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Managing Bipolar 1

Managing Bipolar 1

So managing bipolar has 3 main aspects - medication (psychiatrist), therapy (psychologist) and self management, including the main one being sleep 'hygeine' (google it), monitoring - for me I keep daily charts; self discipline, diversion of energy into things like art, craft, exercise, cooking, gardening - generally things I can do quietly at home but still use my racing brain. Mindfulness activities are good too. I find I get overstimulated really easily if I let myself get out in the world too much when manic. Sounds possibly too restrictive, but it's working at this time. Otherwise I could be shooting off on all sorts of risky and expensive ventures - have done in the past.

The charts include depression/elevation, sleep, anxiety, irritability, and medications. So I can see if I start to swing in one direction or another. You can get these charts from psychiatrist or psychologist, on-line or make your own.

I also use a Wellness Recovery Action Plan (WRAP) that's another thing you can google. It's brilliant and is there as a resource for my support people too if I get too far out of whack.

I'd really welcome contributions to this thread in the hope that we can help each other and also people newly diagnosed.

168 replies

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In response to: Managing Bipolar 1

Re: Managing Bipolar 1

Thanks very much for sharing so openly @Mazarita. I know the effort that goes into telling our story over again can be draining at times. I really appreciate your contribution here. Lots of love xx

Heading out now but will respond more in depth later probably.

In response to: Re: Managing Bipolar 1

Re: Managing Bipolar 1

Thanks, @eth. Yes, it's taken me a long time this morning to write that! But I also feel that it's great having the opportunity to do so, as it helps me clarify my own experiences and views. Hopefully it's useful to some others as well.

In response to: Re: Managing Bipolar 1

Re: Managing Bipolar 1

@Mazarita you write clearly and look at the many ways we work at managing our bipolar lives. Thankyou.

An expression I used last night has really stuck with me today ..... "between memories and dreams (and delusions)" .....could be a book title. I have had to tell my lifestory so many times in the course of my process to get to NDIS funding as well as in the type of therapy I'm doing with my psychologist. And so lots of more detailed 'memories' have come to the surface. Some are based in real life, others turn out to be either dreams or psychoses. Another thing I find having family support has been helping is in clarifying memories/delusions/dreams and sorting what is fact and what is my confusion because of the states I've been in. These days I have to concede at times and accept that I did not remember things as they seemed or in fact were to others. But I know my perception of reality at such times is still a real part of who I am if that makes sense.

And then there's the guilt and shame that comes at times relating to the effect my behaviours had on others, especially my adult child. That's a whole other story.

In response to: Re: Managing Bipolar 1

Re: Managing Bipolar 1

@eth, I did a lot of searching into memories over a long period with my first psychiatrist, who was unconventional in his approach. My sessions with him were usually an hour in duration and involved mostly talk therapy, with some medication. He incorporated Gestalt therapy and other techniques into his therapy with me. I hoped to free myself of the heavy depression I felt through exploring these matters.

My memories were mostly very dark and related almost exclusively to childhood traumas growing up as an only child in a family with a lot of domestic violence, gambling and alcohol addiction, as well as great stress and insecurity due to poverty. I was a neglected child, despite being very loved by both my parents. I also felt abandoned by my father many times over, as he came and went at different times throughout that time.

After years of delving into and reliving these things, I came to believe that it may actually have cemented the dark childhood memories and traumas further, though in some ways it was helpful to get them out rather than locked up inside. I no longer seek to explore my dark past to that extent, focussing more on the present and realistic hope for the future.

I've said elsewhere that the closest I've come to outright psychosis is in my serious anger issues at times past when I was verbally abusive over long periods of time towards loved ones, and was sometimes prone to screaming and head banging when my rage built up inside me to completely intolerable levels. As I also said, the initiation of anti-psychotic medication stopped this almost immediately and gave me the space to work at changing my perspectives and behaviours along those lines, through my own efforts. I have had almost none of those behaviours over several years now and my anti-psychotics were discontinued this year, with no sign of a return to those damaging ways. I'm not saying I'm cured of them for all time, but it is a great relief to me and my loved ones that they have not been present for a long time now.

What I haven't said before is that there was one aspect of my mental illness that went on for over a decade in my younger years, and which might be considered an outright psychosis. It is so shameful and painful to me that I can't describe it in detail, even in anonymity on the forum. But it was basically a belief I had about abuse I thought I had experienced, which I now believe never happened. This belief locked me into a victim mentality for a long time, which I came to see is a damaging thing in itself.

Shame and guilt have been big aspects of my experience over a lifetime with mental illness. My current psychologist has helped me a great deal with this, teaching me simple and effective techniques to forgive myself, and better move forward without so much self loathing.

What I also didn't mention in my earlier post in this thread is that I have had chronic physical illness throughout my life, mainly Crohns disease. Many people on the forum are aware of this, but for those who aren't, my earlier post may have seemed to give little indication of long term hope for those newly diagnosed with bipolar.

