FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Managing thoughts of suicide & self-harm

TW: The 'real' me inside - I come with an SI warning

TW: The 'real' me inside - I come with an SI warning

I figure it's better to introduce my challenges here than in a welcome. Hopefully only people willing to hear about SI will venture here.

TW: Suicidal Ideation

Content/trigger warning

I've had thoughts of suicide since I was 12. I don't remember much of life before this time. I'm aware there are times that I haven't though as much about suicide as others, but it's always been a "yes please, that would be my preference" even during the better times.

Why am I still alive then? For two reasons:

- the emotional pain it would cause to very close family.

- the physical pain of accessible methods, and the risks of non-fatal attempts causing lifelong physical impairments.

How do I keep myself going all these years?

By focusing on how I can benefit other people's lives instead. If I'm going to put up with life, it may as well be beneficial to someone.

And to help me keep life less monotonous I look for 'interesting' things - quirky people, exploring foreign countries/cultures, trying new foods (even if i dont think I'll like them). I've never been a status-quo person.

I explain to MH supports that when life is not distressing I can carry on without seriously considering suicide as a possible option. I can say "hello there thought, I hear you but I have chosen not to act on it, things are OK". But when something sets things off kilter, its a pretty quick track back to "why am I still doing this? Do I really still have the same commitment to living? And why, for whom? Why can't I be permitted to die if that's what I want for myself?"

With decades of this under my belt, I have the ability to sit with feelings of extreme distress. And the courage to text or call someone if I need to - and I'm getting a little better at doing this *before* it gets too extreme, but I still hesitate because I don't want to burden others and the frequency of it happening during those unbalanced times is too often. I've persuaded myself a few times recently to instead call a crisis line, but waiting 30-45min in a queue can sometimes exacerbate the thoughts, and sometimes the calls might help dissipate the feelings (if i called early enough) but other times I feel worse after because of course they're going to try to give some positive outlook for the future, but it grates on me because deep down I dont want a future at all. Its actually refreshing when someone acknowledges that not liking/wanting life is OK - and instead just tries to look at how to rebalance the scales to help me cope with continuing to live despite not wanting to.

I'm not sure how un/common my way of thinking is. So much about suicide prevention is focused on short-term distress tolerance or "fixable" problems (eg situations).

What do I need from the community here...?

To be heard? To know if anyone else out there has a long enduring preference to die even when they aren't feeling active distress? And if so, has anything helped them longterm to shift that thinking?

If anyone knows of any practitioners who *specialise* in chronic SI since a young age, I'd really love to know who (if there is a way someone is allowed to??). I've tried Google searching and using online psych directories and reading bio's. I've seen many psychologists and psychiatrists in the past who haven't been able to help me shift this (even if theyve helped in other ways).

I do wonder if my neural networks for positive emotional may not have fully developed or may have atrophied due to the young age and length of time. I genuinely do not know what being happy feels like, I do not have any memory that I recall as being "happy" or joy, and I suspect this makes recovery much harder.

Im ok at the moment. Im safe. But it is exhausting.

Apologies this post is quite a bit too long.

1603 replies

1,461 - 1,470 of 1,603

In response to: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

@Flutterbug9 😊. That makes sense, how you interpreted the extra details and not realising how it was all inter-related in my mind.

Yes, a healthcare card would make my scripts cheaper - that is true. I had forgotten that. However for me that would only be about $50/month savings, now that I am not on anti-d’s anymore (one less script, lol). But in the future (I don’t want to start new meds until after the clinical trial ends, since they may improve my mood/symptoms and that would interfere with accurate data reflection on the treatment), when I start some other planned medications then the costs/savings will double, this is true. But by then I probably will have a DSP (my doctors x4 all said they be surprised if I don’t get approved, but to me nothing is certain until the outcome is known).

