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Does a diagnosis really help?

Does a diagnosis really help?

I am interested on hearing what people around here think.

I personally have put off getting a proper diagnosis for years because I didn't think it would help me. I'm very ambivalent about it. Sometimes when things are bad I think about it but then I come out of it and convince myself I don't need the label. I seem to keep ping ponging back and forth.

I already take medicine and as far as I know that is the only treatment, so it's not like I would get better treatment with a diagnosis.

The thing is I have suffered with this for years and it might make me feel a little better about myself to relinquish some of the responsibility - i.e. to not think of myself as at fault or as a bad person but just as having a difficult disease. It might, however make me feel worse to think of myself as having this disease that there is no cure for that I have no control over. At least if I think of myself as 'bad' I can imagine I have some control over that. That one day I will just stop being bad.

Sigh. Just not sure.

141 replies

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In response to: Does a diagnosis really help?

Re: Does a diagnosis really help?

I feel for you @PeppiPatty. I too lost my home annd ended up in a tent for many months. It was a period when I learnt that I'm a much stronger person than I had thought. As far as I was concerned I was as weak as.

In relation to your question about how I felt when I started reading stuff - I felt empowered. The more I learnt the more I was able to understand about me and my bipolar. When others pointed out that I was doing x, y & z I took the time to examine their comments and work out if it was true. I could then dismiss the criticism or work out ways of becoming more vigilant for those signs and what steps I could take to start changing them.

It's great news tjst you're starting to climb out of that pit.

In response to: Does a diagnosis really help?

Re: Does a diagnosis really help?

@PeppiPatty I am much nicer to people when I'm not on medication. I am more in tune with myself and them and their feelings. I might talk to myself in public a lot and forget what I was doing though but I have learnt to take notes on my iphone. Not sure why there is such a stigma attached to talking to oneself it is quite helpful.

That is a large number of curtains... Why was your husband so tired?

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

lol @DefiantPanda Talking out loud is helpful to me too.

I used to be mortified about it but there are those advantages to getting older.

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

Just put in a mobile phone ear plug and no one will question you talking out loud in public. Problem solved!

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

Dearest @DefiantPanda

Yes, it is a large number of curtains but they covered the whole place, windows everywhere......

My husband get's tired and gets cramps in his hands because of his medication. Im not allowed to talk about him but somewhere.....I think it is on a lived experience thread called .... SAdgirl and friends is his story.......let me check that up in the next week.

Interesting that you are a nicer person not on medication. I think that is the difference for myself and you but what I feel is that Im a LOT more active, more neurotic and more..........devestated and I don't think I'de make it anymore without medication.

In response to: Does a diagnosis really help?

Re: Does a diagnosis really help?

If you've been really ill then I think a diagnosis is important. Its something I've taken very seriously, keeping all my medical appointments and taking the medication as prescribed. Its how you can treat the illness and avoid relapses, and live a healthy life.

But for me, it is something between medical staff, and my spouse and I. And also for authorities to know if that can be of a benefit to me, like Centrelink. But that is all. I don't tend to tell people about my primary diagnosis. I feel there is too much stigma and I sense that people have treated me differently after they have found out over the last 20 years.

My secondary diagnosis, I tell people about that on a need to know basis only, as I don't feel its as bad and explains my behaviour and life style choices. Yet, people in my extended family still don't understand it or respect it. But I don't like to use my diagnosis as an excuse other than that.

My diagnosis isn't me, it doesn't define me. I am still a normal person in my mind and live as normally as I can manage. Its just a private thing, that is all.

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

Absolutely! Knowing what is going on within me, empowers me. I am able to make informed choices and decisions based on what I need to do to live the life I choose to live, rather than be pulled from pillar to post by something I am not aware of.

i might not like what I am told, or the fact it's not what I had in mind ( pardon the pun!) however I can cake that information and not only empower myself but also my two children under 12.

I am not defined by a label, nor by the stats, but I do recognise and acknowledge it is a part of me and that part, is celebrated with the rest of me. 🙂

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

I agree @Heartworks,I think a diagnosis is very important, totally for carer, wife and person who has MI.

because you know where you are

Hello @DefiantPanda, @RosyColour, @Kurra, @PeppiPatty

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

@PeppiPatty I suppose it all comes down to what medication and what effect it has on you individually 🙂 I'm not against medication at all, just need a break from it myself for a while, but it got me out of a few tough situations in the past for sure. Hello @Shaz51 how are you?

In response to: Does a diagnosis really help?

Re: Does a diagnosis really help?

One of my patients was describing her depression as like living in a room full of rubbish -shit everywhere. When she got her diagnosis she said it was kinda like getting a big box that she could put all the shit in. All the shit was still in the room, but at least she could walk around it without actually living in it. She said every so often, when she felt strong enough, she could reach into the box and throw some of the rubbish out the door. For her, getting her diagnosis gave her some sense of separation from her depression. Hope her story helps you.
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