Life can be a Pain

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Hi @Wanderer

I am glad you found your way here and it seems you are meeting more people and this is a good thing

I have had a couple of tough days with my back pain - I felt fine on Saturday but the weather on Melbourne is cold so I haven't done much except use a wheat pack and I know you would understand this - it is darn frustrating

I need to read some threads and catch up with people - actually I have neglected this thread

All the best

Dec

Hi @Wanderer@utopia@Shaz51@Zoe7@Former-Member

I am really glad people are making Wanderer feel welcome - I read a little about CRPS on the net and it is a very complex disorder with so many different and varying symptom

It means Complex Sympathetic Regional Pain Disorder - I think - it needs all of those words - when I was a member of the Pain Website I met a lot of people with this and it is confusing and so often misdiagnosed - what a nightmare

Wanderer - when I joined this forum I was Decadian - when I bought a new computer for some reason I had to register again and I had been signing off my posts with Dec so I needed a new avatar name and stayed with Dec - same person - different computer

This is the place to air our problems and vent our frustrations - I find the social issues of Chronic Pain and Mental Illness to be similar - really hard for people who consider themselves to be normal to understand because they can't see it I guess

Glad to see you found this thread

Dec

Hi @Shaz51

I hear you - the tests are getting bigger every year - I guess Poor Little Kidney becomes more vulnerable as you get older - as so many parts of me are - so not fair - we didn't sign on for all of this

In reality we never had any say in it at all but there are no escape clauses - aw - I am getting nit-picky today - I understand now much of a trial it all is though our trials are different - they are all hard to get on with - whatever they are

So with everything else you might have anaemia - you don't need that - AND I have a strong feeling that a lot of the iron-rich foods are not listed in your restricted diet

And iron pills - I think most of us know what they do to us

All the best with those tests - June seemed to be a long time ago when I read this on my phone the other day - today - it's already the 7th of May - June and winter are not far away at all

How is Mr Shaz right now - I think of him too - Hi Mr Shaz

Dec

thank you @Owlunar

Just arrived home from the hospital , I have a Bladder infection now , a few day ago I thought I was getting a bug , but by yesterday it was getting worse and worse

My mr shaz has Bipolar11 now ( I believe he has always had it but not diagnosed ) -- I can`t remember if i told you or not

His anxiety has been very very high lately , and he has decided to stop drinking altogether now to see if that helps

wondering if his MI and meds need to be reviewed again , I love to make his life easier but .........

How are you today and your daughter xxxxx

Hi @utopia

I read about bruised patches with CRPS patients getting darl hair and sweating - aw....... your poor mother - that sounds horrendous - does that patch hurt as well?

And I remember Chronic Fatigue, Fibromyalgia and RA - and now her her immune system is failing - I think a lot of these chronic issues are immune related - my grand-daughter has Chronic Fatigue Syndrome - and there are many of us in my father's family with similar cnronic disorders - it makes me wonder a lot - I think my grandmother was badly misunderstood but she has 5 descendents with chronic disorders so I don't think it was in any way imagined -

Things are improving as time passes - I see your mother as a very kind and helpful person - I didn't realise she was battling with all of this though

Dec

Hi @Shaz51

A bladder infection - what fun - really - I find them to be really painful and sometimes hard to shift - I hope they are able to give you some antibiotics - I know there are many things you can't take - aw - you did not need this - I hope it improves.

btw - when I have an irritable bladder - or an infection but now and again it is just plain irritable - I get a hot pack onto my tummy just as we did when we had the monthly thing I tend to forget about these days - it might help you - maybe it is already one of your go-to remedies

Aw - Mr Shaz - bipolar dx - I think you did mention it and he didn't want to have it - now he think he will stop drinking altogether - I guess you have suggested he just drink a bit less over days - I understand more and more about his anxiety - maybe accepting a bipolar dx as set him off and his anxiety is sky-high

It seems anxiety can make itself worse - I hope he takes the drinking thing slowly -

Of course you want to make his life easier but ....................as you said

My daughter seemed to be a lot better last week and was planning to go back to work today - she had Easter off and went into hospital for the first operation straight after - and apart from a few exhausting half-days she was in bed mostly - sick of herself as well I guess - it was easy for me to get my bossy-mother voice on and tell her it was time to do something about all the pain she was in

From what she said her ovary was full of endometriosis - sounds horrible - I guess it's time for another text - actually I think we are fairly close to each other as long as we keep off each other's feet - but yes - I will text again today

Dec

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Hi @jay2

Great to seed you here - how are you travelling?

Dec