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Managing thoughts of suicide & self-harm

TW: The 'real' me inside - I come with an SI warning

TW: The 'real' me inside - I come with an SI warning

I figure it's better to introduce my challenges here than in a welcome. Hopefully only people willing to hear about SI will venture here.

TW: Suicidal Ideation

Content/trigger warning

I've had thoughts of suicide since I was 12. I don't remember much of life before this time. I'm aware there are times that I haven't though as much about suicide as others, but it's always been a "yes please, that would be my preference" even during the better times.

Why am I still alive then? For two reasons:

- the emotional pain it would cause to very close family.

- the physical pain of accessible methods, and the risks of non-fatal attempts causing lifelong physical impairments.

How do I keep myself going all these years?

By focusing on how I can benefit other people's lives instead. If I'm going to put up with life, it may as well be beneficial to someone.

And to help me keep life less monotonous I look for 'interesting' things - quirky people, exploring foreign countries/cultures, trying new foods (even if i dont think I'll like them). I've never been a status-quo person.

I explain to MH supports that when life is not distressing I can carry on without seriously considering suicide as a possible option. I can say "hello there thought, I hear you but I have chosen not to act on it, things are OK". But when something sets things off kilter, its a pretty quick track back to "why am I still doing this? Do I really still have the same commitment to living? And why, for whom? Why can't I be permitted to die if that's what I want for myself?"

With decades of this under my belt, I have the ability to sit with feelings of extreme distress. And the courage to text or call someone if I need to - and I'm getting a little better at doing this *before* it gets too extreme, but I still hesitate because I don't want to burden others and the frequency of it happening during those unbalanced times is too often. I've persuaded myself a few times recently to instead call a crisis line, but waiting 30-45min in a queue can sometimes exacerbate the thoughts, and sometimes the calls might help dissipate the feelings (if i called early enough) but other times I feel worse after because of course they're going to try to give some positive outlook for the future, but it grates on me because deep down I dont want a future at all. Its actually refreshing when someone acknowledges that not liking/wanting life is OK - and instead just tries to look at how to rebalance the scales to help me cope with continuing to live despite not wanting to.

I'm not sure how un/common my way of thinking is. So much about suicide prevention is focused on short-term distress tolerance or "fixable" problems (eg situations).

What do I need from the community here...?

To be heard? To know if anyone else out there has a long enduring preference to die even when they aren't feeling active distress? And if so, has anything helped them longterm to shift that thinking?

If anyone knows of any practitioners who *specialise* in chronic SI since a young age, I'd really love to know who (if there is a way someone is allowed to??). I've tried Google searching and using online psych directories and reading bio's. I've seen many psychologists and psychiatrists in the past who haven't been able to help me shift this (even if theyve helped in other ways).

I do wonder if my neural networks for positive emotional may not have fully developed or may have atrophied due to the young age and length of time. I genuinely do not know what being happy feels like, I do not have any memory that I recall as being "happy" or joy, and I suspect this makes recovery much harder.

Im ok at the moment. Im safe. But it is exhausting.

Apologies this post is quite a bit too long.

1603 replies

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In response to: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

Thanks @Flutterbug9 ; I wish I could feel the same optimism. Unfortunately my physical disabilities are permanent and (mostly) degenerative, so the best I can hope for is that they will "not get much worse" until I get a lot older and normal ageing process exacerbates it. It's part of why the process of disability support applications has been emotionally confronting, because I can no longer ignore how impacted/limited my life is when compared to most people my age, and it will only get more painful or reduced physical capacities with age. I suspect you may be able to relate to some of this yourself with regard for lifelong prognosis of physical pain conditions? 😓

In response to: Re: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

@MissGremlin see you lurking with support 😉🤗, so just dropping a "hello" before I head to bed. I got interrupted while on forums so I didn't get to check-in, and just saw you had been on when I came to logoff properly. Wondering how you are too, but respecting if you don't want to share. Either way you get caring hugs if you want them. Glad to see you still around too.

In response to: Re: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

Hello @AlwaysMyself sweet, just reading along and letting you know I care. Not really feeling safe or comfortable enough to share how I'm going at the moment after recent events (I'm safe). I lost my counsellor so that's had a huge impact on me as she was the only support I had. I'm here just trying to do the best I can. Thinking of you sweet and hoping things do improve for you soon ❤️.

In response to: Re: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

@AlwaysMyself My post had been intended as a wish for improved health for you. Feels like I made a huge mistake now.

With my physical health I still find myself asking “why me” and have been for yrs. for 40+yrs, my physical health conditions and limitations have seen me at opposite end of football oval compared to others of my same age. What hits really emotionally painful for me nowadays is being around people who are 10+yrs older than me and have no idea what my days are like everyday as they don’t have any health limitations. One person who lives not far from me is well into his 90’s and has better health than me.

In response to: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

@AlwaysMyself Hello bunny how are you? How was your week this week? I am sad to hear you too have been unwell. It is heavy and hard when getting by each day with essentials and having a lot to cope with health wise. I thought you must be unwell as you’ve been less on forums which is understandable. It just gave me the indication that you might not be doing good. I really do hope that the next treatment is the therapeutic medication. It would be good to experience that while in the trial. I really want that for you. What happens when the trial finishes? You mentioned you’d consider getting the therapeutic treatment privately if it doesn’t happen during the trial. I imagine it is costly. It is hard having multiple medical conditions and having the realisation. However, it does not mean we can’t have a good life too. We can even in a low income while it’s harder there is still hope my beautiful friend.

