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Supporting an already Depressed Partner through Cancer diagnosis

Supporting an already Depressed Partner through Cancer diagnosis

This week has been a really tough one.

On Monday I learned that my Mum has advanced breast cancer already spread to the lungs and likely the bones. The prognosis is very poor.

Then on Wednesday it was confirmed that my husband has lung cancer (multiple nodules) which has metastisised from either the kidney cancer he had 6 years ago or the melanoma he had removed 18 months ago. Either way the outlook is bleak. We are now going through the process of blood tests, needle aspirations for a sample to determine the origin of the tumors, bone scans, physician apts to determine whether his overall health is good enough to undergo possible treatment or surgery, etc. Once thats all done we will see the Oncologist armed with all the necessary information in order to determine where we go from here.

I am carer for my husband, who has PTSD, anxiety, depression, alcoholism and a number of other physical health issues. The diagnosis this week has hit him hard, he has had no symptoms, so it was a surprise. Only picked up due to the routine annual scans that he has had since his kidney cancer 6 years ago. Apparently it is not unusual to experience no symptoms with metastisised cancer of the lung.

He is now deeply depressed, extremely vague and forgetful, and is obviously feeling really vulnerable.

I have personally had a really difficult year and a half with loss of an 11yo niece through a car accident, my brother being suicidal, my own PTSD being triggered by a series of incidents. And now, the two most important people in my world (Mum and Husband) are both going through the ordeal of likely untreatable cancer, both within a two day period. I feel like my whole world has come crashing down, and I am struggling with everything.

My mother and other immediate family lives 6.5 hours from here, so it is not easy to be there for her. And I cant leave my husband anyway as he has to be my priority. So many appointments over the coming week or two. So I am feeling very frustrated and useless all round. Its so hard when there is simply nothing I can do for either one of them.

The best I can do is to try to remain positive for both of them. So far hubby is fairly positive, but I dont think he is fully aware of the ramifications of his diagnosis. But I am feeling far from positive myself. So how do I remain upbeat and positive for him, when I am personally crumbling under the pressure? I know how important positive thinking is when it comes to physical health issues, and I guess mental as well. But right now .... I am struggling to find a way through my own misery. Intense anxiety symptoms have once again descended.

Any advice would be appreciated.

@Shaz51 Tagged as requested in Friday Feast. Also the other mainstay in my support team @Faith-and-Hope.

554 replies

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In response to: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

Very Difficult times @Former-Member

I am glad you posted to let us know, but dont worry about it as you are very busy. We can try and walk with you, but you are the one doing the work, reading and signing the forms. It is so hard as they become helpless. But it is best he is hospital. Intimate relationships are complicated full of contradictory moments.

Dont forget self care.

In response to: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

Hi @Former-Member thinking of you & Holly

In response to: Re: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

Hi @Former-Member

Sending warm thoughts hoping you are okay 🌹

In response to: Re: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

@Former-Member ....... 💐💕

In response to: Re: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

@Former-Member

In response to: Re: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

Hi Everyone @Shaz51 @Faith-and-Hope @Former-Member @Former-Member @Appleblossom, and anyone else I may have inadvertently missed. Just wanted to thank you for all your messages over the past couple of weeks. Its been tremendously difficult for me, to say the least.

Since I last posted, hubby deteriorated even further. In the end he was transferred to a City hospital for further assessment with a neurologist. So after being in our local hospital for 2 weeks, he then spent 8 days in a City hospital. It was there that they discovered he has auto immune encephalitis (inflamation of the brain). Likely as a result of the immunotherapy he has been on to treat his melanoma. It typically causes inflamation of internal organs. Though they tell me that the brain being affected is extremely rare. Umm, okay, but it obviously still happens. This has possibly been happening since January when he got the attack of Colitis. It was treated with large doses of Steriods which was eventually resolved. But as he was weaned off the steriods for the colitis, the still unresolved brain inflamation ran riot. So this explains why hubby went downhill so rapidly and dramatically over the Easter weekend. And also why he had the several falls in the couple of weeks leading up to Easter. And also his memory lapses and general confusion. Which incidentally, is also a side effect of the immunotherapy.

