needed scenario with pdoc....

will you be able to contain yourself if the answer is no?

Is he good looking?

In response to: Re: A long rave

Re: A long rave

thank you @Appleblossom

I have been catching up with son...helping him in his search for building...a house and land package....

interesting exercise....

trying to step back and let him ask all of the questions....the sales consultants are useless ...son is so laid back ...not the best combination..

however we made some headway and he is quite excited as am I for him..

I read that your son has got back into opera and has some opportunities ahead...proud moments...

Sophia

In response to: Re: A long rave

Re: A long rave

No he is a she 😞 ..... probably for the best :). I will just ignore her lolz if she says no lolz. I wont take off anymore lol it was just a wee bit for the pea's troubled mind.

How did your outing go with youngest son? @Sophia1

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