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Life can be a Pain

Life can be a Pain

Hi @BlueBay@Zoe7@Former-Member@Faith-and-Hope@utopia@oceangirl@TAB@Shaz51@PeppiPatty

I know there are more people I could tag but maybe I will think them up as I go along - actually I already have

I think I need my own thread - mostly my problem is chronic pain syndrome - I damaged my spine with the sporting excesses of my youth - a long time ago now - and I managed to rearrange it when I fell of my pushbike in a wind storm nearly 22 years ago and that seems a long time ago now but there is nothing they can do except treat the pain - and I do have Section 8 medication and I see a pain specialist

And the pain has been worse lately and wears me down and I get fed up and very tired -

I have issues with my mother as well - and although she died 2 years ago I still have bad times now and again - she was abusive and as well as I know myself and her this can get to me at times - and this is another reason I opened my own thread

Then there is TS - my Toxic Sister - she was under my skin for a while but not at the moment

So yesterday I felt so bad when I went to see the doctor about my back pain - and my pain specialist has cut my medication back several times over the last few years and she has gone too far - and I started to tell my doctor - yes - I cope with the pain better since my mother died - but it's driving me crackers atm and so are the memories of my mother

So that's it for now - I have had trouble opening this thread for some reason but now I have - I will run my own story - I would like to think I don't need to but yes - I do

You are all such wonderful supportive people - you are my soft place to land - that is so true

And anyone I have missed I will tag as I go along

Lots of hugs everyone

Dec

5211 replies

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In response to: Life can be a Pain

Re: Life can be a Pain

@Owlunar Tomorrow will be tough, and I really am sorry. Grief is a difficult emotion, complicated, and can come out of the blue. I’m sending some love your way, hoping there will be something special. A light in the darkness.

Your pain specialist appointment is finally here, and, by the sound of things, it was successful . I do hope it eases the pain long term. Pain is wearing mentally and physically.

I hope tonight you manage a good nights sleep, something that will help with tomorrow. Take care @Owlunar

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Sounds great Dec. thanks for sharing.

In response to: Life can be a Pain

Re: Life can be a Pain

Hi @Owlunar

sounds like a positive outcome with the pain specialist

anniversaries of loved ones are always difficult. I feel for you

thinking of you lots @Owlunar take care xxxooo

In response to: Life can be a Pain

Re: Life can be a Pain

Great news about the pain specialist @Owlunar and it seems you are doing really well getting through both the anniversaries of you Mum's last week and your Dad's today. Much love and hugs to you Dec

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Hi @Zoe7 @BlueBay @BPDSurvivor @Maggie @Former-Member

The smoke is really bad in Melbourne - it didn't help going out on Monday - yesterday I had a really bad cough - I got some cough medicine from the pharmacy - I didn't want to go out and I smeared Vicks onto a hanky and went up breathing through that - and it was hard work just getting to the shops but the medicine helped better than any home cures or the asthma spray - all of which helped to a degree - it must be seriously hard for many people

The local anaesthetic injections into my knee are still working - this feels so good there are hardly any words apart from excellent and glorious to have that pain eased - I will be having more into my back and shoulder - though I think the ones into my spine will be done in hospital - seeing this new specialist is really encouraging - my back pain was aggravated by the the specialist at the public clinic - for about a year I was really miserable about that and had to draw deeply on my inner strength - it's always there and is reliable but I was pretty unhappy sometimes

So this was good for the best part

I wasn't well yesterday but I did honour my father - I loved him so much - I thought I would miss him when he died but he is so deeply ingrained in my DNA - I am the child that resembled him the most and he was proud of me and before he died he told me - I think it has been easier because of the great conversation we had before he died and everyone should have such a chat with loved ones - I am really glad I did.

So I kept to myself and that was okay - apart from the rotten coughing until I braved going out in the smoke for help

So I am seeing my psychologist today - I will be leaving soon - 4 therapists in 5 years - let me explain - the first 2 moved interstate - the 3rd one wasn't a good fit for me but this one is excellent - it was worth waiting longer for an appointment to see this lady - I am looking forward to seeing her today

I have been okay but it strikes me that it is very rough that EVERYONE seems to have time off at this time of year. Of course people need time off - my GP is away until the end of the month - my pain specialist and my psychologist were away until this week - my domestic helpers and drivers were off until last week - which must be incredibly hard for people battling - Christmas can be such a hard time of year - for me - several anniversaries made some days uncomfortable but I remember the past when I was in a really bad place - that was really bad

So I care about everyone here (or anyone anywhere) who is coping while the rest of the world takes leave - yes - I get it and I know that is really hard

Dec

In response to: Re: Life can be a Pain

Re: Life can be a Pain

It is a difficult time of year for so many @Owlunar - even when there are not anniversaries to deal with. Like you - it is the time of year when so many people need that support the most but that is also when our supports also take a break. There are no answers to that as everyone deserves that break - but that does not make it easier on those needing the support.

I am so glad the injections are helping with your pain. I remember that other pain specialist and how much added stress (and pain) you went through so really happy you have found someone that both listens and can help.

It is also great you have found a psych that you are not only comfortable with but seem to click with also - that makes the world of difference

We are covered by the smoke coming from the mainland so I can only imagine how thick and unbearable it is for everyone in Vic and NSW. We can barely see the mountain and as you know it stands out in Hobart so it is quite thick - stay inside as much as you can Dec - and I hope it begins to clear soon.

