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Strange physical symptoms - internal burning sensation

Strange physical symptoms - internal burning sensation

Hi all,

I am new to the forum and this is my first post. I am currently experiencing extreme anxiety and so far the medical profession has been unable to help. I have now been off work for 5 months and feel like my life has come crashing down around me. I welcome any advice however also wanted to ask if anyone else experiences the same physical sensations that i do as i am not convinced they are part of anxiety. I get very strange head symptoms, hard to describe, but includes an internal burning sensation, head and face, neck, shoulders, arms, sometimes entire body. It is extremely difficult to handle and quite torturous. I also experience other weird head symptoms - like a tight band around my head, sometimes like a lifting sensation from the top of my head, weird face sensations, not quite prickling, not quite pins and needles, but those would be the closest i can come to describing it. Does anyone else experience these things? I am at my wits end with the severity of my symptoms - all of them, not just the ones mentioned- and wonder if anyone ever actually recovers from extreme anxiety and is able to function and live some semblance of a normal life! At the moment it seems i am going round in circles with the MH profession and getting nowhere.

Any help greatly appreciated.

And thank you for reading.

61 replies

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In response to: Strange physical symptoms - internal burning sensation

Re: Strange physical symptoms - internal burning sensation

hi @Doglover if it was my psychiatrist he would listen to me. He's a very good & warm listener and also very clever & knowledgeable about medical matters and side effects of psychiatric medications.

However, he did not just land in my lap.

It took about 10 years of unsuccessful treatment from therapists and psychologists before one suggested that I may benefit from seeing a psychiatrist. My GP then insisted she treat me before she refer to a psychiatrist. So that was another 6 months of agonising, nightmarish psychotics symptoms & rage and anxiety and depression because she prescribed me totally ineffective meds. At the same time she insisted I see a psychologist who told me I was incapable of change/improvement & had a personality equivalent of a pre-verbal child which is one of the nastiest insults I've ever believed. And for those insults I paid her about $200/session, private.

Unfortunately, I went through hell, a lot of money and had to battle very hard to get successful treatment. I only ever did private - more than one therapist fired me and one screamed (yes, screamed) at me that I was never going to get any better. Undergoing treatments was very traumatising & took a long time to recover from. I had to advocate very strongly for myself. My GP told me to accept my nightmarish quality of life & keep my expectations low. It was only when I finally met my psychiatrist that I met someone who had as much ambition as me to obtain quality of life. He saw the best in me and had the skill to prescribe me the right meds to improve my quality of life.

I wish I had an easier tale to tell but you may have to be really assertive, advocate hard for yourself and go thru a lot of trial and error (and professionals) before you find the right person/treatment. I did. More than once, out of desperation, I even drew intricate diagrams, referencing relevant psychological theory, to illustrate my tormented mind to professionals because I felt no-one was listening to me and no-one believed me.The $200/session psych liked them a lot & asked if she could make copies to show her peers. I said no (how dare she?).

Also, I have done every self-help, free $ method on earth to try to relieve my anxiety - breathing methods, meditation, mindfulness, yoga, exercise, diet, massage, journalling, grounding techniques, support groups, volunteering, socialising. Plus, methods I've paid for - acupuncture, Ayurvedic diagnosis & treatment, hot springs. I have used an enormous amount of initiative, effort, time & money to try to relieve my MI symptoms. Some of it was triggery & inflamed my symptoms, especially support groups, meditation & mindfulness. But, maybe some of these methods could help you.

I have never met anyone who has MI symptoms like me (particularly rage), nor reactions to treatments like I do. It has been very lonely & isolating for me within the MI community. But I kept going & kept fighting.

If I can get there & find effective treatment then you can too. I don't know who the right person or method is for you but there is someone & something out there for you, I think you'll just have to fight hard for it. On the plus side for recovery is the fact that you have a long history of life without mental health symptoms so you probably don't have a strong genetic cause for MI. The causes appear to be medical and only appeared in adult life, so the likelihood that you'll return to nromal seems strong (compared to me, I was depressed from age 11 and psychotic symptoms began aged 15 and I have a strong genetic predisposition for MI plus a strong history of childhood trauma).

