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Son (22) with schizophrenia

Son (22) with schizophrenia

Living with someone who suffers from schizophrenia is very difficult. Even medicated it seems he lives in a different world and stares a lot whilst smoking cigarettes like a steam train.
Sleeps during the day, spooks around at night.
Any advice about healthy diet, less coffee and smokes, is ignored.
He will never live a productive life.
We've lost family members close to us on the way because of his behaviour and them not understanding mental illness.
Ofcourse I worry about our future.
I need to be single as no other man can live with us.
I need to work full time to provide a roof over our heads and pay the bills. Without me, he'll be homeless, jobless and suicidal as his paranoia would kick in, specially when he thinks the meds are only given to him as he is a guinea pig and 'they' are trying to change his DNA...
I've always wanted children but no one never told me how tough it would be if a mental illness strikes the 'Brady bunch' family image with a thunderbolt.
A medal to anyone who cares for someone suffering mental illness.
They need all the help and support they can get. They deserve better too. Mental illness you don't see from the outside, my son looks like a healthy good looking young man but has no future. Maybe with support and someone pushing him out of his shell but some have tried and given up.
I have given up a marriage and another 7 years old relationship and noe bought a small unit to care for my son, indefinite. We have no other family here as Migrated here in 1987.

My love for my son is very deep and I am so proud of him he went to hospital last year and still takes his depot shot every month. However, I feel anxious and worry all the time. He has applied for DSP (disability pension) but he tells me if he gets rejected, and 'they' want him to work, he will stop the depot needle. It takes his motivation and energy away, He knows he can't work 8-5pm, neither with or without meds.
My good sense of humour is slowly fading but where there's life, there's hope, right?
Thanks for reading my story.

470 replies

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In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hi @Grasshopper3 ..., 👋

Wishing @mohill a speedy rrecovery too.

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hi @Grasshopper3 @patientpatient hope things steady with the Colgate men.

How is your little dog patientpatient?

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

Hello @Former-Member, the 'little' (26kg) dog is quietly snoozing on the couch. Son is fast asleep too.

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@patientpatient@Former-Member@Faith-and-Hope@Former-Member@eudemonism@Appleblossom@Former-Member@Shaz51 and many more ....

Happy Easter everyone!

To continue with my story I must tell you life is pretty good at the moment living with my son.

We have started to socialize more, I keep pushing him little by little to meet people.

Taking it day by day. Trying not to think about our future. His new Psych has given him new meds on top of his monthly depot and that seems to work, as he falls asleep much better now and less dopey during the day.

I was so proud of him when we went to QLD. My daughter surprised us. She didn't get engaged but got married! She said she didn't want to worry me too much as I already have enough on my plate, so she didnt tell anyone. It was such a relaxed country wedding! just gorgeous, wish you could see our photo's!

People came from all over Oz, including Uncle and Aunty we havent seen for long time.

My son got up and gave them a hug, saying he hasnt seen them for a while. I did the same.

We repeated this for the four days they were in QLD. We saw them off at the airport too.

There was not a lot said though. We both felt we got ignored most of the time. The Aunty cried a lot during the wedding party. It seems they are dealing with a lot of stuff themselves.

I have had long talks with my son, he is still adamant he does not want a relationship with them, looking at how they behaved towards him. He says he has nothing in common with them.

I feel they are grumpy with me too, now they dont see me anymore. I know I am still welcome there, but I have tried in the past going there without my son (as he not welcome). It just doesnt feel right. I went there for birthdays, xmas, and I feel my time off is better spent with him. My son just hasnt got any social skills to start conversations with anyone, so while I'm at work, he's on his own. If I spent my time off somewhere else, he will be on his own even more. I have tried inviting them to our new place, but they refuse, they don't want 'any trouble'....

My son and I have been living together in our villa for a year now. I felt becoming more and more isolated and pretty lonely. I was dealing with a 7 yr old relationship breakup too and overseas parents with major healthissues, working full time saving up for our trips, paying mortgage and bills that come with it.

So my New Years resolution was too socialize a bit more, where ever i can. I have been inviting good friends over, one in particular who takes my son for volunteering jobs with the Salvo's.

I also have good neighbours that pop in once in a while for a cuppa or a glass of wine.

I am more on the phone at night too, I have my phone on loudspeaker so my son can join in whenever he wants (mainly overseas family or his sister in QLD).

We have also contact with my sons nanna again, who we now visit regular. My son hears a lot about his dad in his younger years and its almost like he is fitting missing pieces in a puzzle.

Nanna tried to help him (her son = my sons dad) after we divorced but she nearly ended up with a heart attack from his abuse. She now understands why we broke up. It is impossible to live with the man.

He now lives in the Philippines, where he is treated like a King, so he says. We have very rarely contact with him.

There is also someone 'special' in my life again, someone I met 9 years ago and we have met up again.

He is trained in dealing with Mental Health issues, and my son and him get along, although my son still doesnt know what to say to him when I leave the room, so try to avoid leaving them together....

We have organised to go on a camping trip, he will take his 3 kids plus his daughters boyfriend, and I will take my son. This is a courageous thing to do, both on my son's and on my friends part.

Fingers X it all goes well and we have a relaxing time with all of us....We can swim and use kayaks and quad bike if we get it going, so there's plenty to do.

