FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Friends, families and carers

Not sure what to do !!!

Not sure what to do !!!

Got a question , a problem , kind of ?? @Former-Member , @Appleblossom , @outlander , @Determined , @Faith-and-Hope , @Jacques , @PeppiPatty , @Owlunar , @Sophie1 , @Sophia1

unsure what to do as mum has been in hospital for nearly 4 weeks so far after her hip surgery and as well as having reoccurring bowel obstructions

mr shaz and my cousins think my mum is scared of going back to her house

been getting the house rearranged and sorted for her to come back home

I have been visiting her everyday and sometimes I wonder if she is developing dementain

got a transistion appt to develope a home plan for the near future , I am asking my aunty to be there with me

I sometimes think she is not ready to go home

3201 replies

3,181 - 3,190 of 3,201

In response to: Not sure what to do !!!

Re: Not sure what to do !!!

Mr Shaz will be able to work through his stuff and make more sense of things, do you think so too?

I think so too @Jynx ,

mr shaz has come a long way over the years ( he will disagree with me about this )

to finally have a name to something which he always though something different about him

ohh he is soo hard on himself everyday @Jynx , so sending you understanding hugs ❤️

Centrelink phone call coming up soon -- he is a mess already

In response to: Not sure what to do !!!

Re: Not sure what to do !!!

Ohhh @Jynx , @Former-Member ( it is doing my head in at the moment )

got lots of information , no families know yet

centrelink call finished

In response to: Re: Not sure what to do !!!

Re: Not sure what to do !!!

Wanna chat about it @Shaz51 ? 🙂🌺💜

here for you ❤️‍🩹🤗

In response to: Re: Not sure what to do !!!

Re: Not sure what to do !!!

😊 thanks @Former-Member

Mr shaz has taken some medication and gone to bed

And I sitting here quietly on the couch

Sorry how long have you had your condition xx you don't need to tell me

In response to: Re: Not sure what to do !!!

Re: Not sure what to do !!!

Sounds like it’s been a bit of a heavy afternoon for Mr Shaz @Shaz51 💜🫂🌺

How are you feeling if you’d like to chat about it? 🙂💜


my bone marrow problem? That’s the root of all the organ/neuropathy issues I have 🙂

the first bone marrow biopsy confirmed in august 2021, second one in November 2023 (showing genetic evolving mutations).
there’s secondary illnesses that arise from having these little buggers in there, but I’m trying to do my best 😉🙌🏻🦩🫂

In response to: Re: Not sure what to do !!!

Re: Not sure what to do !!!


@Shaz51 wrote:

Ohhh @Jynx , @Former-Member ( it is doing my head in at the moment )

got lots of information , no families know yet

centrelink call finished


How'd the call go?

Do you mean that you haven't told any family about ASD yet? I think that's fair, all things in their own time you know?

If you're worried that there'll be judgement, stigma, or anything, you could always put together like... idk an info pack lol - just like some basics about ASD, the ways that Mr Shaz demonstrates the traits, and things that could be helpful (like accessibility stuff, if applicable, or ways that Mr Shaz would like people to act/react)

In response to: Re: Not sure what to do !!!

Re: Not sure what to do !!!

Yes Mr shaz will be OK, he will fall asleep, maybe have something to eat after and then go back to bed early @Former-Member

so it will kind of just being me for the night until tomorrow 😀

I am feeling glad that the call is finished and now get ready for the next step

Hugs ❤️ @Former-Member and you are doing amazing

See my doctor Wednesday and blood tests next week

In response to: Re: Not sure what to do !!!

Re: Not sure what to do !!!

Call went OK @Jynx , @Former-Member just have to wait for centrelink to decide

We had a chat And I think one step at a time and i told him we don't need to rush in and do anything at the moment

He was pleased with that idea xx

In response to: Re: Not sure what to do !!!

Re: Not sure what to do !!!

I'm really happy for you both @Shaz51 that he has come round and is thinking in a more positive way now. Clearly you have handled it all perfectly. Well done, as always 🌷🌻♥

In response to: Re: Not sure what to do !!!

Re: Not sure what to do !!!

Thanks @Emelia8 , @Jynx , @Former-Member

It takes a lot of thinking 🤔, until tomorrow when something will come up again

3,181 - 3,190 of 3,201