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Surviving after caring

Surviving after caring

Hi Folks, I'm just 'surfacing' after three years following 1-1 intense caring preceded by at least 8 yrs much the same.

My friend died, and I was left alone to cope. Family only stayed for the funeral, and disappeared, so called friends at church also totally abandoned me for the last three years. I struggled on several years with church volunteer duties that required at least 10 hrs each week. Finally gave up in some disarray to leave it to others.

Now finding that the effort of continuing is very wearying. Lost interest in previous hobbies and activities, lost energy and strength throughout. Currently attending a gentle gym for half an hour a week, one mid week church service, and avoiding the main service because a great number of people tpgether alarm me. What else can I do to improve? ~bonney78

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In response to: Surviving after caring

Re: Surviving after caring

Hi @bonney78 .... yes, those suggestions would ordinarily be very practical .... except ....

Hubby is clinging to the kidults and swinging around through different personality states, including treating them as much younger as they are .... has been extremely controlling and manipulative ..... which has caused a regression in the kids and a delay in their independence ..... his focus, while espousing the opposite, has been to keep the kids dependent. We have three of the five left at home. Older two are married. One of the home-bodies has an intellectual and physical disabilities, severe enough to prevent independence, but they are bright enough to be mischief and understand a lot of what is going on.

Husband set a punishing and rigid regimen in place over his day, and is not readily available ..... not emotionally available .... his day is totally ritualised with excessive exercise, rigid repetitive eating pattern linked to the exercise ...... has to eat the same (correct) foods in the correct quantities in the correct order at the correct time of day in correct proportion to the correct exercise .....

In our state I have been unable to flag down an intervention before now as hubby’s behaviours have presented as a healthy lifestyle to the outside world. There is another hidden behaviour here that is clearly pathological, but he has given the impression to others that I am fault-finding and delusional when I have tried to expose it ..... and he is emotionally aggressive as a means of guarding this state of existence. At the other extreme, he then lavishes us as a family with excessive “reward” ..... food, travel, family nights of board games and movie watching ..... joking around and spoiling everyone ..... so any criticism of this comes across as fault-finding and oppositional.

The kids have been fliundering in the wake of it all, because it’s unbalanced to sa6 the least, and we are also experiencing delusional episodes with him. This year we have caught the attention of specialists. In our state I have been unable to flag down an intervention before now as hubby’s behaviours have presented as a healthy lifestyle to the outside world, and the law prevents me from speaking up about him without him present, but when there is an emotionally abusive outcome for that, and I am disbelieved anyway ..... ? We have chosen to stay in this situation, knowing that it is not sustainable, in the hope of retaining our relationships in the long run.

As more than one support person has said, it’s a marathon, not a sprint ....

I have focussed on taking time out wherever and whenever I can manage it ...... and self-care is my highest priority ..... which of course is painted as being selfish and absent .....

The truth is slowly, painfully, being revealed, and misunderstood by some as part of the process ..... grrr ..... but until the full extent of things is revealed, you can lay blame on the mis-interpretations either ...... it’s so surreal and obscure ..... and complex.

In response to: Surviving after caring

Re: Surviving after caring

Hi there @bonney78 🙂

Great to see you engaging with the community in the forums, welcome 🙂

I just wanted to flag that when you are replying or directing something to a member, so they are notified of the post you can use the @ symbol and then click or type the members name. For example, if you are wanting to reply to FaithandHope use the @ button and then click on it and it should come up as @Faith-and-Hope. Please let me know if you need any clarification around that.

Pebbles 🙂

In response to: Surviving after caring

Re: Surviving after caring

Thanks @Former-Member ..... 😊

In response to: Surviving after caring

Re: Surviving after caring

* can't lay blame on the misinterpretations ..... typo

In response to: Surviving after caring

Re: Surviving after caring

Good morning @bonney78 ..... I missed this tag somehow ..... good to see you ..... 😊

The situation is actually more serious than that. Mr F&H is locked into a strict ritualistic pattern of exercise and restrictive diet across the day, the same pattern with very little variation, and it takes up almost all of the day. It caused a change in personality and value system as it set rigidly into place and he became both controlling and highly emotionally aggressive, opposed with “rewarding” behaviours. His need to control took over, and it took over all our household routines .... in fact every aspect of our lives that it could.

He doesn’t have friends ..... his workaholism left very little room to socialise, which he kept for virtually family only .... and now with this regimen in place and in semi-retirement, he doesn’t seeacquaintances either, unless there is some major event he can’t avoid. It’s like tunnel vision, and we can’t break him out of it,

At a point where he had achieved his weight-loss goals, his attention turned to regimenting everyone else in the household, at a time when it is important to relinquish control over kids who have become young adults, and unfortunately the control and control wwith extreme, but controlled or “rewarding” generosity. The level of emotional aggression and control meant that, aside from desperately seeking intervention from medical people, where our plight was not being recognised, we would have had to flee the house and cause a firestorm to try to break free.

Thus has affected the youngest of the adult kids and caused an emotional regression in them, which has turned inwards in the form of illness, making them even less independent, and causing them to be further, not only house-bound, but room bound as well. It’s more complicated than that, now that we have medical professionals involved, but the truth of my husbands illness is still not exposed because it is so insidious and well-hidden in the form of a “healthy” lifestyle. It’s only the inside view which shows that it is in fact anything but ..... and delusional thinking is part of the mess.

The expectation for dependence has come from the father over the kids, rather than the other way around. The medical intervention has also come via the kids, and until the underlying illness in Mr F&H is truly understood, it won’t be clear what else is influencing the eating disorder, which is an EDNOS, and so, what else needs treating here .....

Hubby has regressed into birth-family patterns that were never part of our dynamic, in fact we had rejected them, which he can’t recognise now ..... making him a stranger to me and confusing to the kids.

In response to: Re: Surviving after caring

Re: Surviving after caring

Sending you best wishes for strength and patience @Faith-and-Hope

Hi and welcome @bonney78. I agree entirely with what several others have posted here to support you. I was a carer at home for 18 years (legally blind child who left home angry and disowned me for a couple of years) at the same time as being in a carer role professionally. I still suffer 'compassion fatigue' on top of various MH diagnoses 10 years later. Just wanted to say I feel for you and empathise with isolation and burn-out from personal experience.

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