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Supporting an already Depressed Partner through Cancer diagnosis

Supporting an already Depressed Partner through Cancer diagnosis

This week has been a really tough one.

On Monday I learned that my Mum has advanced breast cancer already spread to the lungs and likely the bones. The prognosis is very poor.

Then on Wednesday it was confirmed that my husband has lung cancer (multiple nodules) which has metastisised from either the kidney cancer he had 6 years ago or the melanoma he had removed 18 months ago. Either way the outlook is bleak. We are now going through the process of blood tests, needle aspirations for a sample to determine the origin of the tumors, bone scans, physician apts to determine whether his overall health is good enough to undergo possible treatment or surgery, etc. Once thats all done we will see the Oncologist armed with all the necessary information in order to determine where we go from here.

I am carer for my husband, who has PTSD, anxiety, depression, alcoholism and a number of other physical health issues. The diagnosis this week has hit him hard, he has had no symptoms, so it was a surprise. Only picked up due to the routine annual scans that he has had since his kidney cancer 6 years ago. Apparently it is not unusual to experience no symptoms with metastisised cancer of the lung.

He is now deeply depressed, extremely vague and forgetful, and is obviously feeling really vulnerable.

I have personally had a really difficult year and a half with loss of an 11yo niece through a car accident, my brother being suicidal, my own PTSD being triggered by a series of incidents. And now, the two most important people in my world (Mum and Husband) are both going through the ordeal of likely untreatable cancer, both within a two day period. I feel like my whole world has come crashing down, and I am struggling with everything.

My mother and other immediate family lives 6.5 hours from here, so it is not easy to be there for her. And I cant leave my husband anyway as he has to be my priority. So many appointments over the coming week or two. So I am feeling very frustrated and useless all round. Its so hard when there is simply nothing I can do for either one of them.

The best I can do is to try to remain positive for both of them. So far hubby is fairly positive, but I dont think he is fully aware of the ramifications of his diagnosis. But I am feeling far from positive myself. So how do I remain upbeat and positive for him, when I am personally crumbling under the pressure? I know how important positive thinking is when it comes to physical health issues, and I guess mental as well. But right now .... I am struggling to find a way through my own misery. Intense anxiety symptoms have once again descended.

Any advice would be appreciated.

@Shaz51 Tagged as requested in Friday Feast. Also the other mainstay in my support team @Faith-and-Hope.

554 replies

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In response to: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

tender hugs my @Former-Member

sorry I mentioned the triplets my friend xoxo

how are you going

are you ok , we are here for you xoxo

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

@Shaz51 @Former-Member @outlander @Faith-and-Hope @Zoe7 Thanks to all of you for your support.

Hi also to @Starta and @Peri - I know you are both struggling badly right now. I think of you often.

Hi Shaz - its okay, you said nothing wrong, although it was terribly sad about the triplets. 😢

My brother and his wife loved the gold plated preserved rose, so I was really glad about that.

It may take up to a month for them to get the autopsy results back as to what caused the death of their baby. They have been told they will hold their baby's remains until they are ready to collect them. They are going to bury her with her big sister, in a seperate section at the base of her grave. So they have to organise that before collection. Emma would have loved a baby sister, and now she can keep her company and they can watch over each other. So sad to have lost both their little girls, it really breaks my heart. They had planned on calling her Charlotte Elizabeth. Such a pretty name. My SIL has been back at work only a few days after her operation. She does cleaning and gardening, so its physical work, and she found it very difficult initially. But seems to be coping a little better now, both mentally and physically.

My Mum has finally received word of an appointment with the cancer specialist in the City, which is an hours drive from where she lives. But its not until the middle of June, so still quite a long wait. But it will require hospitalisation for at least one night as they do tests and biopsies etc. I keep expecting her to back out of it, but so far she is sticking with it. I think it knocked her around a lot with the loss of her impending grandchild. I had hoped it would give her more incentive to accept treatment and live, but that has gone now. I am spending a lot of time phoning her every day trying to encourage her to accept outside help with cleaning, meals, nurses for herself and Dad, etc. So far its falling on deaf ears! But in reality she is not coping and living is becoming much too difficult for her to cope with, without additional help. But I will keep trying. I would like to get down to visit family in the lead up to Mums hospitalisation, but with hubby as unwell as he is, its not likely to happen.

Speaking of hubby. We saw his GP last Thursday. Unfortunately the neurologist had not sent in his report at that stage, so we had to go through everything that he said and pass it all on to the GP as best we could. He too appeared very disappointed and somewhat surprised that the neuro did not want to know anything about it. Anyway the GP after going through all the symptoms hubby has been having has decided that it is almost certain that he is experiencing an immune reaction, and likely autoimmune encephalitis as he did this time last year. Although quite a rare disease, it is not uncommon to suffer a reoccurence of it within 2 years, once you do suffer it. Apparently hubby should have been monitored for it all along since his month long hospitalisation last year. But nobody ever told us and this has never been done. Likely it was the oncologist who gave him the immunotherapy treatment for the cancer, who should have been monitoring it, but I guess he main interest has been the cancer itself. Which is now in remission. As far as he's concerned ... job done! A bit like the neurologist with the Parkinsons Disease treatment.

