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Fluttershy1Senior Contributor
Feeling lost and confused, just wanna feel alright I want things to be the way they used to be. I keep getting let down by ndis support workers aswell and it’s breaking me. I’ve been to ER twice this week and I was trying so hard not to go.
changes are just triggering all together. It’s just hard. But still going with my coping skills.
am safe
In response to: Feeling not so great
Fluttershy1Senior Contributor
I did a thing on it I just tagged you it’s just a post above @Captain24
In response to: Feeling not so great
MissGremlinSenior Contributor
@Fluttershy1 i get heart rates in the 180's for days at a time, it's absolutely horrible.
Nova is such a cutie 😍
In response to: Feeling not so great
BunniekinsSenior Contributor
@Fluttershy1 it sounds so debilitating. i'm sorry that you suffer from it Fluttershy1 :(
In response to: Feeling not so great
Fluttershy1Senior Contributor
It’s horrible @MissGremlin - I’m even on medication for it. I’m a week out of ER
hai @tyme - hope you are well, missing seeing you around
In response to: Feeling not so great
Fluttershy1Senior Contributor
@Bunniekins - it can be at times, but it’s managed with medication, but flare ups are horrible
In response to: Feeling not so great
MissGremlinSenior Contributor
@Fluttershy1 medications haven't worked for me and I'm still yet to actually have a diagnosis other than inappropriate sinus tachycardia. That amazing sweet, you're doing so well.
In response to: Feeling not so great
Fluttershy1Senior Contributor
@MissGremlin - wanna know storytime about how it all started with mine
In response to: Feeling not so great
MissGremlinSenior Contributor
@Fluttershy1 i always love a good story time, feel free to share sweet ☺️
In response to: Feeling not so great
Fluttershy1Senior Contributor
@MissGremlin - it all started when I was 18 take in mind I’m only 25 now.
I started off with Wolff Parkinson white syndrome which is Wolff-Parkinson-White (WPW) syndrome is a heart condition in which a person is born with an extra electrical pathway between the upper chambers (atria) and lower chambers (ventricles) of the heart. This extra pathway can allow electrical signals to bypass the heart’s normal conduction system, leading to episodes of a very fast heart rate (tachycardia).
so I went to a cardiologist for it, we tried medications and I was still having high heart rates, I was in and out of hospital a lot with heart rates of 200 and over, not being able to breathe with the extreme heart rates. Ended up having a cardiac ablation during covid lockdown in 2021 which was really scary because there was so many risks to it, but I made it out, they ablated 1 extra electrical pathway but the other one was way too close to my heart chambers and artery. I ended up having a code blue because I had a heart rate of 215bpm when I woke up in recovery, which was scary for mum and me because she got kicked out of the room because they needed to give me IV fluids & make sure I didn’t crash on them. But I made it through, another 6 hours though in the hospital which I wasn’t impressed about.
went back to the cardiologist because I was still struggling with my heart rate and all of that had the holter monitor, echocardiogram, ecgs and I had a whole heap of more tests and I ended up with inappropriate sinus tachycardia & POTS, still am struggling with it because I’m still not on the right medication but I am now on blood pressure medication because my blood pressure is low and when I go from sitting to standing my blood pressure just drops and heart rate goes up which is really horrible feeling. But my blood pressure & heart are now on medication which will be with me for the rest of my life but it’s still not the right medication which is really annoying.
so there’s my storytime
In response to: Feeling not so great
MissGremlinSenior Contributor
@Fluttershy1 I just wrote a long reply and lost it all 😞
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Help us push aside the stigma and discrimination surrounding complex mental health and change the way people talk about, and care for, mental illness.
SANE acknowledges the Traditional Owners of Country throughout Australia and recognises the continuing connection to lands, waters and communities. We pay our respect to Aboriginal and Torres Strait Islander cultures; and to Elders past and present.
SANE values diversity. We are committed to providing a safe, culturally appropriate, and inclusive service for all people, regardless of their ethnicity, faith, disability, sexuality, or gender identity.
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