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Life can be a Pain

DecadianSenior Contributor07 Feb 2017, 1:19 pm AEDT

Life can be a Pain

Hi @BlueBay@Zoe7@Former-Member@Faith-and-Hope@utopia@oceangirl@TAB@Shaz51@PeppiPatty

I know there are more people I could tag but maybe I will think them up as I go along - actually I already have

I think I need my own thread - mostly my problem is chronic pain syndrome - I damaged my spine with the sporting excesses of my youth - a long time ago now - and I managed to rearrange it when I fell of my pushbike in a wind storm nearly 22 years ago and that seems a long time ago now but there is nothing they can do except treat the pain - and I do have Section 8 medication and I see a pain specialist

And the pain has been worse lately and wears me down and I get fed up and very tired -

I have issues with my mother as well - and although she died 2 years ago I still have bad times now and again - she was abusive and as well as I know myself and her this can get to me at times - and this is another reason I opened my own thread

Then there is TS - my Toxic Sister - she was under my skin for a while but not at the moment

So yesterday I felt so bad when I went to see the doctor about my back pain - and my pain specialist has cut my medication back several times over the last few years and she has gone too far - and I started to tell my doctor - yes - I cope with the pain better since my mother died - but it's driving me crackers atm and so are the memories of my mother

So that's it for now - I have had trouble opening this thread for some reason but now I have - I will run my own story - I would like to think I don't need to but yes - I do

You are all such wonderful supportive people - you are my soft place to land - that is so true

And anyone I have missed I will tag as I go along

Lots of hugs everyone

Dec

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In response to: Life can be a Pain

Zoe7Senior Contributor05 May 2018, 9:09 pm AEST

Re: Life can be a Pain

I am physically not very well but mentally trying to keep it together @Shaz51 - not easy but doing better than I have done the last few days. Staying connected on here is actually helping me today.

In response to: Re: Life can be a Pain

Shaz51Senior Contributor05 May 2018, 9:15 pm AEST

Re: Life can be a Pain

Staying connected on here is actually helping me today., that`s good and sitting with you @Zoe7, I have come over to the I`m not coping thread to talk in one thread xxxxx

In response to: Life can be a Pain

WandererSenior Contributor05 May 2018, 9:28 pm AEST

Re: Life can be a Pain

Thanks @Zoe7 that makes me feel more relaxed.

Hey @Shaz51 lot of tests, hope they don't drag it out too long or muck you around. With you.

In response to: Re: Life can be a Pain

Shaz51Senior Contributor05 May 2018, 9:36 pm AEST

Re: Life can be a Pain

thanks @Wanderer, all will be reveiled on june 13th , a months time , hard on Mr shaz who has MI

In response to: Re: Life can be a Pain

WandererSenior Contributor05 May 2018, 9:55 pm AEST

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In response to: Life can be a Pain

utopiaSenior Contributor05 May 2018, 10:05 pm AEST

Re: Life can be a Pain

Hugs @Owlunar @Shaz51.
Hi @Wanderer - my mum has CRPS. Is a very strange disorder. She had a soft fall onto thick carpet. The bruising didn't go away so after a month she got it checked out. That bruised area - grows dark hair and sweats - while the rest of the leg is almost hairless and isn't sweating. Very strange like a foreign appendage stuck onto her leg.
How long have you been trying to get diagnosed? It can take so long for doctors to rule out other conditions.
Mum also has chronic fatigue and fibro myalgia and rheumatoid arthritis. Her immune system is failing her.
Have you found the same?

In response to: Re: Life can be a Pain

WandererSenior Contributor05 May 2018, 10:16 pm AEST

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In response to: Life can be a Pain

utopiaSenior Contributor05 May 2018, 10:55 pm AEST

Re: Life can be a Pain

@Wanderer. Everyones symptoms are slightly different. But mum has been suffering badly with swelling of the legs for the past 6 months. Seems like almost a constant course of fluid tablets.
My mum was diagnosed quite quickly. She was lucky. A new gp she went to see had experience of CRPS.
Yes it's one thing on top of another for my mum. She is over it all. But as we say here on the forum - no one's journey is better or worse than anyone elses - they are all just different.
What other conditions are they testing you for, for the neuropathy?

In response to: Re: Life can be a Pain

WandererSenior Contributor06 May 2018, 12:05 am AEST

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In response to: Life can be a Pain

utopiaSenior Contributor06 May 2018, 12:51 am AEST

Re: Life can be a Pain

It must be so frustrating not getting a definite diagnosis yet @Wanderer. And so many tests. Yes the nerve conduction tests are not the nicest. I used to be a receptionist in a hospital department that ran those tests. I tried it once to see what it was like. They did it on a low setting. A very strange feeling. I didn't like it at all. But we have to do what we have to do.
Your stress won't be helping. But it's not always easy to reduce it. Meditation and breathing exercises can help. But I find you need to practice for a while before the benefits show.
Wow that's a long wait for the results. Please let us know when you get them.
Well I'm off to bed now. Is freezing cold her, so sleeping in my old tracksuit. Lol. I look a million bucks. Lol.
I hope you get a good night's sleep

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