NDIS cut all my psychosocial supports. That’s what they’ve been doing. This has resulted in me becoming chronically unwell. I have no money for private treatments and so I’m left at the mercy of public which has very little on offer to be honest.

I am basically just surviving days. As you know I have little help and with ndis cuts looming I’ll list at least 50% of support worker hours. I don’t know how I’ll even cope with that loss. I wish I had the support I need I really do and I’ve tried so hard.

In response to: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

Hey @AlwaysMyself I have been thinking about you. I see you haven’t been feeling well and I know this was not what you had hoped from the trial, I am wondering your thoughts on the medicine and the trial?

I am curious to see if this trial has sparked your interest in some way re brain chemicals and what individuals may be lacking and perhaps this ‘lack of chemical’ is the cause of how someone is feeling? I cant remember if you mentioned what your trial/ ‘brain chemical’ was targeted at but perhaps if that trial hasn’t worked as you hoped could it be it’s just not the right one you need? I know this might be a lot if you aren’t in the right space for this curiosity so do feel free to ‘park it’ if needed 🚗😊
I have always been pretty interested in the concept of brain chemicals (with some ebs and flows). I think we have touched on this topic before so no problem if this area isn’t something you want to discuss but I guess I have been down some more rabbit holes recently. It all came about with my psychologist mentioning my mood patterns. I have jumped around a couple of topics and have recently been reading about glutamate, both too much and too less, getting curious again- rather than feeling stuck pinned to a wall with no ‘better’ in sight. Been on a couple of a roller coasters so trying to find my middle ground 😊

What else have you been up to? What have you been doing for a bit of fun? I wonder if you watched the Origin lol maybe not but anyway NSW won and if was a good game if you go for them- cos they won lol (unexpectedly lol). I am also still trying to learn the rules 🤣

Lovely to hear from you and hope to talk soon ☺️

Chasingsunsets ☀️

In response to: Re: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

@MissGremlin (replying very delayed to 1 June post) sending hugs 🤗❤️‍🩹 and very understandable to feel hurt and vulnerable with losing that support. I am so sorry. 💔.

In response to: Re: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

@AlwaysMyself thankyou sweet ❤️. Would you believe that same day I also lost the mental health team. Don't think there's even enough words to describe how it's left me feeling, though I did write a poem to try to get things out. Anyway, thinking of you sweetheart and sending so much love and hugs ❤️.

In response to: Re: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

@Flutterbug9 you didnt make a mistake; i saw your well-intent heart. 🤗.

I hear you a lot on the seeing others my own age and especially those many years old and seeing the difference in body function/capacity. I also know a number of people 30-40 years older than me whose bodies are in less pain, more mobile, less degenerative state than mine; is very hard to sit with. I do feel grateful to have 1 friend my own age whose body is similar to mine in some of its physical limitations, as they "get it" too. But then also that grief-empathy that they have to experience it too? And i feel that grief-empathy for you too, in a caring supportive way. ❤️‍🩹🤗. Its not easy to keep picking up every day and carrying on with it - it shows your strength and determination. 💜.

In response to: Re: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

Thank you @Cuddlebear ; your support means a lot. And i hear you on the NDIS cuts and how painful and hope-wrenching that must feel. To already not be coping and then also fearing further reductions. I know it may not be realism, but my heartful hope is that you personally don't get more reductions given what you've just said about them cutting your psychosocial supports completely already 😮. I really hope some community orgs pick up the funding for social engagements ASAP and that there is at least 1 or 2 which can be adapted to assisting you to join in (as you've said before and I've seen myself too, many do not adapt well to multiple-disability needs, like group conversation settings ❤️‍🩹). I still wish we knew each other in face-to-face life so I could pick you up and take you for a quiet coffee or fresh air, in a way accessible for us both. I can wish; and I can hope that someday you will meet another kindred soul friend that has my same heart for that for you that will spend that time with you for connection that you deserve (and they would benefit from also). 💜. I keep hope for you.

I've been a bit better this past week, after speaking to the therapists a week ago and talking about what i think had triggered a particularly low 2 weeks. I think yesterday they were a little concerned it might happen again, but so far today I'm not feeling the same as i did 3 weeks ago after the long therapy day. But i think they also are concerned the things we discussed may stir up an internal storm that i need to be mindful to be attentive to managing and supports for that. But I reckon I'm probably a little more resilient in this specific area than they fear? But we shall see 😅; I will be careful. And we've started to plan the post-trial handover back to my usual therapist. I have 2 more weeks with the current therapists and then that ends my avtive treatment in the trial. I will do a separate post on this, as a few more people may be interested to be tagged. But if i do the treatment privately, it will cost around $30,000 i believe - and no rebates from medicare, PBS or private health insurance for any of it. Fully out of pocket. And because its not medicare rebatable it doesnt even count towards the medical safety net 😅 to get rebates. If i go down that path though it cannot be until next year anyway.

My NDIS application should be / have been sent off to NDIA this week. I've been told I will hopefully hear the outcome within 2 months - whether it be a request for more info/assessment, a rejection, or an acceptance.

And I should hear back from centrelink about my DSP application within the next 3 weeks. I had the medical assessment for it to confirm diagnosis/impacts, and they said that was the "final step" when they provide a report to centrelink who then make the outcome decision. I am hoping the fact that it went to medical assessment without any questions/contact from centrelink (such as "please provide more evidence") is a positive thing.

Fingers crossed for me? I dont need the stress of a rejection or a "more info please" from either one 😅. Especially not when I am hoping to return to (minimal, different) work in the next 2 months also.

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