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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi @Mazarita not too bad just feel anxious. Didn’t get much sleep last night again & sorta paced around the house trying to control it. How are you?

In response to: A long rave

Re: A long rave

Sounds like a frustrating scheduling tangle, @eth. Grrrr to the NDIS processes, so poorly thought out, it seems. I've also seen news reports about community mental health organisations going under because of the NDIS, leaving gaping holes in support for mental health in the community. And an article about the many qualified and experienced mental health workers being put out of work because of the NDIS, thereby impoverishing the whole mental health support sector.

During this past two months of deep depression, I have repeatedly thought I needed help to get out of the hole I was in. But of course there was no support available to me, as I am not part of the NDIS scheme. As you know, I previously I found assistance for these problems through the Phams scheme, no longer operating.

In response to: Re: A long rave

Re: A long rave

Hi @Former-Member, we posted at almost the same time. I always say 'snap!' when that happens. Good to see you this morning.

Sorry to hear you had a difficult night's sleep and are feeling anxious. Is there anything you do, or have done in the past, to help with that?

I'm okay this morning, but had a bad dream before waking, which left me feeling weird. Overall, though, I'm relieved to find these past few days that I don't feel the irresistable need to sleep almost all day and night.

In response to: Re: A long rave

Re: A long rave

I feel for you @Mazarita and I know what it's like not to have any supports beyond the mainstream medical and allied health professionals i.e. psychiatrist and psychologist. That was me for many years. I think maybe Partners in Recovery (PIR) still has some services for non-NDIS people. It's a terrible state of affairs for so many people with MH challenges, for so many reasons. I could rant! That's why I kept fighting for NDIS for so long. They've created a huge 'grey zone' where people have no services available any more coz all the organisations have switched over to NDIS and lost their funding for non-NDIS clients.

I heard that PHaMs actually has funding til mid next year - is there no possibility of getting them again?

In response to: Re: A long rave

Re: A long rave

BRB @Mazarita

Hi @Former-Member @Exoplanet

In response to: Re: A long rave

Re: A long rave

I think I will be okay now without a support worker, @eth. The anti-depressant increase that happened a couple of weeks ago seems to have started helping over the past few days.

By the by, I saw both my psychiatrist and psychologist within the past couple of weeks. The psychologist, who is against medication in many ways, sees my depressions as 'endogenous' (primarly biologically based, rather than due to external experiences). She emphasised that, in my case, it will be necessary to take medications for the rest of my life. In short, I believe most of my problems over these recent months have been due to instability in my internal brain chemistry, which in turn has been due to instability from all the medication changes this year. Feeling hopeful at the moment that we may have a better mix at this point.

In response to: A long rave

Re: A long rave

@Mazarita Hi Mazzy and everyone 🙂 Mazzy it looks like rain here too which is great. Will also have a stay at home day today. In fact after some qigong I am going back to bed with a hot water bottle :D! Hoping everyone has a kind and calm Tuesday love gp

In response to: Re: A long rave

Re: A long rave

I'm feeling hopeful for you too @Mazarita. Very glad things seem to be levelling out for you over the last few days. I'm currently on a total of 4 psych meds - a total cocktail - and it seems to be keeping me fairly stable with the bipolar 1 so far. It's a year since I had hypomania and about 3 months since I had more than mild depression but none of it helps with cPTSD and none of it has improved my sleep pattern. I still have an average of 5 sleeps overnight. I recently started a new one that blocks adrenalin receptors but it doesn't seem to have made any difference so far - still gradually increasing the dose tho so I still have a drop of hope that it will improve my nights at least. I am reconciled to the fact I'll have to take psych meds for the rest of my life. It's better than the alternative.

In response to: Re: A long rave

Re: A long rave

Hi @Bunniekins, haven't caught up with you in real time for quite a while. Good to see you!

Awesome that you are doing the qigong, as well as your other exercise activities. Enjoy that warm bed! I'm doing my best to stay out of mine at the moment!

@eth, sounds like the cptsd is more likely to respond to psychological approaches, rather than psychiatry. Good that you are proceeding with that with your psychologist, and have more appointments with her now. That's one benefit of the NDIS. I'm still getting broken sleep too but only short wake-breaks now, instead of waking up fully alert and unable to get back to sleep. Hope your new med starts helping with the sleeping problems you have very soon.

In response to: Re: A long rave

Re: A long rave

@Mazarita You must be so exhausted in every way to have been sleeping all day and night. Nothing really helps. I try and distract myself but I can feel it all the time in my breathing even when distracting. My whole body tightens up & I get mad at myself or can’t concentrate. Right now I am feeling it. I think I need to go on medication

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