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Anyone started with the NDIS?

Anyone started with the NDIS?

Tells my story from initial application (Feb '17) to acceptance by NDIS (July '18) and the process of putting things in place and progress, improvements, managing and difficulties since then. Now Jan '21.

Original post : I've recently moved and will need to get into the NDIS in my new location. Wondering if anyone in the forums has successfully done this? Any advice would be welcome. Feeling swamped by their website.

EDIT : I was finally accepted to the NDIS and am now 3/4 through my 2nd plan. With only a small reduction from the first year. And this plan is for 2 years so I don't have to jump through all the hoops with a review this time next year. To all others on this path I say ........

IT'S REALLY WORTH PERSEVERING!!!

Hoping this thread helps all who come here.

@Appleblossom @Queenie @saturnzoon @CheerBear @Mazarita @Bunniekins

Spread the word!

927 replies

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In response to: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hugs @eth xxxx

In response to: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

I just got knocked back from the ndis myself.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Thanks @Shaz51 and back atcha xoxo

@The-red-centaur you can ask for a 'review of a reviewable decision' (internal review) and submit more evidence if you choose to. Reports need to prove your disability is permanent and that you have severe and enduring functional effects from it. For the review your reports etc have to be viewed by 'a fresh set of eyes' in the NDIS. You can also get a Disability Advocate to help you (google them, they're in every state). I did those things.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

How long after the ndis planning meeting did anyone get their package?? This wait is making me super flat and anxious. I need the ndis so I can get some more support but can’t do anything until I get my package and It’s affecting my mental health badly.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hi and welcome @STORMGRL101 Sorry to hear you're having a frustrating time with NDIS. I don't know of anyone who hasn't. If I can help feel free to ask me questions.

My plan came through only a few days after the planning meeting but that might be because I had a Disability Advocate (google them, they're free in every state) and a legal aid solicitor and had been ready for a hearing at the Administrative Appeals Tribunal before the NDIA conceded and accepted me. If I was you I'd be ringing the NDIS at least weekly to ask what's happening. I totally understand how it can be affecting your mental health. It took me 1 1/2 years to get accepted and it was a total roller coaster of emotions all the way.

For anyone else still following - My coordinator of supports (CoS) is coming on Thursday thanks to my sil calling her. It turns out she's only doing 1 hour a week with me, despite being funded for 50 hours of CoS. To me it makes more sense for her to do more time setting things up for me and less later on once I have supports in place. I wasn't prepared for how much I need to manage things myself. I thought that's why CoS and plan manager were approved. The saga continues. Hopefully after this next session with the CoS I'll actually have some contact with potential support workers.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hello @eth and everyone,

I have a meeting with the LAC this Friday. It appears during this transition period into the NDIS in my area, the LAC is still at the temporary NDIA offices until the carer's organisation takes over the role by year's end. I have to go in and search for providers and stuff. I hope it goes okay. I get a lot of anxiety regarding NDIS stuff.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hope it goes well for you @Queenie. Keep telling yourself 'this is the good part. I will have more support and therefor more freedom'. That's what I'm trying to do. But I've been having really high anxiety about it too.

My LAC only did the planning meeting before I got my plan. Then after the plan came through I was referred to another organisation for coordination of supports. Seeing the CoS again today. Really hoping to get some supports happening.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Appointment with CoS went well. I now have 2 support workers (SWs) booked to do alternate Sunday afternoons with me. That's the only time slot that was available. So the hourly rate will be a bit higher. I'll get to do a meet and greet with them and the CoS sometime before then. Also did a Service Agreement and consent form with her.

Also have a couple of messages from potential SWs on the Hireup page. I'll get back to them after my weekend away.

So ....... progress.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

@eth great to hear you have some support in place. You're doing so well working through it all.

I have some news to share. I've just opened a letter that says that my Access Request for the NDIS was successful! It was a bit of a headache and some stuffing around but it feels like it was worth it now. I'm so, sooooo relieved! 😁🎉

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

It's all systems go here! I have been funded for 50 days of respite (wahoo!!) and a support worker for 3 hours per weekly plus weekly therapy and plan management. I clearly didn't understand what my plan had set out because it mentioned things like yard and garden maintenance and I didn't need that at all. It means I have a heap of respite up my sleeve--- yesssss!!!! I am interviewing plan managers soon and then looking at providers to get the ball rolling. My official LAC starts in October.

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