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Supporting an already Depressed Partner through Cancer diagnosis

Supporting an already Depressed Partner through Cancer diagnosis

This week has been a really tough one.

On Monday I learned that my Mum has advanced breast cancer already spread to the lungs and likely the bones. The prognosis is very poor.

Then on Wednesday it was confirmed that my husband has lung cancer (multiple nodules) which has metastisised from either the kidney cancer he had 6 years ago or the melanoma he had removed 18 months ago. Either way the outlook is bleak. We are now going through the process of blood tests, needle aspirations for a sample to determine the origin of the tumors, bone scans, physician apts to determine whether his overall health is good enough to undergo possible treatment or surgery, etc. Once thats all done we will see the Oncologist armed with all the necessary information in order to determine where we go from here.

I am carer for my husband, who has PTSD, anxiety, depression, alcoholism and a number of other physical health issues. The diagnosis this week has hit him hard, he has had no symptoms, so it was a surprise. Only picked up due to the routine annual scans that he has had since his kidney cancer 6 years ago. Apparently it is not unusual to experience no symptoms with metastisised cancer of the lung.

He is now deeply depressed, extremely vague and forgetful, and is obviously feeling really vulnerable.

I have personally had a really difficult year and a half with loss of an 11yo niece through a car accident, my brother being suicidal, my own PTSD being triggered by a series of incidents. And now, the two most important people in my world (Mum and Husband) are both going through the ordeal of likely untreatable cancer, both within a two day period. I feel like my whole world has come crashing down, and I am struggling with everything.

My mother and other immediate family lives 6.5 hours from here, so it is not easy to be there for her. And I cant leave my husband anyway as he has to be my priority. So many appointments over the coming week or two. So I am feeling very frustrated and useless all round. Its so hard when there is simply nothing I can do for either one of them.

The best I can do is to try to remain positive for both of them. So far hubby is fairly positive, but I dont think he is fully aware of the ramifications of his diagnosis. But I am feeling far from positive myself. So how do I remain upbeat and positive for him, when I am personally crumbling under the pressure? I know how important positive thinking is when it comes to physical health issues, and I guess mental as well. But right now .... I am struggling to find a way through my own misery. Intense anxiety symptoms have once again descended.

Any advice would be appreciated.

@Shaz51 Tagged as requested in Friday Feast. Also the other mainstay in my support team @Faith-and-Hope.

554 replies

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In response to: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

I do not have any meaningful suggestions for you @Former-Member but I definitely hear the pain you are feeling. So much responsibility on your shoulders from so many different angles - it is no wonder you are feeling that anger. What you are dealing with would be too much for anyone Hon and it is not at all fair that you have to shoulder all the burden yourself. I know that sense of control you need over everything is your way of trying to control what is uncontrollable - so you put in so much into what you can control. It is a very, very difficult situation for you no matter which way you turn. When we have had that control taken away from us with everything youo have been through it is definitely more important to control the things you can - and if that means makiing the bed 3 or 4 times a day then that is what you do - I get that. So many feelings for you tonight reading your post and so much love coming your way. So glad your psych is back and can see you soon - you really need that support Hon ...and of course we are here with you as well

In response to: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Hi @Former-Member

I want to tell you a story that I hope will help you in some way.

After my first ten years or so of being emotionally abused and undermined by a tormenting relative or more ..... I didn’t realise I had grown into anger issues. They were anger issues because they were unexpressed anger that had built up across time, chip by chip and indignity by indignity, with no real outlet because I had never been treated like this before and didn’t recognise what was happening. I didn’t relate to being an angry person, but that was what I had become.

The anger and indignity had become “a fire in my belly” and was fermenting into bitterness. I was becoming cynical and uncaring about things that I used to care about, feeling unappreciated, downtrodden, taken for granted, etc ..... and bitterness left long enough can turn to hate.

I had met bullies before, but not ones who pretended to like me, pretend to be like family to me, then sabotage everything I set out to do, and how I was trying to build my life to be ...... and laugh at the misery they caused. People who created chaos to get what they wanted when you were overwhelmed by it and defenceless as a result.

It wasn’t until a friend of mine took me to see a counsellor, who happened to be a church pastor. He asked me to describe people who were close around me in my life, one at a time, and the descriptions I began to give made it very clear to them, and to me, what I was feeling, and why.

He asked me to tell him exactly what I thought of the people who were hurting me .... how I felt about them, and I couldn’t articulate it. I couldn’t find the vocabulary to voice what I was feeling. It felt so disconnected and unattainable. I was speechless.