Re: your shoulder pain. I can empathise and accept how pain contributes to overall wellbeing (or decreased wellbeing) 🤗 and how it can contribute/worsen (or at least, my experience is it does for me; doesn’t mean it does for everyone) to emotional dysregulation. I know 2 of my biggest physiological triggers/risks for increased dysregulation myself is pain and fatigue. I’m sorry that it has been impacting your ability to engage in self-care & fidgets lately. 😓. I feel like that's adding extra barriers to attempts to self-regulate at a time when its already extra-hard to; that's rough. 😢

I’m glad to hear your GP is being thorough with your shoulder investigation (I hope that’s a good thing/feeling for you too?). And I really do hope it leads to positive treatment/repair and if possible prevention of future deterioration also. Fingers crossed it can be treated with injection, or physio/manual-therapy (if applicable, not saying it will be), or any other form of non-surgical intervention for you. 😊🤞.

In response to: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

@AlwaysMyself I'm trying so hard to be gentle with myself but feeling alot of animosity towards myself. Thankyou for the hug sweet ❤️. (I have Casper hehe).

There's noone at all, I reached out yesterday to my mother for help and that left me so hurt and vulnerable after getting a reply from my daughter on my mother's phone. Best I just be alone other than having connections here. I need to clean for the inspection but I'm afraid if I try to push myself today that I'm going to end up in a bad situation. But then I'm panicking that if I don't clean today I won't have enough time during the week to get things done. Tuesday I have a doctors appointment and meeting the support worker again, Wednesday I have a phone appointment for results of an assessment (not for me), Thursday I have my counsellor appointment and then the inspection. There's not enough time to get things done and I'm already completely worn down.

I'm safe, still laying in bed with Casper. But things truly feel so heavy today.

In response to: Re: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

@AlwaysMyself I forgot to mention earlier.

Ive got green light from cardiologist regarding the pain relief infusion. I’ve got copy of outcome of different tests that were done few weeks ago to give to drs at the hospital during admission as my lung capacity has decreased again.

I’ve already spoken to my physio a week ago and have changed my regular shoulder exercises based on that discussion. I have a home exercises routine for my knees and my shoulders which has been designed by my physio few years ago. 30min shoulders, 45min knees; each 3 days per week on alternate days.

My mind picks up on differences in things plus what people say/do. The brief comment about jobseeker claim rejected compared to (what feels like) TMI in answer caused confusion due to the differences. One of the reasons I selected to plus worked in an ‘investigation team’ at one stage.

nervous system currently a very fine line that feels like is approaching breaking point. Even the slightest negative items is a trigger for tears, panic, feeling like I’m shaking. it’s a challenge for me at the best of times to get through things where I’m left with unanswered and/or unanswerable questions.

one thing I am curious about. Both Blackcloud and myself have mentioned about enjoying chats with you and not wanting you to provide info to ‘fix things’, something I’m aware of you have mentioned on a different post you struggle with. Do you find the same thing in other environments eg coffee and chat with friends? If it doesn’t happen in other environments, why do you feel that might be the case?

Take care of yourself. Hoping all goes well with the trial

In response to: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

Clinical trial update. It will be long, don’t feel you must read it all (or any) - or that you must reply. You’re welcome to, but there is never expectation to.

@Till23 @Flutterbug9 @Cuddlebear @Chasingsunsets @Jynx @AuntGlow (and anyone else interested, I just don’t want to over-tag people who aren’t interested and I don’t remember who else has asked to be kept in loop).

I don’t want to go into anything specific regarding the medication, just to err on the side of caution. If it was a 1:1 non-public chat, I would be happy to though. It's only due to the public nature of the forum posts. Yes I have suspicion of the medication, but then I also know that almost half of people in the trials (with using these 2 medication possibilities) don’t have correct guesses — so perhaps some people experience the medications more mildly, or perhaps they have an unusual reaction to one of them that makes it harder for them to tell? I don’t know, but count me curious! I will hopefully find out in December what I got this week 😅.

Which brings me to one thing I definitely can safely talk about. The weird feeling of knowing you’re about to take a substance and having absolutely no idea which one it is or how either or them would feel/react.

I’m not prone to “common” anxiety, but yes it was a mild anxiety even for me. I like predictability and certainty. Of course I knew statistically how most people experience both medications (one being much more variable than the other), so I could mentally prepare myself a little. I just had to remember I was going in with curious interest. And of course I had built trust and rapport with both the therapists, so I knew I was both physically safe and psychologically supported no matter what happened.

