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Caring for a loved one with psychosis - when to admit it's just too much?

Caring for a loved one with psychosis - when to admit it's just too much?

Hi friends,

I'm so grateful for this safe space to unpack challenges. I've posted before about my husband, who has been suffering from paranoid delusions for nearly 2 years. He thinks there's a big conspiracy that everyone (our neighbours, my family, his colleagues, random strangers) are 'in on', to 'set him up'. He believes there are spy cameras and listening devices in our home, that people are constantly taking photos of him etc. I've so far had no luck getting him to see a doctor, take medication or even speak to a counsellor, or simply someone other than me, to vent about his delusions.

Well, we had a good week where he didn't mention his delusions at all. But as always, I knew it wouldn't last. Sure enough right at bedtime last night he started a big, probably hour long rant about his delusions, how my family are 'scum' for being a part of it and trying to ruin his life etc. I probably didn't handle it well because I straight away snapped and told him I don't want to be in the relationship anymore if he's going to keep up with the 'topic' (that's what I say to him, instead of 'delusions'). Problem is he then gets upset that I don't believe him, that 'they' are succeeding in destroying our relationship etc.

I love this person, I know it's the illness talking not him, but im just wondering how much of this nonsense am I meant to take? I can tell myself things are ok when we have a 'good' stint, but when he has one of his delusional rants (which often happen at bedtime when im tired and just want to go to sleep!), I just wonder what the heck am I doing and how is this sustainable?! I have no idea how people can endure years or decades living with people in psychosis?

Or maybe my case is a bit different because he seems so fixed in his delusions, some of them are about my family (which is hurtful, but basically I just have to suck it up because its futile to challenge delusions), plus he gets upset at me for not believing him.

Has anyone been in a relationship like this, where they made the big decision to actually leave? This would break my heart, but I really don't know what else to do, when I think of my future options. He's not a risk to himself or others, he's just making my life pretty stressful. I keep making the mistake of arguing with or trying to sternly shut down the delusions, but then is the alternative just sitting there and listening to it, for ages?! I feel like you'd need super human patience and compassion to be able to do this.

13 replies

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In response to: Caring for a loved one with psychosis - when to admit it's just too much?

Re: Caring for a loved one with psychosis - when to admit it's just too much?

Thanks so much @RiverSeal I appreciate your kind words of support and suggestions. I'll take a closer look at those YouTube videos when I get a chance.

Could I please ask, from your own experience and working with others, what does it typically take for a person with schizophrenia or delusions to get to the point where they realise they need help? Does it basically come down to loved ones involving CATT, against their will ie involuntary help? Or them basically hitting rock bottom before they seek help?

I've tried suggesting my husband get help countless times (and I even briefly left twice last year, which felt horrible) but he's still fixated on the delusions being real. Now, I'm looking at our future and seriously considering if I'll need to leave again, but it's just an incredibly disruptive option for myself and the kids. We'd have to leave our home, sleep on the floor of my mum's spare room, pull the kids out of school as Id probably have to stay away for a few months at least to make a point..sucky all round. I worry i wouldn't have the emotional strength to stay away for long enough, either. Just too painful.

The other option seems to be calling CATT, do you have any hunch how that might unfold? He isn't a risk to self or others and can mask very convincingly. The illness seems totally unpredictable as to when it is going to consume his mind. He was in delusional zone Saturday night and Sunday morning, then it passed and fine and cheerful until delusions returned tonight. It's like being on a roller-coaster.

My other question is whether you have any suggestions for ways I can calmly but firmly express my boundaries to him? I seem to set him off on even worse rants when I tell him I just don't want to hear about it (especially at 10pm when I just want to sleep).

So grateful for your help.

In response to: Re: Caring for a loved one with psychosis - when to admit it's just too much?

Re: Caring for a loved one with psychosis - when to admit it's just too much?

@Lattepowered ,

I can really hear how when he is 'well', you can get along quite fine. But it's when he is unwell that it seems like breaking point.

I wonder if you found any of those suggestions from the link I sent, helpful?

I know it's hard to enact some of what they suggested e.g. "Don't get annoyed and frustrated', but I also found that the examples of statements you can use, quite helpful.

I really hope your hubby gets the help he needs. Or at least will be willing. I can see how your quality of life can improve once he does get the help.

Please stay in touch and let us know how you go.

In response to: Re: Caring for a loved one with psychosis - when to admit it's just too much?

Re: Caring for a loved one with psychosis - when to admit it's just too much?

Hey @Lattepowered, thanks for your reply! I have been on planned leave, so apologies for a later reply.

Involving a CATT team and a person being made involuntarily or on a Community Treatment Order. Does not necessarily mean they will accept a diagnosis and that they are experiencing mental health issues. But it can help to support them, get the treatment they need and work towards acceptance.

Delusions, by their nature, are the reality of the person experiencing them and changing their beliefs can be challenging. It is really up to the person and how they see their experiences, both the delusions and the support beign offered and whether draw a connection. Everyone has a bottom point I beleive and its up to the individual to find it to decide if they need support.

It is a decission you need to make whether you want to involve a CATT team and try and get your husband the support he needs. There are pro and cons like in any situation and it may be triggering for him but a step closer to recovery maybe.

Thinking about leaving your husband must feel really overwhelming and bring up a lot of emotions. I think only you can decide if that is the right thing for you and your family. you could give Relationships Australia a call https://www.relationshipsnsw.org.au/ to discuss this with them.

The CATT team will be briefed on the information you provide if you call them so you should definitely let them know he can switch and be convincing. They are an acute serivce so they may need a reason to have him taken to the hospital for an acessment. It could be triggering for your husband and you may need to have a plan for afterwards depending on how it goes. Perhaps calling 1800 RESPECT https://1800respect.org.au/ to create a Safety Plan for you and your family.

With boundaries you need to enforce them otherwise they are inaffective and can be exhausting for you. If you have set boundaries already and they are not being respected then affirming your boundaries is important. Once again you need to have a plan for how you will react and what action you will take if the boundarie are not respected or you can't enforce them.

How do you feel about giving 1800 RESPECT https://1800respect.org.au/ a call to talk about strateggies to set and enforce boundaries in a relationship? I might be really beneficial to talk to someone before you decide to act on your thoughts or make firm plans.

I hope helps and once again I apologies for the late reply.

Take care

RiverSeal

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