Borderline Personality Disorder tips for family and friends

Great post, Brodie. Thanks.

Hi Brodie

This information is extremely valid for carers who care for someone with BPD.

No 10: is a hard one to accept, although through education, support and a clear understanding of your own limits it will assist in coming to that decision. Guilt and loss are words that carers are often not even aware of when coming to this point, so support is highly recommend through this stage of grief.

We all want to do the best for the person we are caring for - sometimes mental illness crosses over to abuse or domestic violence. It is often hard for carers to distinguish what is the mental illness and what is behavioural. As we know behaviour can be changed, as carers, the only person we can change is ourselves and our reaction. We need to have clear boundaries, which in turn assists the person we are caring for.

Thanks for raising such helpful info

Hi guys,

There's the 4th Annual Borderline Personality Disorder Conference happening in Melbourne soon. I can find out the details if anyone is interested.

Right now I am really overwhelmed. I am tryjng to support my daughter who is suffering terribly with her BPD atm. I have no time for my other children or myself, everyday at some point I consider calling in emergency services or taking her to the hospital,(if she would go).

She has children and they are suffering as we all are.I look after them sometimes but I have 5 children at home and am studying full-time. We have tryed unsuccessfully to get help several times in the past, I think she needs medication but she wont take it as she is breastfeeding and she doesnt trust herself not to od.

Very difficult times atm, I feel as though something bad is going to happen, but am at a loss to do more than I am. Outside help normally makes things worse and in the end nothing is changed. She still has BPD and the medical profession are useless in dealing with it. There are very little resources in my town. Basically if you ask for help, all you get is people who dont understand the illness and then involving others who just make everything worse.

Hi Deby,

Welcome the the forums.

I can hear that you feel pretty stuck at the moment. It seems you've reached out for help, but have been largely disappointed with services that don't seem to have expertise in MH.

You mentioned that you think about calling emergency services every day. If you feel like that your daughter or anyone is in immediate danger (harm to self or others) don't hesitate to contact emergency services. If your daughter is assessed as at immediate risk, she may be able to be assessed by a crisis assessment team.

Do you have any other supports (family, friends) that you can speak with? Or who could provide you with a break?You got so much on your plate. It's important to also take sometime to care about you. Even if it's just for five minutes to take some time out? There are also family services that may be able to provide you with support. What state are you? I may be able to provide you with more information. There's also ARAFMI, which is a service that provides support to carers.

You might also find these BPD resources provided by @chemonro useful. @isabella as a person with a diagnosis of BPD can you offer any advice to Deby about how to support her daughter? @BananaHammock , I understand that you care about someone with BPD. Any words of advice for Deby?

Hi Deby,

Sounds like a very frustrating position. As mentioned already, don't be afraid to call somebody if you feel your daughter or anybody else is in danger.

Have you talked with her about how you feel, about your concerns? Does she know you're there for support? I find it can be frustrating, when all we want to do is stop their pain, to 'fix' what is going on currently for our loved one. Unfortunately any change needs to come from within, all we can do is remind them of how much we care and offer our support - often it will be pushed away or even not believed, and that can be hard to accept, though try to remember it's not about you when that happens.

Stick around the forums, even if it's just to vent sometimes, it can be very therapeutic and lets you know you're not alone. The best thing we can do as carers for someone with BPD is to take care of ourselves (mentally, physically, emotionally) and that will keep us strong and clear minded.

Take care,

BH

Yes please! That would be wonderful.

Hi Deby and CherryBomb,

Uhhh ... I really don't know what to say.But I will try.

Deby - I am managing my BPD secondary to my ADHD atm with my psychiatrist medication wise and with my psychologist. I diagnosed myself with BPD and asked a long term psychologist what he thght about my diagnosis ... he thght I might be onto something. One visit, 1st visit with my psychiatrist confirmed it and then the ADHD.

