@AuntGlow i had a really good day today, after another shocker yesterday. Today was the opposite though the first few hours were still hard going, by 9:30am i was up and about fixing things and spending time with my wife.
Late this afternoon we had a 'staff' meeting with the main people with work our Down Syndrome Daughter, who recently has moved into her own home. Four dedicated women, most with years of experiences working with Down Syndrome, have made the transition go almost smoothly so far. and we are rapt.
Our daughter, who suffers from C.P.T.S.D from before she came to live with us at 5 years of age, and is 38 now, can have unpredictable behaviours when things go wrong. Made more complicated by her very limited vocal ability. Where both both her limited intelligence, as well as her difficulty speaking because of the shape of her tongue, make figuring out what the issues might be very hard at times.
In the past we went through workers like hotcakes, because they found it so hard to work with her for she would not communicate. Usually because they would treat her wrongly so she would withdraw and become uncommunicative, or worse aggressive, when they really ignored her needs. We did not tell them, but we knew, for we know our girl.
Shocking how many workers are in it for themselves. For the women who stuck with her in the end, got to know our daughter for the beautiful person she is. For once someone gets to know our girl they will love her. For she is a beautiful person. But when people treat her as irrelevant, those very people become irrelevant to our girl, and she will become impossible to work/live with.
We have learned to see the sign in our daughter, for she may not talk, but her mood will tell us, and how she behave there in, will tell us what happened. This way we can relatively quickly figure out if a person is 'suitable' to work with our girl.
Consequently two of the women working with her have done so for many years, albeit 1/2 day a week for most of that time. For not only are they good workers, they love her and she loves them, that is all we really look for. People who care enough for her to assist her living her life to the maximum of her ability with out stressing her but making sure she enjoys her life.
In the end, after working with her for many years, and our girl learned to trust them, we could utilise these women and their families, to help her get over her separation anxiety, she suffered from for many years. And this has now progressed her living in her own home. Which we saved for since soon after she came to live with us, for an uncle left her a nice sum of money when he died, which we invested for her, adding the part of her disability pension she did not cost us. And now, together with another couple who also have a Down Syndrome daughter, we bought her a house. And although the other girl is not planning to move in with our daughter yet for some years, we bought this house anyhow so it is all ready for when she does.
The staff meeting this afternoon was to compare notes, and informing some workers on how to best deal with some of the harder issues our girl can demonstrate when things have not gone right. For this can really be hard to figure out, and only when you know what to look for, and how to deal with it, will resolve happen, otherwise difficult behaviours can quickly escalate into a crisis.
This happened last week for some workers would not give her enough down time to process activities, and then would hand her over to the next worker, who then would have to deal with her escalated stress levels, not having any idea what had happened before she came to work, and how come our girl is behaving like she is. Luckily some of the workers are already aware, and basically figured our girl out but the new worker did not know how best to deal with such a situation and had copped the wrong end of our girl a few weeks back, stressing from the busy days she had before. We hope things will continue to go well and these smaller details will get ironed out.
Overall we are both so happy with this team, and really hope the new comer will warm to our daughter to want to continue working with her. For we do thinks she is excellent, and our daughter likes her a lot, but she seems very insecure and a bit intimated by the more experienced workers. She seems unsure if she wants the job, but has almost finished her three months probation. So we really hope so, good workers are almost impossible to find.
Have a nice day.