Hello
@Bubbles3Caring for someone with any chronic illness can and does take its toll on people.
Each chronic illness has its own set of challenges and this applies to mental illness. It is confusing and difficult for family members when a patient is depressed, psychotic or suicidal. (Do you have a Dx?). I care for my husband who has BPii + more.
I have read your post as a request for help as to what you can do to make things better. These are the things I suggest:
1. Do you include your husband in your treatment plan? To me this is essential, as a carer we need to know what is going on and where we fit in.
2. See if your husband will attend a carer education session. This can be done through groups like Wellways. Do you have a support worker? They may be able to recommend something in your region. These classes help carers learn how best to support their loved ones as well as look after themselves. Ask your pdoc to explain things to your husband, allow your husband to speak to them without you being in the room if your husband requests this so he can ask questions he may not feel comfortable saying in front of you. (Don't be afraid of this, I do not like talking about suicide or saying something that I feel would interfere with the therapeutic alliance in front of my husband)
3. Do you self medicate? This is a relationship killer. Do whatever you can to stop. (On this note there are some ADs that can cause alcohol cravings - this may or may not be relevant to you).
4. Communicate with and show appreciation to your man. You may not feel up to rumpy pumpy but a bloke needs to feel loved in this way and regular bedroom action often makes a huge difference for the better in a relationship. Thank him for his help (and don't complain even if things are not done exactly right).
5. Remember life is more than your MI. Try and encourage your partner to have an interest of his own. Give him time and space for this. Likewise having your own hobby can be a good thing.
Bubbles, having a chronic illness is not easy, let alone one that is poorly understood. It is hard on the carer too. Feel free to ask me any questions.
I found this website that reminds us that we can live well in spite of a mental illness, it has some tenets (statements) that really helped me and I will end with them.
Fresh Hope Tenets
TENET I
Patient: My life is affected by a mental health issue and can become unmanageable and hopeless, especially if ignored or untreated. Therefore, I choose the help and support of others to overcome the struggles and find more joy in life.
Carer: My loved one’s mental health challenge has also left me feeling helpless and hopeless. Therefore, I choose the help of others in learning about the disorder and choosing healthy boundaries for myself.
Together, we have understanding. We remind each other of the Lord’s love, and that He alone can do all things. He is the source of our hope, and in Him we can overcome all things.
_________
TENET II
Patient: My mental health challenge has also affected my relationships and the lives of those around me. Therefore, I choose to overcome for both my own good, and the good of those who love me.
Carer: I haven’t always responded to my loved one’s mental health issue in ways that were good for the relationship. Therefore, I choose to learn better ways to communicate with, support, and encourage my loved one.
Together, we commit to speaking the truth in love, healing broken relationships and viewing each other as the Lord views us.
_________
TENET III
Patient: My disorder can become an excuse. Therefore, I choose to believe I can live a full and rich life in spite of my disorder. I choose the support of people who will urge me to “push through”.
Carer: At times I don’t understand my loved one and can allow them to either wallow in their excuses, or push them too hard. Therefore I choose to learn healthy, appropriate ways to contribute to my loved one’s recovery.
Together we do better than trying on our own. We will hold one another accountable for learning, growing, and choosing to push through in hope.
________
TENET IV
Patient: My disorder can lead me to feel hopeless. Therefore, I choose to believe, regardless of my feelings, that there is help and hope for my physical, emotional, psychological and spiritual well-being.
Carer: At times I also feel hopeless, letting my loved one’s actions and recovery define my happiness. Therefore, I choose to live with healthy emotional boundaries, and I choose my own joy despite the ups and downs of my loved one.
Together we remind each other that our hope and joy come from the Lord. He alone is able to fulfill our needs in every aspect of our lives.
__________
TENET V
Patient: While medicine is a key component in my recovery, it is not the only answer. Therefore, I choose to explore new ways of thinking and acting in my relationships and daily living.
Carer: I, too, have been part of the cycle of dysfunctional living, either thinking I had all the answers or thinking the problem didn’t belong to me. Therefore, I choose to submit myself to learning new behaviors and taking responsibility for my own healthy, balanced living.
Together we choose freedom over suffering, and joy in living through self-knowledge in action.
__________
TENET VI
Patient: At times I have allowed myself to become a victim, “defined” by my disorder. Therefore I choose to overcome and live in hope and joy, in spite of my disorder.
Carer: At times, I have viewed myself as a victim of my loved one’s behavior and disorder, living in resentment, anger, unforgiveness, or self pity. Therefore, I choose to separate the disorder from the person I love, forgive and let go of the past, and live as a contributor to successful recovery.
Together, we share in each other’s victories and celebrate the whole person.
__________
https://freshhope.us/about-fresh-hope/https://www.ncbi.nlm.nih.gov/m/pubmed/23796469/