But I guess, in hindsight, because I also didn’t know how the session would be structured (or in fact the exact nature being that there isn’t set structure and hence why) it felt more anxious about what was I meant to do? what would they be doing during the time?

Having been through that now though, I feel I have more understanding of how the session will/can run - and the different ways they will respond flexibly in what they do (how much or little they engage with me during it) depending on the effects of the medication and my own cognitive state. 😊. I believe this will make it much less “nervous” next time, even though of course I still won’t know what I will be taking or what I might experience that day (or how long some mild effects may continue post-dosage).

I guess this is very much a thing for blinded research trials which wouldn’t be as applicable to standard/guaranteed PAT treatments (beyond the first dosage) because after the first one you would have some idea of how you respond to the known medication — even though your experience would be different in content each time. I’ve participated in research studies before, but never in a blinded medication one.

I felt that the preparation sessions & information had been very useful - so I could use some of that to remind myself to lead my introspection back to the intention-questions I had set, and to gently refocus my mind when it wandered. When the therapists could tell my mind was engaging deeper in feelings & thoughts in a less-peaceful way, they invited me to share what I was thinking/feeling - which provides them with deeper insight and the ability to ask deeper questions to explore it deeper. And as naturally when processing it, things were able to be guided to a less-negative and more-hopeful place, and with a deeper sense of understanding & acceptance of myself by them.


They were very good at taking onboard things I said - directly and indirectly - and adapting to it. Even as minor as how to help me be able to eat or drink during the day-session. Even those subtle things showed they listened deeply and treated me as an individual and not on statistical-norms. The pdoc was curious about how I experience life differently in a few areas, when I made passing comments about my awareness of aspects - it was nice to see someone who genuinely wanted to hear first-hand experience and to understand it more. (I knew from prior meetings that his ND-awareness/learning had mostly come from asking/listening to his patients, but to experience this interest myself was new). His sensitive nature and intuition is refreshing, as the things they reflected back to me resonated and connected.

The next morning we had the debrief session, which again I didn’t know what to expect (or what was expected of me - how could I prepare?). There was one reflection I went in hoping I could raise, and I did - both what I wanted to raise and why I was hesitant to raise it. And I’m glad I did. It tied in very nicely to the other topics we discussed (the reasons for my hesitance), and provided a good practical example of how they can help support me to experientially-learn / practice these skills throughout the treatment period too. We identified a handful of topics (many inter-related) that we can use to explore deeper that might help resolve some of my feelings and resistance to life. I wouldn’t say any of these topics were “new”/unknown to me - and some of them are things I have been slowly working on with my counsellor. But the long day-sessions (with or without the studied medication) give more space to explore these things deeper and slower without time pressure - as well as then having the debriefing the next day to support any residual things until the following week’s session.

I do think it will be good & helpful regardless of the medication received. And honestly, I actually think both medication options will be beneficial for me during the sessions. One because it’s the PAT intended medication, and the other because it will calm/centre my ADHD during the session 😂. Both possibilities would hopefully allow me to dig-deeper, just in very different ways. But I’m also aware that finding and connecting with a therapist but only for a short/limited time period (in this case 2-3 months) will also have a mild difficulty for me at the end - but I know I will then return to my usual counsellor who I also find supportive & accepting (but a little less intuitive, especially about what I’m coming to learn are my ND-differences and why people historically haven’t often had intuition in my case). But the things we explore during this 2-3 months should also help identify more solidly how my counsellor can best help me continue to explore those topics in a way that works best for my brain.

This upcoming week is again going to be very busy for me with appointments.

And I’m also trying to learn/practice to “take things slowly” and build in more mental rest (reduce ADHD stress symptoms), which will in turn mean that I am on the forum less often too. I wish there was a way I could read everyone’s posts and reply thoughtfully to them without it taking up hours in the day. 😓. If only I could just freeze time, eh! Then I could get my mental rest and my forum engagement! (Yes I know medication for ADHD might help — thats on the cards for later this year or early next year 😅)

In response to: Re: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

Hi @AlwaysMyself,, I am not on the forums much these days, so probably have missed some things..