Have you tried any self-help anxiety relief methods? Have you looked into diet as you seem to be very sensitive to that? Keep researching treatments and professionals that you can pursue if the next pdoc you meet doesn't have the skills you require.

In response to: Strange physical symptoms - internal burning sensation

Re: Strange physical symptoms - internal burning sensation

@Doglover research about the prognosis for people with your condition from a variety of sources. And evaluate it against your own experiences and condition. And despite public or private system. Miracles are a myth... you only ever hear or see stories of people who are at their peak of performing/recovering... they set the examples and the benchmarks... their the evidence of what a great job the system is doing... and what you can aspire toward if you work hard enough...

I've found that a care free attitude of acceptance which is free from professional expectations works best for myself... I've just settled for what I need... and given up on this dreamy and perfect life...

In response to: Re: Strange physical symptoms - internal burning sensation

Re: Strange physical symptoms - internal burning sensation

yes @Doglover , my mr shaz went years on just anti depressants which were not working until they put him ona newer anti depressant plus a anti anxiety med as well , still have a lots of ups and downs every day

Hello and hugs @eudemonism , @BryanaCamp , @CheerBear , @Zoe7

In response to: Strange physical symptoms - internal burning sensation

Re: Strange physical symptoms - internal burning sensation

Thanks again for all your support and advice @Zoe7 , i really appreciate it. Its seeming to me like i need to give serious consideration to finding a more supportive gp and pdoc. My mum offered to pay for 3 private pdoc sessions, and i have enough money for probably another 3 and that wld be it. Spoke to my hubby about it and hes not happy because he can just see it being a money pit and wel have too sell what little assets we have for no guarantee of success. Just great. Feeling pretty unsupported there too!

Sounds like having private cover has really helped you with your options. We dont have private cover, nor much money, so our options are pretty limited. And i dont feel like my current pdoc is listening to me re the sodium issue or re reactions to meds, but thrs no other choice within the public system, id hav to go private to hav a differnt pdoc. Just so frustrating. Now my husband is crapped off with me which is just what i dont need!!

I feel at a bit of a loss. What you said about being most important to have a team that listen and support you is crucial, i dont have that and based on my husbands reaction, doesnt look like im going to have the opportunity of trying another option. Very disappointed. I think part of this comes down to the fact that he also thinks the whole salt thing is stupid and so in his mind wel be wasting all this money all bcoz of this stupid idea iv got in my head thats stopping me from just accepting the treatment im given and getting better. I think thats where hes coming from. So i dont have support from him in that regard either.

In response to: Re: Strange physical symptoms - internal burning sensation

Re: Strange physical symptoms - internal burning sensation

Maybe finding a new GP is your first step here then @Doglover Someone that will listen to you and work with you to find solutions. You could then also work on getting a referral to a new pdoc. There are no guarantees that will work for you but it seems better than the situation you are currently in.

It is disappointing that you husband is unsupportive - that certainly would make it so much harder. You do have some decisions to make and I can see that either way you go it is going to be super hard for you. But stick in there Hon - there are options and although it seems impossible at the moment there is hope. I hope you find that support to help get you through this sooner rather than later.

In response to: Re: Strange physical symptoms - internal burning sensation

Re: Strange physical symptoms - internal burning sensation

Hi @Shaz51 i've been living with bouts of anxiety and depression for a fair few years now..

In response to: Re: Strange physical symptoms - internal burning sensation

Re: Strange physical symptoms - internal burning sensation

yes , mr shaz has had bouts of anxiety and depression all his life @eudemonism

it depends on situations and things happening and also his family are very negative too

Hello @Doglover , @Zoe7 , @BryanaCamp , @CheerBear

In response to: Re: Strange physical symptoms - internal burning sensation

Re: Strange physical symptoms - internal burning sensation

Could be part to do with his personality aswell... I'm starting to think that the medication they've got me on... works against my natural personality and it's very irritating @Shaz51

In response to: Strange physical symptoms - internal burning sensation

Re: Strange physical symptoms - internal burning sensation

@Doglover

In response to: Re: Strange physical symptoms - internal burning sensation

Re: Strange physical symptoms - internal burning sensation

hi @Shaz51 thanks for the tag. How do you deal with Mr.Shaz's family's negativity? I have to volunteer with this really negative guy and it's taking it's toll on me 'cos he never lets up.

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