On a good note, the immunotherapy has had a good effect on the melanoma metastises. His cancer is now in remission. Not cured ... stage IV cannot be cured. But it is currently inactive, not spreading and reduced in size.

Anyway hubby was finally transferred back to our local hospital today after 8 tough days in the City hospital. While in hospital he also developed a life threatening pulmonary embolism, and had some form of cardiac 'event'. So he really has been in the wars. But at least they now know what ails him and can appropriately treat it. So in order to treat the brain inflamation, he is once again on high doses of Steriods. Not sure for how long, but he will need to reduce the dose at some point. And of course he is on lots of blood thinners to treat the lung blood clots. That will likely have to continue for 3-6 months.

Just the last 3 days he has finally been able to get out of bed for the first time in a couple of weeks. And has started to eat again. He is off the IV fluids, and can even stand up with assistance from 2 nurses or physios. So things are finally looking up. He remains very confused and is still paranoid and delusional. But most of the personality changes have settled down and he now has some idea of where he is, who other people are, etc. The neuro was non commital as to his prognosis, saying improvement may take a week, a month, or even no improvement. It depends on how much damage has been done to the brain and how long its been going on.

The 8 nights in the City during school hols was damned difficult to take, moving accomm several times in order to find somewhere to stay. The hospital accomm for patients families were fully booked up, so was not an option. And of course the City is not a good place for me to be. Too many bad memories. So being there on my own was an extremely anxious time, both personally for me as well as the uncertainty of hubbys health, if his condition was reversible and whether he would even pull through. At least he is now back in our local hospital where his friends can visit regularly. And he is improving well over the past couple of days.

But I'm back home again now thankfully, and have little Holly here with me again. A neighbour has been taking good care of her in our absence. Its so nice to be back home again.

Sherry

In response to: Re: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

Wow @Former-Member ..... that was a real adventure within an adventure, and although it was difficult and intimidating, not only have you achieved it, but also a more positive direction has emerged .....

Well done you ❣️ That was huge, and an awesome accomplishment.

I am so glad it is over, and you are back at home with your Holly (kudos to beautiful neighbours 🌷) and your hubby is close by and among friends again.

Hopefully now there will be a little more space for you to rest and restore your energy.

Hugs Hon ..... thinking of you often, and it is sooolovely to hear your good news.

In response to: Re: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

Really good news that your husband's cancer is in remission @Former-Member - you have both come through some giant obstacles that were against the odds, but you both did it to gain a better outcome!! You are much stronger than you think to face up to all that illness and uncertainty in an unfamiliar city environment all alone. Not all could do that. I know the toll it takes and the anxiety that would of afflicted you. Well done, now you deserve some rest. There is no place like home. Sounds like you have a good neighbour as well. That's comforting.

My husband's cancer was terminal and it had spread to the bones - his prognosis was 18months to live 24 years ago. He still has three monthly mild chemo injections to keep it at bay but they call him the miracle boy as it is not anywhere in his bones or other parts of his body now, but localised in his prostate and not spreading. And he also had some similar complications as did your husband, but not the autoimmune disease. Sounds very nasty.

I know how utterly distressing and draining it can be - yes, you are so very strong. Apart from you and me - I am not aware of many people doing that on their on own. You have done a wonderful job in looking after your husband and it has beared fruit - a real credit to you and an inspiration to others. Thank you. I hope you do something real nice for you now and relax some - you deserve it x

In response to: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

@Former-Member
I hope you can now take a little time out for some much needed self care.

In response to: Re: Supporting an already Depressed Partner through Cancer diagnosis

Re: Supporting an already Depressed Partner through Cancer diagnosis

WOW @Former-Member

soo glad you are back home and I second everything that @Faith-and-Hope said in her message too xoxox

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