The counsellor got me

to sit in a chair (I was already sitting in fact) and asked my friend to sit behind me and wrap her arms around me. Then he asked her to speak for me and tell him what I thought of the people who were hurting me. She had no qualms and began to speak out about hating them, hating them for what they had done to me ..... called them mean and nasty and every name under the sun ..... and I was shocked into laughing out loud.

I couldn’t believe what she was saying ..... and then it hit me ..... what she was saying was exactly how I felt. It was everything I hadn’t been able to say, and my laughter turned rapidly into crying, and lots of it. I was crying for myself, for the fact that I hadn’t deserved to feel that way, to be treated so badly across such a long space of time, with my coping ability undermined, my self-esteem shattered.

When I stopped crying the anger began to emerge. I found my voice and began to talk to my family and friends about how angry I was, which is what I am hearing from you tonight ..... the anger was spilling out.

Something else happened. I decided I wasn’t going to put up with any more of the rubbish treatment I had been receiving, and told myself that people who cared about me at all would never treat me that way, so I had to face the fact that I was dealing with people who didn’t care about me, and that this would destroy my happiness, my relationships with my children, my marriage, everything that was dear to me. It was slowly isolating me from my own family and friends.

I plastered on a mask of politeness, and politely said no to all offers. I withdrew what they wouldn’t respect and began to, very politely close my doors to them and treat them like strangers. The politeness confuses them. So did the withdrawal of warmth which was replaced by formality and avoidance of any social event I didn’t have to attend, and when I did attend, I made my excuses and left as quickly as I could.

Meantime I began to search out new friends to replace the family-who-weren’t-like-family with people who did care for and appreciate me.

I used to cook for 2-3 days for special occasions, around caring for my young children, foods that I thought would please them, only to find them bringing food of their own, eating their own, and leaving me with too much to use up, and a ruined family budget. That changed. I cooked what I wanted for my children the sort of foods that I could freeze as family meals ..... plain family food instead of celebratory food, and little by little problem-solved everything into ways that served me and us instead of trying to serve them and theirs ..... not vindictively, just pragmatically.

Gradually my “old”

anger began to dissipate ..... and new anger moments I began to express and do something about more immediately so it couldn’t build up.

I haven’t suffered the same level of traumatic abuse you have, which I feel so much for you ..... so sorry that that happened to you .... but I am

hopeful that something out of my experience with having to draw out and treat anger issues will help you @Former-Member . I would love for something in it to help you too ......

💜😔💕💐❣️

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

@Former-Member

Anger is really horrible to deal with. We often dont want to admit we feel it, but I am glad your psych is looking out for you.

How about Respite, Palliative Care and /or Aged Care? Not sure how old he is?

Please do not be so hard on yourself. Those situations are all major and would mean he would be eligible for something, while you get to visit and give support to yourself and your family.

End of life conversations are never easy. The specialists have probably done their best, but sometimes there are complications. There must be community supports available.

Anger can be a way alerting us to do things a little differently.

Take Care of YOU too.

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

@Former-Member

Acknowledging your emotions is often the first step to being able to sort them out and working with your therapist might help you untangle your emotions around them.

As caregivers we cannot do it all on our own and rather than being evidence of failure, getting help enables us to continue to care.

Your GP and DVA would be able to help as to practical supports that are available. One or two of his mates might be amenable to keeping hubby company while you attend to your own medical appts (or even go out for a hair cut or get the car serviced).

Care giving is a tough gig at times. You matter. You are worthy.

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

@Former-Member , I have a friend who has landed in carers burnout and her doctor has enabled “emergency” extra carer support facilities.

This might be in part what your psych is talking about. My friend is in a different state, but carer services have been quadrupled, so someone comes in to care for her loved one so she can go out and get basic things done for herself like a haircut, doctors appointment, or even a coffee, without having to consider the welfare of someone else, and answer to the constant call (or on-edge anticipation of constant call) of the person in need.

The our-of-character responses you are describing in yourself are what I was experiencing. I was caring for three babies, one under specialist medical care, with my home and family life under constant saboutage in the guise of “helping” me. I can now recognise that as carers burnout ......

I am so pleased to hear you expressing what you are angry about, and it’s not selfish ..... it’s overwhelm.

It sounds like your psych is onto it ..... and will help you match your need for support to the services and provisions available.

They may be able to get faster answers from that hospital, knowing that if you go down they will have two patients and no carer in your situation, and more service intervention will be required than giving more support to the carer now ..... that being you Hon.

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

💜💐 @Former-Member .....

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Group hug ..... ^^^

In response to: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Love and hugs to you @Former-Member 💜💖

I will reply another time, when I am feeling a bit better. ☕️

In response to: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

@Former-Member

In response to: Re: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

happy 71th birthday Mr @Former-Member

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