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Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Hello.

First off, sorry if this is the incorrect Space to ask this question in. I wasn't sure where it belonged.
Secondly: I'm OK and I don't mean to offend any mods with this post.

A few days ago I was involuntarily brought to hospital for daring to mention the "s" word to a help line service. I won't go into the details of that because that doesn't matter here.

I've noticed that when being marked by the system as a mental health patient, people - mental health practitioners - treat you very differently, almost like a child. Even their tone of voice changes.

The moments this usually happens most is when I ask questons.

For example, I just got an unsolicited follow up call from the hospital after being brought in. The first question I asked was "How did you get my number?" as I didn't remember anyone asking for it at the hospital. The MH team lady just replied "Yeah..." in a kind of baby-voice before taking the conversation in another direction. This happened a few times - I'd ask a question, and they'd reply "Yeah..." and move on to something else.

Same as when I was at the hospital. I'd ask a nurse politely when I would be seeing a doctor and they'd reply "Oh, don't you worry abou that". When I tried to go for a walk around the ward to stretch my legs I accidentally wondered into the wrong section and a male nurse yelled at me "Oi! Sit back down!".
I feel that if I were a "mentally healthy and normal" adult there for any other reason I would've been treated differently. Eg: "I'm sorry I don't know the answer to that" instead of "Yeah...". Or "I don't know when the doctor can see you" instead of "Oh, don't you worry abou that". Or "Hey sorry mate you're in the wrong area, could you go back over there please" intead of "Oi! Sit back down!".

I have another phone call coming up soon with people from the MH team. I don't want to be talked to like a child again. I'm a middle aged man and would like to be talked to as an equal, not an invalid.
Would anyone have any advice on how to achieve this?

7 replies

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In response to: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Hi Jlol,

Thank you for sharing your experience with the inpatient staff and the new aftercare program the health authority has initiated.

I am sorry that you were made to feel powerless, like a child, and not in control of your healthcare. That is the total opposite of what health care is supposed to be about.

Nearly all of the hospital workers are not trained in mental health, which becomes alarmingly obvious to those who seek that kind of support from them. The truth is the hospital was never meant to be for mental health, only physical health, because nurse and physician training has one to zero courses on mental health. I could see a potential avenue for advocacy, we should all be writing letters to the big unis to demand they put a whole semester's worth of mental health into nursing and med school. It's not an excuse to be rude or weird, but it does provide a reason why they become that way. They lack the soft skills and the psychiatric crews are burned out.

You received a phone call as part of their aftercare program. As all medical therapies are, it should be totally voluntary - so you should have been asked upon discharge if you wanted to receive follow up. In any case, you can still decline. You have as much of a protected right to not access health care services as you do to access health care services. They got your phone number from your patient chart, which always has your phone number, address, next of kin names and numbers etc.

I recommend, on your next phone call, telling the worker exactly what you've said here. They could use the feedback from patients, and if they were smart they would use this feedback to drive changes and updates to their programming.

You are also more than welcome to report your experience to the Patient Quality team. Every health authority has one, you can try searching "(your health authority) + patient complaint". If need help finding it, I am sure one of us could help you search it up.

I can also understand your disappointment with the help lines, whom are mandated to report to the police when someone mentions the S or H words. It's a mandate made from a good place, but it can and does act like a major deterrant to people calling in for help. No one wants the police on their doorstep. The help line is also supposed to give you a heads up that they made the report or that they are going to because they have to. It's not supposed to be a surprise like that.

I also recommend making use of your communities social workers. With a referral from a physician, social workers are covered under medicare. They have ample information on supports that might possibly assist you with your particular needs. They also are required to have more mental health training as an ally to health care.

I am sorry to hear you were feeling unwell, and I am sending you positive vibes for better days ahead of you.

In response to: Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Thankyou @YourLocalMHGuru

When you said "The help line is also supposed to give you a heads up that they made the report or that they are going to because they have to" are you able give me more info on that? Because they definetly didn't. Do you know if this is documented anywhere?

Many thanks again for your reply. I think I will tell the worker about what I've said in this post. That's a good idea.

In response to: Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

You are welcome, @Jlol

When you called, did they go over their "disclosure regarding confidentiality"? Or when you mentioned the S word, did they mention they have an obligation to report? All health professionals have a mandate regarding limits to confidentiality. Child abuse, domestic abuse, suicide, and homicide are all trigger words that the limit of confidentiality has been breached and they have a duty to report. I am not sure if you would find that information online, as it is typically part of an employee's or volunteer's training. If you call them or another help line - ask them about their duty to report to police and they can explain to you where their particular agencies limits are. The duty comes out of fear for someone's safety and best interest to get them some help. The help lines in my home country all lead the conversation with our disclaimer regarding duty to report and, if you didn't hang up, they tell you that they are going to have to make a report. Australia would have the rules on reporting but maybe some are not going through that confidentiality speech before the call when they should be. In Australia, it is called "Duty of Care and Confidentiality". Plug that into your search bar and have a read about what this entails. Your worker must have been really worried for you, so I hope you do not feel deterred to make those calls again when you need to but better armed about their limitations. Talking about a severity level might help them better understand you are not at the level of involving police, but be forewarned they can bypass this if they feel truly concerned.

In response to: Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Thanks @YourLocalMHGuru
No, they didn't go over any disclosures, though I suspect it would be one of those "press 1 to hear our disclosures" things while you wait.

They didn't say anything when I mentioned the 's' word either. In fact I didn't even say the 's' word. I said the phrase "sometimes work makes me feel like I don't want to be here".

I haven't found anything on their site apart from one line saying that they would call emergency services if they thought you were going to harm yourself. However, it didn't say anything about them telling you first.

I rang again afterwards and asked the next person I spoke to if they could give me their policy, but they refused saying "it was too long to read out over the phone". I asked if they could email it to me and they said no.

In response to: Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

@Jlol @YourLocalMHGuru

I am doing the cert IV in mental health peer work right now in Western Australia.

We have to inform the client about confidentiality and the exceptions.

Basically everything talked about is confidential between myself, the multi-disciplinary team and the client. Except;

1) If the client is at risk of imminent harm

2) Someone else is at risk of harm

3) If the client gives informed consent (the client is first informed of rights, options and consequences.

4) If the records are subpoenaed by a court of law

In response to: Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Hm. That is really strange to me. I worked for a crisis line in my home country and we were taught how sensitive involving the police is, so we were specifically taught to be very very transparent about it. Otherwise, people wouldn't trust us. It would be up to the individual when they think the line has been toed, but all agencies have the same duty to care and confidentiality so just be advised of that. Good for you for doing some digging around. Maybe we need to write these help line agencies to encourage them to disclose the confidentiality limits of the call.

In response to: Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Re: Looking for advice on how to get a sense of power, mutual respect, and autonomy back

Yes, exactly. Thank you.
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