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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi @eth, @Bunniekins, just caught up with your posts. Eth, I love the sound of your place. Also sounds great that you now have the possibility of visiting sil's mum. Hope you enjoyed lunch with her. By the way, we have no sofa either, only two armchairs. The place is too small for a sofa and the chairs. We eat all our meals on our laps. A bit of gypsy here as well.

In response to: Re: A long rave

Re: A long rave

@Mazarita Sorry you are going through a dental nightmare and health stuff bad.

I think that many people with MH issues get less attention to physical health issues, for many reasons, some of it doctor stigma. So it is helpful for me to see what others are able to achieve. Yes like eth's pathology tests, I think after being so long on heavier meds, they should be doing more tests checking on med side effects. Better late than never. I hope they respond positively when you ask.

Fantastic about the sleeping pattern.

@eth I love the sound of your pad ... you are one groovy lady!

@Bunniekins I love your chipper ways. I have had a week of dawns and can see some of the delight, not sure if it would ever be a natural choice for me. We are going back to having a lot of peak energy requirements for night time rehearsals, so I suspect our hours will slip a bit.

I think there will be a few more young people who were shown too much choice re gender positions in adolescence. It is very tricky with the current debates. How does a society shift from awful homophobic laws to inclusion but not over bombarding young minds and bodies with TMI.

I had a good session today with my social rehab worker. She has now seen my worst day scenarios and my best days. We will start preparing for the NDIS rollout. They are telling people not to accept phone assessments and to ask for face to face.

My cold sores have had a major breakout, so though I am feeling good, my body has been stressed and I look a mess.

In response to: Re: A long rave

Re: A long rave

@Appleblossom Dear Appleblossom what a lovely compliment thank you 🙂

I couldnt agree with you more ... but my daughter is fine about it all being gender neutral (atm anyway ... am not going to worry about what hasn't happened yet. Leave that for the future if it happens.). I am so sorry about your cold sores (virtual hugs for those cold sores) they are awful things aren't they I hope they disappear for you quickly xxxx

In response to: Re: A long rave

Re: A long rave

Thanks @Bunniekins I am glad the gender issues are not too troubling atm for you or your child. Yes very wise not to imagine problems, life sends enough our way to juggle.

On the weekend, I had the weirdest dream about ear wax accumulating and then pouring out of my head and then woke up with the biggest infection of cold sores ever - about 6 all at once. I have a lot of issues around my head and skull, physically as well as mentally. I bought stuff so we will see how they go. Its mainly a sign of immune system and not to push myself.

My zoo contact was desperate for night workers and I explained I was run down and she was very understanding about me not doing outside night work. It is very validating that my ordinary health has been treated with respect and I have been able to say "sorry but no" and receive a lovely response to look after my health.

Take Care

Apple

In response to: Re: A long rave

Re: A long rave

Hi @Appleblossom,

I use pawpaw ointment when I get coldsores. I may be peculiar, but I find it more effective than the chemist ointments. I've had outbreaks of them for a long time, but only occasionally get them now. I hope whatever you have works well and rapidly for you. So great that you were able to say no and get a good response at the Zoo.

With my medical treatment, I've pondered it a bit more and I do trust my GP. My blood results on a roughly annual basis have come back mostly okay. They have actually improved since I slightly altered my diet and started getting more exercise. She and I have been sharing my health journey since 2010. She also helped me majorly with the DSP application, which I desperately needed then, and need to continue, considering the chronic mental and physical health problems I have. She is a lifeline for me really.

I think the point you made about treatment of physical health for people with MI is very valid though. It's really important to find a good doctor if you can, I think. I'm sure stigma plays a part in many situations, sadly. I have been proactive, and lucky too.

In response to: Re: A long rave

Re: A long rave

Glad that your Gp has been very helpful for you. @Mazarita I was not meaning she was letting you down, but thought it still valid to say, in general, and just in case.

The zoo thing was good because the way I am wired I tend to "do it" or bust, and I need a more careful and conservative apporach to my health these days. So it means I have established enough credibility with them and they have been flexible with me, so that it looks like the zoo can continue to be a positive facet of my life.

I was so used to NOT be heard when I asked for help or cried out in pain. That is finally changing and it is an amazing experience for me.

I am really glad about your positive feelings about social engagement. You.ve come a long way too.

I used to get into this "prove my love/worth" mode etc in freindships and all relationships. It was all too extreme, and now I have been around the block a few times, I know that many people manage with only a few friends or supports in their whole lives. That the appearance of popularity is often a glaze and not the substance.

Just had a yum roast duck and watched a tv show with my son..

Hope all who pass through, reading this thread ...

fare well tonight.

Cheers

In response to: A long rave

Re: A long rave

@Teej i think your still up... do you mind if i ask you something?

In response to: Re: A long rave

Re: A long rave

Did you mean @Teej, @outlander? I'm here if any ear will do for now.

In response to: Re: A long rave

Re: A long rave

Yep @Mazarita i did. Ive fumbling fingers atm. Thank you for tagging her for me.

I dont really know how to say. Maybe it doesnt matter..

In response to: Re: A long rave

Re: A long rave

Feel free to talk about it, or not, as you wish, @outlander

What did you do today?

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