Then next week..... flying out to see my folks, so happy my mum made it. She will turn 75, and cannot wait to hug her again. My dad will pick us up from the airport, which is a big ask as he also has healthissues but you can't stop him!

I get teary just thinking about them, we have so little time left and the distance is such torture for us.

Meanwhile, my son is still the same, smoking a lot, drinking cups of coffee (decaf) and drinking beers whenever he can. He has written 5 pages about how he is a mind control victim, and they (Govt, Police, Military) are out to get them as he knows about the 'birth certificate fraud'.

It is his reality and i have listened him reading it out to me a few times now. I encourage him to write it down, to read it out, to keep it so he can read it back some other time.

After we come back from our overseas trip in May, he will try to change his meds again, a hospital stay will be required.

I'm not trying to think about it now. I can feel my heart hurting already.

Thanks for reading my story guys, I hope you get something out of it, my way of helping other carers as this is the toughest job I have ever done.

Lots of love,

Grasshopper3

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3

What a surprise about the wedding ... how very thoughtful of your daughter.

MI can be isolating, particularly in a crisis and it is lovely that you are socialising more and in particular, that you have someone special, hope the weekend goes well.

Will be thinking of you as you head back to see your folks. Trust your son copes just as well as last time.

I am not good with words as others are, but I am here and listening.

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

What a surprise about the wedding . @Grasshopper3

yes one day at a time is good my friend xx

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3 I'm glad to hear you are working it out and trying to make it work for everyone.

I can relate to some of the issues your talking about your son having. It's not easy living with mental illness. I've struggled for two decades with problems now.

I always feel there is something missing. Something is not quite right. Don't have everything I need. And I desperately try to counteract this. In lots of negative ways. I'm 32 and was diagnosed at 19 but think it started really developing in my early teens. And there was probably. Warning signs and factors which contributed. Much earlier in life.

Each day. I'm struggling to provide myself with my needs. To do well. To be happy, healthy, safe and live life easily. And it's very hard work. I'm predisposed to other problems on top of my illness. Co morbidity. And so are the people in my life. So I'm not just dealing with my issues. I'm dealing with everyone's issues. Very frustrating.

There's never any signs of negativity from other people. It's all perceived. But it all feels real to me that so it makes it that much more difficult.

It's good to read the prospective of a parent. Of a mentally ill child. As it partially helps me understand what my parents had to deal with. When raising me. And when I've spent time with them. I dearly love them and care very much for the rest of the family. However, my illness and symptoms involve inability to build and maintain proper relationships. Blunted emotions. Distorted perception on reality. Detached from reality. Paranoia. (that always involves others) and yea. It's an ongoing battle.

Eude

In response to: Re: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@eudemonism

Thank you for your reply. I'm glad I asked you for your opinion b4 we left.

I am always a bit scared I lose my son's trust, it's easily done when his reality is quite different from mine.

Thats why I make sure I stick with him, and let him talk and i learn so much from him.

I always thought it was a shame he fell thru the cracks at school, just not mainstream, has different ideas about a lot of things but no one listens.

Is that how you experienced the schoolsystem?

Cheers,

Grasshopper3

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3

I had a tough time at school. My mind was always elsewhere. Concentrated on the girls I'd never get. And was starting to develop bad habits out of school hours. And took my childhood and younger life for granted. There was several things that happened in my school years that haunted me for decades afterward. It took me years to accept and deal with them.

I think I knew I was always a little different from the other kids. But there was nothing I could do about it. No matter how hard I tried. I learned about a lot of stuff the hard way. And lost a lot of good opportunities.


There was my home life. My family life. And my school life. My home life was my sanctuary and my safe place from everything bad that went down. But eventually my parents ousted me. And made me fend for myself and made me deal with my problems on my own. (but they never abandoned me luckily even though they had reason too)

How old is your son? Oh that's right 22...

Yea when I was 22 I was craving to get my life together. I was craving a good lifestyle. I was craving for my life to be complete. I was craving to have it all together. 35,000 thoughts or day? I heard that somewhere... So yea, I had all this stuff going through my mind... Persecution stuff and grandiose stuff... It would always involve other people. From my past, present or future... And I was that wrapped up on all of it. Getting my life together became impossible.

It helped that I had the opportunities and chances to get my life together and make something of my life. Even though it didn't work. I'd force myself to go through with day to day stuff. But ultimately. I would up wind up being. The quiet, shy, sheltered, sensitive, recluse type. Troubled, bothered and so on. And really struggling to provide myself with my needs. Social needs, my need for belonging, meaning and purpose, then actualization of what I had in front of me. I still suffer greatly even though I'm fully medicated and fully involved with all the support services available. Life is a struggle. And I resent it...

What helps most. Is feeling accepted bye the wider community. And being able to wrote on writing has been a saving grace. Plus consider, I was dealing with mental development into an adult. And my attitude and mentality was changing. I can now reflect upon that.

Eude.

So that shall be so

In response to: Son (22) with schizophrenia

Re: Son (22) with schizophrenia

@Grasshopper3

I had to get into touch with the inner child within me. The inner child who had a dream to become a great writer. I knew I was different. But I also knew what I wanted to do with my life. And it wasn't anything like what society expected. Or other people expected. It was what I knew I could do. And what I knew I could be good at.
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