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How do you enforce boundaries?

How do you enforce boundaries?

How do I keep my boundaries, except to repeat them how ever many times a day he walks over them? I was told this week that I don't need to keep telling him how to behave, because he has an ABI, he can behave how he likes (including urinating outside). I shouldn't ask for a question to be answered, and not multiple times, or remind him people answer questions out loud, or not to be yelled at because I expect an answer, be argued with on everything (he even says he isn't arguing when I ask him not to argue), or expect him to shower, clean food off his face, clean his teeth, clean his dentures, change his clothes, wash his hands, with soap and for more than 2 seconds, after touching animals before touching food, or touching raw meat, or use the dish cloth on the floor then on the plates, or not be told every little thing I should be doing and when. And "That's OK." That's one of few phrases I get to everything when I eventually get an answer.

I also get "I don't remember," "not sure" or "yeah" with an upward inflection on the end. Yeah doesn't mean yes. It may mean no. Its not worth trying to come up with a real answer, just one of the phrases will do. Its not being untruthful to say yeah instead of no. It's ok. I've started ignoring him when he asks questions, but I'm being rude if I do it, and he isn't.

I shouldn't expect that pain has anything to do with why I don't do all the things he has decided I should do. I shouldn't expect that he will do as he's asked if it doesn't suit him and get anger, excuses or lies about why he hasn't bothered, but I should do whatever he's planned for me for the day. I get told what I'll be doing as soon as I wake up. It's not negotiable. Its like he has an anxiety attack if the day doesn't go as he's decided. I can't expect to be in another room for more than a minute before he comes to see where I am (includes the bathroom if I don't expressly mention that's where I'm going). And I can't expect to talk to my friends or family on the phone with any privacy. At the moment, I have to go outside because the phone signal in the house we're staying in is non-existent. He will come and stand by me. He gets very angry and gestures threateningly if I tell him to go away.

I've calculated the horrific financial cost of his ABI since he had his surgery 4 years ago (he was starved of oxygen - probably - it can only be diagnosed with autopsy). It wasn't diagnosed for 3 years, because we had moved overseas, and he has had no help. He doesn't want help. He says the problem is all mine, and it's ok. I didn't have such bad arthritis before his ABI - though I had a lot of hard days, but I worked. He insists that my osteo-arthritis is curable, but it doesn't have to be for others.

He's told me I should leave if he's so horrible. I get the carers pension and he is on disability. We have no home - we live in a caravan, wandering aimlessly and currently are housesitting. He says I'll be fine - I barely move some days due to arthritis. We don't have enough money between us but he's sure half will be enough. He has no concept of money, but he's quite obsessed with spending it. He can't understand budgets and loses his temper if I tell him he can't spend money. He has no access to the accounts, because he'd manage to bleed them dry. He breaks and damages so much through being careless we're doing a good job anyway. We have lost hundreds of thousands since his surgery, in part due to his complete disinterest in the business we had just purchased in the same month as his surgery. We lost it and a lot more besides, before I consider what we haven't been able to earn since this happened.

His solution for me is that I sell myself or go hook up with someone else. Or simply, I'll be fine, and something will come along. That should be easy to find someone he says. He seems to find my pain very amusing. I have a plan to get out, but it will take time. I need to be in one location, I want to buy a house, but he's obsessed with running and has made sure so far I don't get to talk to agents about houses that are in our price range. He's obsessed with keeping me isolated and alone. My best friend is dying and he says I don't need to see her again this week. I have plenty of time according to him. According to her, she has weeks at best. I can't get there if he doesn't drive me, due to the arthritis.

I am very angry that the life we had planned is gone. That I am trapped with someone who treats me like the enemy. That the man I married died during that operation. Someone on here said that I had a lot of grief to deal with. Until she wrote that, I hadn't even recognised I had anything to grieve. Which makes me angry at the counsellors I've seen who never mentioned that at all. And more than that, I'm exhausted.

67 replies

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In response to: How do you enforce boundaries?

Re: How do you enforce boundaries?

Thanks for the links.

We live in a caravan, drifting around so I can't get anyone 'in' to help. We cook only with gas. It's little things, like he doesn't remember to lock the door and there's our cat to consider as well. He doesn't understand hygeine, so won't wash his hands, or put meat away, or know if it's off (that's the most serious) And he is very careless and clumsy. It's not just a fear as I've seen (and stopped) too many acts of carelessness that could easily result in serious hurt.

