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New Book: Living With Schizophrenia

New Book: Living With Schizophrenia

Hey Forums Family!

I came across this talk on the radio on Saturday.

For those interested in leraning more about living with schizophrenia, you may be interested in interview on ABC Radio with Margaret Leggatt and Mary Ryllis Clark.

Start listening at around 2:44:58

https://www.abc.net.au/listen/programs/melbourne-saturdaymornings/saturday-mornings/105919134?utm_content=link&utm_medium=content_shared  

I believe the book mentions SANE as Margaret Leggatt is a co-founder of SANE.

If you feel you want to purchase this book, SANE has been able to secure a 20% off discount code: LWS25

I'm interested to hear if anyone has read it. I've been told it is very helpful for carers/family members of people with a schizophrenia diagnosis.

47 replies

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In response to: New Book: Living With Schizophrenia

Re: New Book: Living With Schizophrenia

Hi @unreal im sorry uve experienced that

As soon as is read the number of presentations i could sense and feel inside me the dismissal

I have also had many ed presentations in the last 18 months...closer to 50.

I may indeed be seeking attention. Or love. Or honestly therapy

.I have not been able to have someone to hear me out.

Imagine if they offered u one session with a psychologist or to really explore why u were distressed or worried.

So did they write four and it was even more?

I shudder to think how many times ive been

In response to: New Book: Living With Schizophrenia

Re: New Book: Living With Schizophrenia

@EternalFlower I never so much had a crush but put psychiatrists on a huge pedestal of knowing…. Over 40 years ago. There is so much social status, around the health profession, but actually some psychiatrists feel lower in status than other specialties. Now I have my own studies and see them more as people, but they can have a lot of power in people’s lives when they’re vulnerable.

I am guessing your sister has not been caring or helpful. Sorry that is the case.

@unreal hello

you are right, the threads can be intertwined.

I read a bit of your story. It’s a hard road.

In response to: Re: New Book: Living With Schizophrenia

Re: New Book: Living With Schizophrenia

I mean every single person that voluntarily goes to see a doctor is seeking attention. That's why it's called medical attention.

It's stigmatised in mental health as being something that it's not, time wasting, faking.

It's incredibly ignorant of mental health professionals to not see it for what it is, and our shows a level of privilege that many fail to recognise in themselves

The point I was making though, was not that the records show there was nothing wrong, but rather the records show something IS wrong, but the hospital is not reporting it in the discharge summaries.

For example (from memory) I had gone to the Ed with chest pains. The doctor notes T wave inversion on lead 3. Explains it as the leads were old.

The ECG notes T wave inversion on inferior leads 1, 2, 3, and uvF.

T wave inversion on its own is one thing, but dynamic changes in T waves coinciding with chest pain and struggling to breath?

On every occasion there's been the same or very similar story. One of the ECGs was conducted in a GP surgery, same thing.

There's more to this too, of course, but it's against the rules to discuss medical negligence from gov hospitals

The reason I'm highlighting the MH issue here, is that a psych mentioned it in his report for the sole purpose of making me look bad and discrediting me.

I know how crazy that sounds. But I can't fake an ECG. Certainly not multiple ECGs

In response to: Re: New Book: Living With Schizophrenia

Re: New Book: Living With Schizophrenia

The psych himself was disagreeing with medical truth- prob not for the first time that has happened. Mental health system or mental gaslighting system?

@unreal thank u for ur wise words on how manipulation is wrongly attributed when ppl go to a dr. The need for attention is not itself bad. Medical attention or support or even reassurance are all real reasons ppm go to a dr and are not bad. It is right to do so. Its the shaming part I hate.

I hate the way so called professionals have abused my trust and made me look crazy and actually used me for their own ends.

In response to: Re: New Book: Living With Schizophrenia

Re: New Book: Living With Schizophrenia

@EternalFlower

Yes exactly.

The problem is, it's systemic, is literally built into the system. They do not want people taking up time and resources so then people will be discourage from reaching out for help.

Then there are the people within the system that take pleasure in, let's call it bullying, those that they perceive to be weak and or less than. They're easy targets and who wouldn't believe a doctor over a patient, a mental health patient no less?

Doctors often write journal articles or studies, etc.
If you're ever curious about where that doctor's interests lie, look up their publications. You might find it a little curious
A trend I have noted in some doctors is that they have written about, or been part of a study, looking into violence against staff from patients, or violence and bullying from senior staff towards junior staff.

It's not a huge sample size of course, but to me it's definitely noteworthy.

In response to: Re: New Book: Living With Schizophrenia

Re: New Book: Living With Schizophrenia

I personally feel that is noteworthy @unreal if that is an area of their passion enough to write and research

I have been in the ed many times and also was a part of a bpd program. I found my experiences so distressing I nearly died.

Thank Gd i survived. I wander if ur intelligence or knowledge made it harder for u.

For some reason its fairly backwards in spaces like an ED Our ability to question is not respected. But its the quality that keeps us alive.

Looking forward to hearing more of ur experience

In response to: Re: New Book: Living With Schizophrenia

Re: New Book: Living With Schizophrenia

@EternalFlower

I hear you on the distress and how it affected you. Many of the interactions I've had with MH staff have left me feeling beyond frustrated, helpless, unheard and worse.

The thing is, they know they're doing it. The staff, the hospital management, it happens all the time, to so many people, it is toxic

You're right about not being respected.

The "healthcare rights" that we are supposed to be afforded are just meaningless as they are rarely considered and are frequently abused.

😠

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