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Unknown userMember
Living and loving someone with MI presents relationship challenges and often others cannot see why we chose to stay with our partners.
Being mindful of not intruding on others stories I thought having a thread where we can share tips and encourage one another would be of value.
In response to: Partners who chose to stay for the long haul
Unknown userMember
Oh wow, @Former-Member so there could be some major changes in the wind in the not too distant future. Hopefully everything works out.
Trouble with my hubby is that there are so many different ailments a team of specialists are treating independently. He is currently under the care of a Neurologist (parkinsons disease and migraine associated vertigo) an Oncologist (metastatic Melanoma) a Psychiatrist (PTSD, Parkinsons and terminal cancer related Depression) a Nephrologist (former kidney cancer and now chronic kidney disease) a Dermatologist (ongoing monitoring of skin cancer as Parkinsons patients are very prone to melanoma) an Opthlamologist (macular tear, cataracts and other eye problems related to both cancer treatment and parkinsons disease). So there is a lot of interactions between the many and varied medications he is on. In addition to the above, you have the more common issues of High blood pressure, high cholesterol, gout and GORD which his GP monitors.
Little wonder it seems like its all one big experiment at times.
Sherry 😵
In response to: Re: Partners who chose to stay for the long haul
Unknown userMember
Yikes @Former-Member there is a heck.of a lot of interaction potential there. You can get pharmacy reviews as part of chronic illness management (arranged through GP).
In response to: Re: Partners who chose to stay for the long haul
Unknown userMember
Yes, a timely reminder @Former-Member . I should organise to do that. It was done years ago, but nit since his more recent diagnoses of melanoma in the lungs or parkinsons. I do regularly to to the pharmacist however. Given the neurologist only comes up here two days each month, I have been going to ask hubbys GP for a referral to a local Physician who has interest in Parkinsons. Physicians are essentially a specialust GP and can bring together the big picture, rather than each thing in isolation. I will ask at hubbys next GP apt.
Sherry
In response to: Re: Partners who chose to stay for the long haul
Shaz51Senior Contributor
wow @Former-Member , @Former-Member , hugs 
mr shaz has a appt in 2 weeks about his side affects
my is on monday
and mum`s appt is 2 weeks away -- desion time about surgery again
In response to: Re: Partners who chose to stay for the long haul
Unknown userMember
Feeling for you @Shaz51 my Mum does not want any more major surgery.
In response to: Re: Partners who chose to stay for the long haul
Shaz51Senior Contributor
I don`t think my mum wants anymore surgery either @Former-Member and yesterday she had a talk about if she does not make it
In response to: Re: Partners who chose to stay for the long haul
Unknown userMember
Emotional times @Shaz51, returning one of your tender hugs.
In response to: Re: Partners who chose to stay for the long haul
Unknown userMember
Thinking of @Determined too ...
In response to: Re: Partners who chose to stay for the long haul
DeterminedSenior Contributor
Thanks @Former-Member
I am actually feeling a little more composed this afternoon after pushing to get out and do some yard work. We are having mums wake here so need to get the place trimmed and looking nice for mum.
In response to: Partners who chose to stay for the long haul
pMacCasual Contributor
I couldn’t agree more. I am in the early stages in this process too. Hubby diagnosed with major depressive disorder early last year after trying to take his life. He has good support now and engaged in his therapy but yes not sure how much he shares. We are so close to that real story. It has been such a huge learning curve for myself. Exactly what you say eg that walking on egg shells, what’s the right thing to say or not, trying to provide love and a supportive environment, trying to self care but at times struggle doing that. You all have been inspiring and simple tips have made some of those bad days ok. Thank you
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Help us push aside the stigma and discrimination surrounding complex mental health and change the way people talk about, and care for, mental illness.
SANE acknowledges the Traditional Owners of Country throughout Australia and recognises the continuing connection to lands, waters and communities. We pay our respect to Aboriginal and Torres Strait Islander cultures; and to Elders past and present.
SANE values diversity. We are committed to providing a safe, culturally appropriate, and inclusive service for all people, regardless of their ethnicity, faith, disability, sexuality, or gender identity.
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