Anyone started with the NDIS?

Hi again @-Liz- The NDIS funds don't cover the actual cost of most community participation activities, but they do cover a support worker's hours to come with you. And in some cases they cover the activity cost e.g. my water tai chi classes, as they are justifiable ('reasonable and necessary') under my goal of improved health and wellbeing, needed because I have neuromas in my feet and can't do weight-bearing exercise. Hope this makes sense.

"Trauma disability" does sum it up rather well. But I think it would be very hard to prove permanence for NDIS criteria. What my psychologist told them about my cPTSD is that although I can learn to manage it and somewhat ameliorate the symptoms, it is 'lifelong and significant' as I've already had it since around 10 years old (now 56).

Once again the use of ' ' quotes represents NDIS language.

@eth Hey eth my ndis meeting I think went well. the ndia person was 'sympathetic' and son2 was mad lol. He could have been alot worse but he was clearly not impressed with what has been occuring for him for the past few years. It has been decided that he will be partially funded which means I will have to put my big girl's pants on and find a couple more carers myself which is very daunting. Funding hopefully will be there i just have to use it apparently.

As for me I have much to work on it will be a process. A long drawn out process which I will do with my pdoc and hopefully again the ndis will come to the party with more funding for my mental health worker so I can have her 2 days week not just one day.

Hi @Bunniekins I'm glad you feel it went well overall. Might I suggest you have a look at Hireup for finding new support workers. Once you register on there you can do a job add specifying exactly what you are looking for e.g. qualifications as well as experience in your son's diagnosis and needs. All the support workers on there are independent of large organisations and can choose their own hours and who they work with. But you don't have to worry about super, sick pay etc. Hireup does all that. I use it and it works really well for me. Another one I haven't used that's meant to be good is Mabel (Mable? sp.!?). I can't remember if you're plan, self or agency managed or if you have a support coordinator for him. I have one now (CoS) who is a sole trader and he's way better than the one I had from a large organisation in the past. He really listens to me and helps with choice and control, rather than telling me what I need. And my plan manager is really good at explaining what services and activities can be done with what part of my plan.

Good luck with getting things in place. I hope you get what you need for yourself too.

@Bunniekins Also Endeavour Foundation and The Growing Space have really good information sheets about how to find the people you need.

@eth actually higher up was mentioned in the meeting. I will also look into the others thanks for the heads up eth :)x

Just FYI it's 'Hireup' (one word) @Bunniekins Hope you find it as easy to use as I have. There's a bit involved in getting started - bio profile, safety plan etc but it's well worth it in my experience.

Hi @eth and everybody else.

I read your first post, and I'm just coming here to ask, and please excuse my ignorance for not knowing (I'm so sorry) but what's the NDIS please? Is it like the DSP for Centrelink, or? Because I applied for that for Mental Health since it's all I'm eligible for (because of my age & other things), & I got rejected. But people keep telling me to try again & getting my Psychiatrist to write up something new because they usually reject people the first time around & explain my situation to them? But at the same I don't see a point of me doing that?

Again please excuse my ignorance, I apologise for not knowing about it. But I see on your first post that they accepted you, so congrats to you and if anyone else has been accepted.

PS - I'm a new member so please excuse me randomly popping up in the forums. I hope that's alright.

@Bunniekins @-Liz- @Appleblossom @CheerBear