My physical illness has been a very significant contributor to the level of disability I have experienced to this age I am now, 56. I wanted to mention this now, as those who have better physical health with their bipolar may have more optimistic outlooks over the long haul. I place a high priority now on taking care of my physical health too through regular visits to a trusted GP and specialist referrals when needed. I believe this is a very important aspect of taking care of mental health too.

After writing my earlier post, I also felt it would be positive to talk about one thing that has been a lifeline to me through mental illness: creativity. I have been actively engaged with creative pursuits since my teens and these have given me a great satisfaction and even some wider recognition for my efforts. They give me a sense of contributing to the world, despite serious disability in other ways. I would recommend creative activities to anyone as a positive way of helping ease the pain of mental illness.

In response to: Re: Managing Bipolar 1

Re: Managing Bipolar 1

@Mazarita@eth@Shaz51@Bunniekins

Dear Mazarita, I have just finished reading your long posts and thanks so much for sharing. I feel like its a very insightful and brave post. Hope you feel good after sharing, I particularly like the fact that you have now decided to spend most of your time in the here and now of the present and not all those dark memories. I also feel like it’s great that you are not going to move forward as victim with no self loathing. I particularly liked you mentioning creativity at the end of your post as I found that quite liberating.

My own family bread a lot of guilt into me. My mum even blamed me for my son’s severe mental health illness by saying we always thought you were a bit schizo! I even got blamed for my brother being a violent alcoholic and it was my fault and I deserved to be violently assaulted by him! When it got too much to handle and I took out an AVO to protect my son, daughter and myself I got blamed for splitting up the family! My parents even though they are in their late 70s still enable my brother by mothering him and giving him as much alcohol as he likes even though he’s an alcoholic. My aunty is bipolar or in those days they called it manic depressive. My father’s attitude is that she’s mad, so I’m positive he paints my son, his grandson with the same brush. He’s pretty damaged by experiences of his sister, my aunty, who used to receive shock therapy when she was psychotic before the benefits of antipsychotics were known. So because of this family history of bipolar, I also get blamed for causing this for my son because of course it came through my genes! Of course it’s not my fault, but I avoid my family for a range of reasons which have briefly introduced above.

I am very proud of my son because he has been very brave to face his demons at a very young age, live in the present moment like you Mazarita, and move forward to face the future which is bright. I am trying my best to support him until he can fend for himself. I have to do this alone for a range of reasons. I don’t want him to end up like the majority of my bitter family who are self prescribing alcohol to help them manage their mental health issues ...love to you all and keep truck’n

PS Have been greatly enjoying the footy finals season as a sober vego! (That sounds pretty sad, but I need to be 100% in the present moment to continue to support my son)

In response to: Re: Managing Bipolar 1

Re: Managing Bipolar 1

It is different for me, and that's ok. I don't think I 'choose to live life as a victim' ........ things happened that weren't my choice and I can't control complex PTSD and the way it impacts on bipolar 1 for me.

In response to: Managing Bipolar 1

Re: Managing Bipolar 1

Hello

I'm struggling cognitively at the moment. I am low and experiencing, tiredness, lathergy and at times makes me feel ill physically. Do others get that!?! My head is not my friend it hurts like a bag pipe squeesed and making ear piecing noise or like the tv when it is going black and white with no reception.

I hate being this unwell. Want it to pass. How long has the struggle been....who knows!! I'm frustrated and alone. No one really knows except the creator God who made me and knows every part of this journey.

I want to get on and live a functional life.

I have supports family friends and professional.

Why is it still so hard. I know it would be awesome to know there are others who understand this pain.

In response to: Re: Managing Bipolar 1

Re: Managing Bipolar 1

Hello @Georgie1

It's taken me a while to respond on this thread because at the moment I *don't* feel like I'm managing Bipolar 1. I just wanted to let you know that I read your post and I'm in a similar place: 'why is it still so hard' really rings true for me atm.

In response to: Re: Managing Bipolar 1

Re: Managing Bipolar 1

Thanks @frog for your understanding. I thought you were fog which made me laugh. I have been unwell with short stints of being better for a long time. I work hard at managing bp and I get tired of it. I wonder if the medications are making it hard or if im experiencing symptoms of the illness. Who can tell. I just hang in as best I can. Even in better times I get anxious about the illness. I have recieved great professional help but it is limited to what they can do.

In response to: Managing Bipolar 1

Re: Managing Bipolar 1

@Mazarita what you shared is spelt out in a way I can relate to. The sleep, drugs, professional helps, exericse and other ring true. I like your accepting and positive attitude without glossing over the illness and how to manage it. Do you find it hard to read? I find it hard to read the screen or a book. My eyes have been tested and are good. I wonder if the medications might affect this.

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