So the GP has given us a referral to the same neuro in the City hospital who treated him when he was to dreadfully sick last year. That has been sent off and I heard from the neurology Dept on Monday to say that the neuro wants hubby to be admitted for a number of tests to either confirm or rule out encephalitis and to discuss treatment. We have been put in the hands of the bed manager to allocate a bed when one comes available in the neuro ward. We were told it wont be until after Easter, but know nothing more than that. I hope we are given at least a couple of days notice, as I will need to organise accommodation in the city for myself and arrange a carer for Holly. I am so not looking forward to going back for another city stay. I am hoping I may be able to get into the hospital accommodation for out of towners this time. Something I was unable to do last year while there.

So finally we have something being done, someone listening and taking things serious. Oh ... the nurse said that if he worsens or goes into a coma ... to get him to the local A&E asap. I think I knew that one.

So I am really just waiting for word on when, so I can make plans.

Sherry 🌺😟🧡

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

💜🌺 @Former-Member .....

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

hugs @Former-Member

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

I am glad you spoke to GP about the neurologist @Former-Member and hope things work out so you can stay at hospital family accommodation.

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Thanks @Shaz51 @Faith-and-Hope @Former-Member @outlander

Also I see you doing the rounds there @Maggie , always so nice seeing you around. I meant to tag you in my update yesterday, but failed to do so. @Zoe7 I realise you may not be around much for a few days. But I want you to know I am thinking of you and sending you love and care. Sorry that your Lions didnt put up a better performance for you last night. Maybe Parra will do better this weekend? I note that play the Tigers on Monday afternoon. Should win I reckon.

Yes @Former-Member hubbys GP was quite sympathetic and understanding about our feelings regarding the other neurologist. And he has clearly taken it upon himself to get things moving in this other direction as soon as possible. Which is great.

Oh I hope so too @Former-Member re the patient family hospital accommodation. Last year when I was there for 8 nights in total, I was flitting from one accomm to another almost nightly as I chased available rooms. It was during school holidays last year too, which increased the difficulty in getting accommodation. The problem was made even worse by everything being so unstable and unknown with hubbys condition back then. Initially he went in for an overnighter to perform tests and scans which could not be done at our local hospital. Then they found he had encephalitis and needed urgent treatment for that. After a few days they were meant to trf him back to our local hospital for ongoing treatment. Then he developed a large pulmonary embolism from which we nearly lost him, meaning he had to stay longer. So I would check out of each accomm in the morning, only to find that I was ringing around looking for another place to stay for an indefinite period. It was such a stressful time. Fingers crossed this time it will only be the couple of nights expected.

Happy Easter to those of you whom it is a significant time. Enjoy the chocolate treats ...... 🍫

Sherry 🌺💕

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

My boys were very disappointing last night @Former-Member I found it hard to watch with everything else going on. Hope Parra put up a better shoing on Monday - they didn't play well last week either so I am not expecting them to win either. I am just getting through right now but that is all I can do - very much struggling the last couple of days and will need time to get through all this. There is a lot that still needs to be addressed and sorted out but that cannot happen yet.

In response to: Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Re: Supporting an already Depressed Partner through Cancer and Parkinson's Disease diagnoses

Hello @Former-Member

I have not been able to keep up with what is happening with any of the people I normally correspond with...obviously as I am not on here that often these days...

this is looking after me as in I have no choice...

I could not believe my eyes when I read that you are still on such a fast paced merry go round after all of this time...the medical world has much to answer for...

there are some brilliant specialists...doctors...nurses...nurses aides...admin ...caterers...cleaners...and so on...who work so hard with passion...then there are those who assume that they are the most important aspect and should not have to forward on any information...specialists rarely like talking to other specialists...

fortunately and because I always ask my specialists do send reports to my gp...fresh out of university and has finished final year...hopefully staying in small rural town in hills!..

I can only start to empathise with what you are experiencing...you are one patient lady...life of course keeps on throwing more trauma....I imagine that you are still on auto-pilot..

Brave yes...

Feels like the only thing to do without question..

I have been there totally different scenarios...traumas...took it's toll on me even though I was adamant...

You are truly a wonderful loving member of your family and I know that your family want you to take care of you too..

I hope that accommodation and hospital situation sorted out soon and easily...

I say take care and I know that you take care of everyone so...

take care of you too...from all of your many friends here on the forums xxx💚💛💜🐾🌺

In response to: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

big hugs and much love to you @Former-Member
thinking of you lots

In response to: Re: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

are you ok tonight? @Former-Member
would you like some company? im happy to listen or just sit if you like
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