A few things that come to mind:

1. in my case and most clinicians/literature believe that bpd is extremely difficult to treat,
2. a lot of professionals 'shy away' from us as we are difficult by nature to treat
3. Issues such as ADHD/Depression etc that respond to medications are generally treated first to try to stabilise the 'easiest' disorders ... they then look at meds or therapy for the BPD. But we all respond differently to medications.
4. I have a 'triage' of professional support - GP, psychologist and psychiatrist. however my family and friends, who know what is going on, don't really help me or know what to do .... so day-to-day stuff is up to me.
5. Reading books/forums and blogs have helped me feel not so isolated:

• "I hate you/dont leave me" and "Sometimes I act crazy"
• This site: http://www.psychologytoday.com/collections/201112/i-hate-you-dont-leave-me
• This was really good - the first one I read - Sometimes I Act Crazy: Living with Borderline Personality Disorder
• Marsha Linehan created DBT (as opposed to CBT) for BPD and only recently came out as BPD herself - http://www.linehaninstitute.org/index.php

Getting away from the 'theory' and more on my experiences which may/may not work for your daughter Deby:

• Self talk is helpful for me - trying to be positive
• I HATE CHANGE so people think I am a control freak - but if I know something is going to happen, I can prepare for it. IE if my partner goes away for a weekend/a month I need to know ahead so I can visualise and prepare myself for the change
• I am really good at emergency situations and moments of distress as I can disassociate myself from the pain of others and am really practical, focused and calm
• Some days just gettiing out of bed, having a shower and then laying back on the bed for the day is enough. I don't stress anymore - small goals and being nice to myself
• I am trying not to drink as much as I used to as my ablitity to leave myself is stronger when I have been drinking every day
• I feel invisible when alone .... like I don't exist, others will forget me or hate me which makes it hard to 'reconnect' with people/friends/collegeaus either by phone/text/email or f-f. So I get scared of getting/reading a txt etc.

I am actually all of these in different variances: http://www.psychologytoday.com/collections/201112/i-hate-you-dont-leave-me/the-many-faces-borderline-disorder

But mainly I am:

• So petrified of being abandoned again that I over compensate by being independant and see my life as a chess game - I need an exit strategy or be able to see 3-4 steps ahead. It drives people nuts.
• Some people see me as manipulative - i do too sometimes - but it's a control thing
• I am trying to learn not to accuse people (partners mainly) of doing something like moving a washing basket when in fact I did it but did not remember
• I have about 10 memories from childhood up until around 28/29 then sketchy from then on.
• Frequently feel spacey, unreal, or out of it.
• I have no idea of who I am so rely on others perceptions and cues ... I look in the mirror and don't recognise me.

Finally I think of exit strategies for life on a daily basis but only as a way to relieve the pressure of living - I don't follow through with it.

I wish that my partner of 18 months would read up on BPD and ADHD so that he could help me manage/recognise/grow. But he won't. Not many people do.

I have done a lot of reading/research and buying of books on BPD and am starting a BPD DBT group therapy course in a few weeks - instead of admitting myself as an inpatient for four weeks. It's a deal I made with my psychiatrist.

Deby - have you had the time (??!!!!) to read how to manage your daughter? Perhaps start with a small issue that you notice with her and try some techniques on how you communicate with her. But really, unless your daughter is willing to understand what, when how and why, there is nothing you can do. Except manage yourself and your emotions ...

Sorry about the book.

I love typing/writing.

My heart goes out to you as I have been dealing with similar stuff for the last 4 yrs which isnt a patch on what you are dealing with. My daugher was told she had BPD when she was 14. The psychiatrist would not diagnose it though saying that he couldnt until she turned 18. Reason given was that many of the behaviours could be attributed to normal adolescant behaviour. I found out later that this was wrong.

I did what any parent would do and read any information I could get my hands on. The problem is that the disorder was only discovered in the last 25 years. When my daughter was first told she had it I found that there were many professionals who had incorrect information about it and some even didnt believe it existed and that it was just a title for something that they didnt know what it was or just normal naughty teenagers. Services are improving but slowly.

Medication alone cannot cure BPD. It isnt curable but with good treatment can be managed. Medication can only help for some symptoms like anxiety or depression. But this can be problematic because in my daughter's situation she will misuse her medication for self harming purposes when experiencing a panic attack. So she is now on staged medication so can only pick up a weeks worth at a time which is not always possible because she sometimes cannot get out of bed. She decided to self medicate on weed instead which has made things worse for her financially and mentally. She is now 18 and living in student accommodation. She is 2 months in arrears for her rent and her centrelink was cancelled. I spoke to her current psychologist in desperation of what to do and was told that the changes have to come from her. I cant force her to do the things she needs to do. Unfortunately she needs to hit rock bottom before she realises she cannot be rescued by anyone but herself. Hard Yakka really especially as a parent. So I can only imagine what you are going through!