Your father sounds like a lovely man and your relationship with him close. I understand that conversation before someone passes away - I had that with my Nan. Although we were always close, knowing she was terminal gave me time to spend with her and talk with her before she died. I could tell her how much I loved her and she me also. She wrote me a beautiful letter before she died - parts of it were nearly illegible because she could no longer write properly - but it meant the world to me. I used to read it often but now not so much - I have so many wonderful memories of her and prefer to 'see' her as she was before the cancer struck. She was the most importnt person in my life and like you and your Dad - I was very much like her and that is something I will always have

In response to: Re: Life can be a Pain

Re: Life can be a Pain

@Owlunar It looks like some things this year are off to a good start for you. 👍👍👍

I did see some pics of the smoke haze covered Melbourne. It looks awful. I can only imagine how hard it is for you breathing, and so many others. I’m pleased you got some release.

Rain is forecast, so hopefully bushfires will be extinguished. What a relief that would bring to so many.

You have made it through your anniversary time of year again. Well done. 💜💜

I hope there is something good in today for you @Owlunar Take care.

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Hi @Maggie @Zoe7 @BPDSurvivor @BlueBay @Gazza75

It does feel to me as if my life has taken a turn for the better - good things do happen and it rained heavily yesterday - I decided to go and get a script filled and started talking to an interesting lady at the shops - we had to shelter there from the deluge and so we kept chatting - we are going to hook-up for coffee in a couple of days - so all of this when I normally would have been somewhere else - fantastic

So my good thing happened yesterday Maggie - good thoughts do work

And yes Zoe - I re-read what I had written about people taking time off and yes - everyone does and I am supportive of that - the problem is though that people do it all at the same time when so many people are really struggling - I don't fit into that category - I always know the shadows will pass - but there are people and I have read so much of it here - it must feel like a barren zone - and this year we have had fires that have affected so many people

It's encourgaging that the Government is setting up Mental Health Assistance - I forget how much but I also thought that considering the size of the disaster in so many states it's not enough. Is it for deserving people in the front line fighting the fire or those who have lost everything -

Mental Health is chronically under-funded - why? Is it because those with Emotional Discomfort look able-bodied - as if they could just get up tomorrow and be okay?

I have an itchy place somewhere in my brain that doesn't really affect me because I am okay - there were years though when I was not. I had to be a boat-rocker - I had to find a voice and use it. I let my unhappiness with my life and it's issues and my displeasure at the system and how it let my son down be known. It wasn't easy and then there was always Christmas - aw - I believe in the reason for the season but everything closed down and I felt lost

I don't feel like that now but reading the forum across this year when I am okay though I have had a rougher time with pain issues this year has made me more aware of the plight of many people. The under-funding of the public system is truly terrible - likewise with aged-care - it's a lonely world out there for many

I have no answer for all of this - unless we can find it within ourselves. We need education to enable that - I would do that if I could - teaching is one thing I have done in my vast and interesting career through life.

All I can do is write and I intend to pick that up again - I will try the U3A again this year and try creative writing but also write my own stuff -

This website has opened so much to me - many things I was so unaware of - I can thank many people here for that - it's a good thing to do - to make other people aware of the plight of those with MI

Dec

In response to: Re: Life can be a Pain

Re: Life can be a Pain

I agree there is a massive hole in the system around this time of year @Owlunar Unfortunately it is often when support is needed the most. I certainly do not have an answer to that as those that provide that support are deserving of the same break across Christmas and the New Year. The only solution would be to have locums in their place over that time but many would not feel comfortable seeing someone they did not know ...a difficult one.

In response to: Re: Life can be a Pain

Re: Life can be a Pain

Hi @Zoe7 @Maggie @BlueBay @BPDSurvivor @Former-Member

You are right about locums etc Zoe - people want to get used to one therapist and a locum - except for medical doctors - are not the answer - I guess I have to leave that there because there is no answer and people want time off to be with their families of course

I guess for the best part the world slows down here - we have Christmas and the summer holidays together and this doesn't work well for many

And it has caught up with me - next week I can't get an appointment at my clinic for my injections - 3 of the doctors are away including mine - and he doesn't get back until the week after next - Wednesday - so I will have to rely on the locum service and this I will have to do - I haven't used the locum service for years - and I do not like counting my blessings - it's just a bandaide on a sore spot

Anyway - everyone - the weather is pleasant today - so far - I am just going to look at the radar because they forecast a storm for later today - okay - Adelaide and the East Coast are getting it but so far Melbourne is fine and warm

We had heavy rain on - Wednesday afternoon - a really short but massive thunderstorm - that was impressive - hail too - I was up at the shops and met a really nice lady and we chatted and took shelter in the pharmacy because we had both scripts to get filled and we stayed until it was just a sprinkle and exchanged phone numbers and hope to catch up for coffee soon

I would have rung yesterday but I have had hayfever and this is exhausting - yes this is me during a bout of it 0_/_]] - I don't get anything done properly and have to catch up today - I know I overdid things last week - I was out every day - I enjoyed myself - it was really great. My knee is holding up well - this is such fantastic news -

So things are looking up for me - my parents' anniversaries are over until next year and I now need to write a letter to the specialist I know at the public pain clinic where I went to make a couple of suggestions etc - they treated me so well there I feel I need to let my previous good specialist know about what happened - I don't like simply going off in a huff - I need to express myself about the good and the inconvenient

All the best everyone and maybe I can post another one of my enhanced sky-shots

Dec

This one is called Fire Crystals -

I took this photo at sunset - I added a few filters and found this - I feel it's really dramatic. I really enjoy my hobby - picked up from a long time back - and I still have an old computer full of similar dramatic enhanced photos of the sky

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