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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

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In response to: A long rave

Re: A long rave

@Faith-and-Hope how are you going tonight?

In response to: Re: A long rave

Re: A long rave

Hi everyone .... 🙂

I am tired @outlander, but it's good-tired.

In saying that, I have been burning the candle at both ends for the last week or so, so it's time I pulled back in to pumpkin hour as a boundary, if I can. Sometimes easier said than done, of course.

In response to: Re: A long rave

Re: A long rave

@Faith-and-Hope pumpkin hr as a boundary sounds like a good idea! Youve been pretty busy so im not surprised your tired.
How was uni today? Are you getting the hang of your new computer?

In response to: Re: A long rave

Re: A long rave

Yeah @outlander ... I am managing okay with it now. Still a lot to learn, but I have realised I can search up help on most things.

In response to: Re: A long rave

Re: A long rave

That is good to hear @Faith-and-Hope

In response to: Re: A long rave

Re: A long rave

Good morning, @CheerBear. It's been a little while since I left a morning message for you. Feeling better these past few days and able to write at this time again. I imagine you might be awake and maybe taking in the early morning outside for a little while. The birds have just started chirping here, first light in the sky. It's been raining steadily all night, a soothing sound and feeling. Sending early morning love to you.

In response to: Re: A long rave

Re: A long rave

Good morning, @eth, @Exoplanet, @outlander, @Faith-and-Hope, @Former-Member, @Shaz51, @Bunniekins, @saturnzoon, @Appleblossom and everyone visiting this thread today, sending good wishes to all for this Tuesday. Looks like it's going to be a wet day here, a stay at home one probably. Wondering how everyone is, and any plans for this day.

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita! Great to see you here again! Wet day here too, but the land really needs it so I can't complain. My only job for today I did already - lodged a booking on HireUp for a support worker tomorrow afternoon. I found my old PHaMs worker on there so it will be her - nice to have someone I know. But she's only available at random times so I have a couple of other organisations that will do regular weekly stuff with me soon. One of them starts on Sunday. And about time too - I've had my NDIS plan since early July.

Hi everyone else looks like there's several pages to catch up on - hope all are feeling well this morning.

In response to: Re: A long rave

Re: A long rave

@eth, good to see you again in real time this morning.

Great to hear you have your old support worker for some of the time, and that she will be starting tomorrow, and then another on Sunday. Seems a pity that the support worker process is so piecemeal though, but I guess it's better than nothing. Another thing that works less well about the NDIS than the former system, I guess.

In response to: Re: A long rave

Re: A long rave

I could rave about the frustrations of the process to get support workers through a coordinator of supports @Mazarita but I've probably chronicled it enough on the 'Anyone Started with the NDIS?' thread. It looks like I'll have support workers from 3 different organisations in the early days. One of the challenges is having to take them when they're available and then trying to find activities that are on during those time slots. I spent ages looking for activities in the community for Sunday afternoon and the best I can come up with so far is touristy things or going for walks.

The CoS says just to get started with them whenever they are available and hope that their available times change.

I need help to identify things I want to do that will help work towards my goals too, and then try to get sw's for when those things are on.

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