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Learning to accept I have no control

Learning to accept I have no control

Hi and thanks letting me join.

I came here looking for support and also read some stories that made me realise I am not alone. My husband has displayed suspicion of my activities in the past 10 months that are not normal for him.

When he first approached me about this we were midway through an overseas trip, cruising through Germany. He believed that when I was lined up in the bathroom at lunch- that I was actually in the mens with another man. This has been a repeated theme in different cities and countries and since we returned home includes concern about our neighbour, local tradesmen and waiters who serve us at dinner. He promised me he would see his Dr on his return home. This resulted in diagnoses for a deep vein thrombosis and a referral to a psychologist. He saw psych about 4 times and came to conclusion we need a divorce. He has no insight that he has a health issue and what I understand is a form of psychosis. I have tried many things including getting him to GP and MRI but he told me the MRI was clear so the problem must be me. I went to see his GP without him and GP told me there are unresolved issues from tests and my husband needs to follow up. Turns out he has a lesion on his frontal lobe and they want him to see a neurologist. By now almost 6 months have gone by and neurologist asks for 2nd MRI to see if any changes and ecg and bloods. I attend neurologist for the first visit and he sends Mr M down the corridor so he can check his gait and asks me questions about personality changes. Mr M is annoyed that he spoke with me.

Mr M is called by neurologist who says he would like him to see neurosurgeon. Appt is not happening & 3 months go by. Mr M doesn't believe it is anything serious.

I convince him to go back to GP who asks why he hasn't been to see neurosurgeon? She also says marriage coucilling will not work but a psychiatrist may be next step but speak to Neurosurgeon first. Mr M says is Psychiatrist for me or for him. GP says for the situation. None of the med professionals have let him know what they are thinking. We went home and booked neurosurgeon and wait 6 weeks for appt. I take half day off work to be there. Day before appt Mr M says he doesn't want me there especially after I spoke to Neurologist when he was out of room. I am gobsmacked. Anyway I went and met him in carpark. He said if I go in he won't. He went in alone. Told surgeon he was there due to trust issues with wife. Told me Surgeon wanted to take biopsy and he refused. NS gave referral to come back next year. Things are getting worse here. My 20 YO son is very good at pointing out some of Dad's unusual thinking. Not sure what we do now? Wait for someone to be in danger. Not feeling supported by medical system.

6 replies

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In response to: Learning to accept I have no control

Re: Learning to accept I have no control

Hey @Goldengirl13 and welcome, glad to have you with us.

Sounds like an increidbly confusing and overwhelming time for you both, especially being stuck waiting like this. I don't really have any suggestions for you, except to keep reaching out. There might be others here who have more guidance tho.

I can understand the frustrations too, in being blamed and feeling powerless to enact change. It sounds to me like you're doing the best you can with a very difficult situation.

Here for you if you need to vent or need some reassurance and encouragement!! 💜

In response to: Re: Learning to accept I have no control

Re: Learning to accept I have no control

@Jynx thanks very much.

What brings you here?

I have a wonderful councillor who has been supporting me along with my own incredible GP.

I hate seeing my husband's struggle and I miss our closeness and intimacy. He is withdrawn and not sleeping well.

In response to: Re: Learning to accept I have no control

Re: Learning to accept I have no control

@Goldengirl13 teehee you will probably see me around a lot! I am a peer support worker here, so I am part of SANE Staff, but my role is one of peer support (i.e. I lean into my lived experience of complex mental health as a way of providing connection). I swear we've got a little chart with all the roles written up somewhere... or we ought to!!

I'm glad you've got some decent support, cos yeah I imagine it's a lot like you've lost him, or part of him maybe. I think it's okay to even be experiencing some form of grief, like to be with him but not quite have him, that is a heavy heartache.

I am sending some virtual hugs, if you want em 🫂🫂

In response to: Re: Learning to accept I have no control

Re: Learning to accept I have no control

@Goldengirl13 I'm hearing how hard, confusing and frustrating it is for you. I can't relate, because my circumstances and situation are different, but I can sit with you and listen and send you some empathy.

@Jynx a chart with the roles and who does what would be lovely. I'm fairly new here and still getting familiar and learning how it works and I've spent some time looking for a resource that tells me who's who and who does what. I...ah...don't know who to reach out to.

In response to: Re: Learning to accept I have no control

Re: Learning to accept I have no control

@NightFury @Goldengirl13 I have asked the team, we will see what we can do haha

In the meantime, there's this handy dandy guide put together by one of our lovely members - How To's

Hope that helps ✌️💜

Also, am an open book, feel free to just tag and ask me directly any questions you might have!!

In response to: Re: Learning to accept I have no control

Re: Learning to accept I have no control

@Jynx thank you.

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