I'm going to see my sister in the next few weeks and intend to go alone overnight at least. Her partner has early onset dementia, so she understands. I can make hubby stay with a friend for a night. I can't continue to do this though, since we're only in this region until mid January. The climate is unsuitable for my health.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

I hope you have a good break at your sisters

Its a shame that none of the respite workers would stay in the caravan with him.Its good hes willing to stay at his friends house though.

It seems like he might reasonably be ok overnight or for a few days alone providing that take out or other ready made food is bought for him (as opposed to cooking) and that any old meat is thrown out prior to the trip.

Theres many people with Dementia who are able to live in their homes (with modications to make it safer and minimalise risk).

Maybe after Chrstmas you coud mention to your husband that you've decided you want to live in a permanet house?

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

I have plans for a permanent home later in the year. Nobody can stay with him in the caravan because there's no room. There's only a double bed and no other sleeping space. Its not one of the modern super sized vans 😉

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

I have plans for a permanent home later in the year. Nobody can stay with him in the caravan because there's no room. There's only a double bed and no other sleeping space. Its not one of the modern super sized vans 😉

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

I have plans for a permanent home later in the year. Nobody can stay with him in the caravan because there's no room. There's only a double bed and no other sleeping space. Its not one of the modern super sized vans 😉

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

Things have not been letting up on you ... I am sorry about your loss

Good Luck through the christmas and New Year period.

The roads are not the safest, so I will be thinking of you both in the caravan.

Keep your plans going. There should be some better way for you to be able to live and get support from local council and other networks.

I am glad you posted about your feelings. You should definitely be able to say it ...as it is .. on the this forum .. without fearing you will upset someone.

A permanent home somewhere would make such a difference.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

Hi @artee - I was thinking of you today. I hope all is well.

Please drop by soon and let us know how you're going.

Nik

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

@NikNik thanks for asking.
We're still housesitting. It's a way to get a little bit of personal space and hubby can take his obsessions and compulsive behaviours out on gardens and animals instead of me 24/7. Things don't improve, can't improve. He's told me the problem is yes, he has a brain injury, but the issue is me, not him. He doesn't have to do anything different because of the injury but I am the issue because I won't let him get away with behaving badly. I will not be treated like dirt, shouted out, insulted or ignored, or laughed at when I'm in pain. He now finds inappropriate things very funny. He doesn't think he should say sorry if he hurts me accidentally (which he does at often through carelessness or panic) because its not necessary to apologise when it's an accident.

My sister is seriously concerned for my safety as he is becoming more and more belligerent and his verbal insults of anyone in authority is escalating and scaring me. He only rants when he's with me because he avoids other people and so I am the only one who hears the tirades. I've realised that he sees me as authority too (hence the rudeness to me) and I'm scared its only a matter of time before it escalates further. He is slowly declining in many ways and I don't think I can continue to manage much longer, so I am looking for ways to support myself because I have some debilitating health issues that prevent me from working full time any more, even though I turned 48 yesterday.

He told me the other day he'd go to the police if I enacted his power of attorney (which he had made out before his brain injury, but insists wasn't for the condition he's in now) and started shouting abuse at me - in front of a friend. That's the first time he's forgotten to behave in front of anyone else and she was quite surprised at his behaviour.

In response to: Re: How do you enforce boundaries?

Re: How do you enforce boundaries?

Hi Artee,

I read your message this morning. I know that you need to make your own decision about what to do about the problems you are dealing with, but I feel compelled to tell you that as I read your latest post my first instincts were to immediately tell you to LEAVE. NOW. Your description of him indicates he is becoming more verbally abusive, aggressive, and disinhibited. You also state that even you are becoming concerned for your safety. This is a recipe for disaster, and it can only get worse.

Ask yourself: Has he threatened to harm you or someone else? Does he have any history of violent or physically abusive behaviour? Does he have access to weapons? You need to make a safety plan for yourself in the event that he becomes physically violent at the very least.

You may feel obligated to look after this man, or feel concern and sympathy for him because he is someone that you loved, but you deserve and need to look after yourself. In my personal opinion, you need to get out sooner rather than later. That's my two cents worth, and I'm sure your situation is not easy or simple. Take Care X

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