It sounds like there are a number of positive aspects for you in the trial.. So is it one P v another P or P v placebo?

It sounds like it's an outpatient situation, but you spend a whole day in a clinic once per week?

Anyhow, I am glad you are getting something positive out of it.

I don't know if it is a double blind study or single blind (researcher knows, but you don't).

I am in a single blind study for cancer, but I know I am in the intervention arm, but the researcher doesn't, although obviously some of the people running the study do. I am finding my study interesting, it hasn't been going for very long.

In response to: Re: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

Are you OK my awesome friend @AlwaysMyself 🥰

In response to: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

Hi @AlwaysMyself yes, only acknowledging and listening to the pain is the type of support that I prefer when it comes to receiving it whenever I need to vent to someone about what I’m going through

In response to: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

@AlwaysMyself

oh by the way you may remember about the workshop I go to almost every Saturdays that I told you about last time. So I actually haven’t attended there for 3 weeks into this term now. 1st week was because I had a slight cough so I thought it would be best for me to not attend if I know I’m not gonna be at my 90% best. 2nd week was because well, the workshop was held on a different day via zoom but I just didn’t want to attend. 3rd week was because (and it’s something I should’ve planned it better earlier with my support worker but) I initially told my support worker that I wouldn’t be able to attend the workshop on that day. Because I start facilitating in one of the peer support groups that go on every first Saturdays of the month starting at 4:30pm. The workshop that I didn’t attend for 3 weeks ends at 4:30pm. I now know that I should’ve considered planning to still attend the workshop but leave a bit early would be the better way instead of missing out. I’m glad that that workshop is inclusive and isn’t like the mainstream workshop/classes at all and that’s what I love about it. So I’ve sent my support worker a text message about that

because two days ago she sent me a text saying she won’t be available this Saturday and next Saturday so I’ll have to see if any other support workers would be available on those days and times. So far, I haven’t heard back from any of them yet so….if none of them are gonna get back to me before then, well….. then it’ll be 2 more weeks of me not attending the workshop, which to be really really honest though it’s not that much of a concern because I don’t like a few of the participants there and I’m sure you remember about me complaining to you about the girl last time. When I think about her it p!sses me off because she herself p!sses me off and at least I don’t have to go anywhere near her but still. There’s this one other person there that p!sses me off too lol. So it’s enough for me to not really wanna go there much haha idk😅😅🫠

In response to: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warning

Helloooo @AlwaysMyself! 💛

How are you?

Thank you so much for your well-wishes. The show was a success!!

I am relieved to hear your BP medication might be helping. It sounds like your doctors are taking this really seriously, which is very positive to hear.

I am so sorry that you've had an experience which has made self-advocacy feel more challenging and vulnerable - that would be so, so tough. Now that the program is over, how is this all sitting with you?

Regarding your clinical trial: the anxiety around not knowing what you're taking and how the session will run is SO valid. I would absolutely feel the same! I am very curious to know how things have shifted since you sent this message and if you have found your subsequent guided sessions to be helpful? 🤩

Knowing that your doctors have been sensitive, intuitive, and person-centred is so reassuring to hear - that is exactly the kind of support that can evoke real change.

It sounds like the intensive, in-depth nature of this program has been incredibly insightful for you.

Learning more about yourself with attuned therapists and supportive medication sounds like it has already been rather affirming as well. I am very excited to hear more about what you're learning and discovering.

I am so proud of you!!!

In response to: TW: The 'real' me inside - I come with an SI warning

Re: TW: The 'real' me inside - I come with an SI warnin

Good evening @Flutterbug9 🫶

Wanting to explore the sense of, 'feeling genuinely excited about going to something and within short period of time start to feel anxious and loose all interest in wanting to go' sounds incredibly helpful! Have you been able to follow your line of curiosity and come to any insights yet?

Knowing the 'why' of things really helps me too. Did your therapist help you to understand why social isolation and avoidance may come up for you sometimes?

And YES! It's amazing that you have such a neurodivergent-friendly therapist now - this is a huge win.

@Cuddlebear how are you going, my friend? 🥰

1,461 - 1,470 of 1,603